Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hey Linda,

    Cool, I know so glad to see the last stretch.  My appointments are all in the evening at 17;00.  Rush hour traffic, great!  I have a pretty country drive though to Canterbury,

    Let us know how it goes.

    xxx

  • Hi Davia,

    I'm glad to have been of some help to you and hope you've felt abit more lifted today and managed to enjoy your day.

    I've no idea why these MRI results take so long and I'm hoping as you say that no news is good news on that front.

    My reconstruction and masectomy will be at a hospital that I've not been too before, it's in Central  London.

    The surgeon will have to be appointed from the hospital where I had my previous surgery and he will need to go to the hospital where the plastic surgeon is based and everything will be done there.

    My previous surgeon refuses to do the masectomy he feels it isn't necessary and then I have my oncologist telling me of a 60 - 80% lifetime risk of a further breast tumour if I dont have it so I feel I cant win really.

    I've distracted myself with many things today as thats the way I cope better is lots of distraction but I'm careful not to push myself too far as I have been fairly fatigued from not sleeping well.

    I enjoyed a nice walk with the kids though but avoided the busier ones as they were all too packed with people.

    Take care & big hugs xxxx

    Karyn xxxx

     

  • Lindylu 

    Good luck for tomorrow, hope your not kept waiting to long, oh and enjoy the big screen with pictures on, well if you have one in your unit, it was really relaxing watching it lol xxx

  • Hi  Sue

    Yes it's good to share with others and know we're not alone in our suffering with various aches and pains.

    I'm like you in that respect and imagine every little pain is something connected to C and then I have to use my cognitive behavioral therapy to turn my thoughts around and it does help to some extent.

    Sue I think you will torture yourself with any decision you make and whether you are doing the right thing and it's as if we almost want someone to make the decision for us rather than make the wrong one.

    I think you've made the right decision and your reasons for doing so are I think in your best interests and if it wasn't for the Covid it may have been different but it's too much of a risk most certainly at the moment.

    Stay strong Sue, all will be ok I'm sure xxxx

    Karyn xxxxx

  • Hi Karyn

    Glad you had a lovely walk today, it has been lovely weather, we had a social distancing neighbour tea party, it was nice just to chat to people,

    Yes distraction is the best medicine  

    Take care and keep well, hugs xxx

  • Thanks Davia, hopefully they will have something nice for me to look at as it's quite a new unit. 

    I'll let you all know how I get on x

  • Hiya Linda,

    You'll never believe this - my appointment is 3:50, so we'll be getting zapped at the same time - we'll have to think about each other as we go in the machine :-) I cant believe we're on the last lap too - hope you've got your moisturiser at the ready.

    Hi to everyone, hope you're all feeling ok and have enjoyed the sunshine

    Love to all and stay safe xxxx

  • haha what a coincidence :laugh:

    I have the moisturiser all ready, I have a choice of e45 or vaseline aloe vera though the nurse at mapping said to take that one in so they can check what's in it.

    I hope we both get to go in on time, how many doses are you having? I'm on 10 5 intense and 5 boosters xx

  • Hi  Mich

    Glad you're doing ok and been getting out and about as that's definitely the best medicine for you.

    As regards my breast nurse nobody ever picks up the phone and its annoying to leave messages and have calls not returned.

    I guess I will have to keep trying them!

    I've managed to get out with the kids today for a nice walk and spend time in the garden so it's been a fabulous day and glorious weather.

    Good luck with the rads, if I remember right I had a check up 6 wks after raids to check my skin and then a review every 6 months with the oncologist.

    Take care & big hugs xxx

     

    Karyn xxxx

  • Good luck for your rads tomorrow  Linda and Carla, I will be thinking of you both.

    Just think it's the last step of your journey..amazing!

    Linda I remember when I had my radiotherapy the radiographer said that the aloe vera is generally only good for cooling the skin and doesnt actually any moisturising properties.

    E45 is probably better but I found Medihoney to be excellent to combat the dryness.

    Hugs to all  xxxx

    Karyn xxxx