Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  •  

    Heyyyy.....yes 5 done cant believe it, it's gone so quickly the first week. I've had no problems at all...in fact i look forward to going as the air con is wonderful, it's lovely and chilly in the waiting room and the treatment room.

    Good luck with starting your rads Mich....

    Sue I hope you've managed some sleep, difficult in this heat on top of your worries.

    Claire, Davia, Karyn, Mum Jan and Sacha, hope you're all enjoying the weather and taking it easy

    Love and prayers to you all

    xxxx

  • Hey ladies, 

    Linda, Carla glad to hear your first week went well and no side effects Yeah I start in Thursday and having 15. Been practicing holding my breath for 20 seconds lol! Which is pretty easy, let's hope it's the same on the day. 

     

    How was everyone's weekend? Gorgeous weather eh. Ive been painting indoors now, yes I need my head examined!

    Actually I've noticed the past couple of days my ankles are really swollen. I guess from the heat and standing. Have you ladies experienced it recently after treatment? Is it a menopausal thing. 

    Hope you all managing OK. 

    Big hugs xxx 

  • Sue, how u feeling about tomorrow? We'll be thinking of you. Still not sure what I will do if offered it. Hugs xxx 

  • Hi Ladies,

    Thanks for thinking of me. As Much rightly said, tomorrow is D-day. I joined a Facebook group for triple negative in the UK and Ireland but I don't think it's the same one you are all on? Everyone on the site said to take any chemo they are happy to throw at it but I had decided against it so I'm now really confused and have literally been in tears all day.

    Enough of me. How is everyone coping. Mich you must be starting radiotherapy soon? It's an absolute breeze compared to chemo. I'm glad everyone seems to be coping well with radiotherapy. 

    Stay strong Ladies, I know only too well how hard it is to stay positive. I really need to toughen up and not be such a woose but my emotions have totally taken over. 

    Love, hugs and positive vibes to you all,

    Sue xx

  • Hi Mich,

    I don't have swollen ankles but my stomach is really swollen. I know it's not fat lol, as it's flat in the morning but huge by lunchtime. I think it's a lot to do with all the meds we've been on. I don't think the heat helps.

    Don't overdo the painting but I bet it looks fab. 

    Love and hugs 

    Sue xx 

  • Hey Sue,

    I've seen your post, you're on the right group :)

    Aww its really hard for you, sorry to hear you are upset today.  Throughout our treatment we are told what is going to happen, what drugs we are having, how they are going to deal with the treatment etc etc so i do feel for you as now its all up to you which is scary. As the doctors have said it is not essential so entirely up to you and how you feel.  if you did change your mind and went for it, do you think you would stress whilst having it.  What i mean to say would it affect your mental health and make you worry more for 6 months?

    What does your husband think?

    Thanks I'm actually looking forward to rads, am i a weirdo! lol!  I think its becuase i've been on this journey since last August, so relived last one is in sight altough i know i will worry too once all is over.

    I have my feet up tonight and resting them, been taking it easy with the painting, snail pace but good to get my arms moving.

    Strange to think its the 01st June already eh!  Summer is offically here.

    xx

     

  • Hi Mich, 

    I'm glad I'm on the right Facebook group. As you've seen everyone thinks I should have the chemo but I don't think I will as there's no conclusive proof it does any good. Yes, the stress would be too much to take. My husband and son will have to go back to work soon so I wouldn't be able to shield. My husband doesn't think I should risk it. 

    I understand you looking forward to radiotherapy as it's pro-active and you know it's doing good. It's a really strange feeling when it all comes to an end.

    Let me know how you get on with the radiotherapy, I'm sure you'll find it a piece of cake.

    Love and hugs xxx

  • Hey Sue,

    Yeah i saw that, but at the end of the its you who will be taking the tablets and will affect your life for the next few months.  I'm sure you will feel better after tommorow :)

    Thanks, after EC I can handle anything lol!

    Have you been out walking?  I haven't been out for the week, might go for a short one tomorrow.  A lot harder now with everyone out n about eh, daren't go down to the beach!

    xx

     

  • Hi Mich,

    Yes I walk everyday. I avoid the beach and cross the road if I see someone coming. Walking really helps my aches and pain.

    Try and get out tomorrow, it will do you good

    Xx

  • Hi Sue 

    How did if go today with consultant? 

    You'll be glad to know I put my brush down today and went out for a walk. Was for3out there and managed a quiet walk actually along the beach, perfect. Was tired when I got back, all the sea air! 

    Ladies, hope you are all doing well this week. 

    Xx