Thanks Linda, I've joined too!  

Great, they are such a lovely bunch on there and Michele se is very knowledgeable x

Hi Davia,

I wont be having nipple saving done as part of my surgery as it doesn't have the  same 95% risk reduction as I would get if I have everything removed and as I understand it I would also still have to continue having mammograms every year if I kept the nipples which is something I dont want to have to keep doing in my circumstances.

I'm sure I will feel better once it's all out of the way and I am just concerned about my recovery and the frustration of being limited in what I can do. Davia like you I'm still struggling some days with mobility and not being able to accomplish everything I would like to do because fatigue sets in and as you say it makes you feel like an old woman!

I kid myself some days that by staying up late some days that I can catch up that way but it never happens like that and I end up paying the price the following day.

We must remember what we've all been through and that we wont always feel this way and time is a great healer.

Take care and big hugs xxxx

Enjoy the sunshine and dont push yourself to hard.

Sue, Mich, Claire and Linda hope your all ok

Carla and Mich wishing you all the best for your upcoming radiotherapy, you will both find it a walk in the park after everything you've been through.

Hugs to all xxxx

Be strong  xxxx

Hi Katyn

Well to be honest what's a nipple, I would do exactly the same as you, yes I'd be caking it to, but who wouldn't, but in the long run it will all be for the best and 95% is an amazing stat

To be honest for the last three days I have done nothing, I have inflammation of the lung caused by radiotherapy and that's making me feel even more tired, I've felt very sorry for myself, it's as if it's one thing after another, your right Karyn, time is a healer and one day we will feel like our old selves again, ️ 

I did read a booklet that mentions how people used to be sent away to converless after treatments like ours, today it's as if, oh treatment finished that's it get back on the life road, but our poor bodies have been through the mill and are still going through the mill, it's exhausting mentally, so I decided over last three days to converless lol not that there is much else to do ha ha ha, 

Although we feel very alone sometimes in this journey, knowing other ladies that are going  through it is comforting,  I'd rather no ladies ever had to go through anything like this,

Take care Karyn

Try keep your chin up, love and hugs xxxxx

Hi Davia

thanks for the advice.  Funny i walk around with my arm in the air too, quite a novelty at the moment lifting it up.  The amount of times i've stretched and knocked the light fitting lol!

thank you, i'll keep an eye on it and call the nurse if needs be.  I have a feeling i jmight develop it, as i tend to retain fluid.  Anyways we'll see after radiotherapy.  Ah didn't realise your sister had BC too, bet you are a good support for each other. 

I walked yesterday and moved my arm quite a bit and kept it up as much as possible an my hand wasn't sore and didn't swell.  it wasn't nearly as warm, so that helped too. 

Hey Karen,

Ah thank you, yeah doing ok this weekend.  Has felt good getting out for walks.  I took a break today as dont want to overdo it and my knees feel a bit weird and achey. Actually been out of sorts today, grr probably hormones!

Hope you have been ok this weekend, you do have a lot to think about so hope you haven't been overthinking, one step at a time.  Thanks, sure anything will be better than the chemo drugs lol!  Cant remember have you had radiotherapy already.  Good luck for next week, i think you are due some news.

Hows everyone else doing this weekend?

Big hugs

xxx

p.s.  Are any of you taking vitamins.  Carla, i was wondering if you are with your diet?  Not sure if we should be taking for our bones.  My knees really ache and creak more than usual. 

Hiya Mich,

I'm not taking vitamins but do take a turmeric supplement. I was thinking of taking a vitamin D supplement but apparently if you place mushrooms in the sun they absorb vitamin D - I forget who told me that. 
 

my bones have been very achy since the chemo started, some days I don't know where I ache the most...I still have burned feet from the Docetaxol too...feel like an old croc some days lol...

a friend of mind who is triple negative was told that she shouldn't take any supplements at all whilst on chemo. Next time I see my oncologist I'm going to ask them about it. Surely vitamins can't hurt can they . 
 

ive started taking low dose aspirin daily as I've heard it's good for fighting many cancers.

love to all and stay safe everyone xxx

Hi Mich

Yes I'm often seen with my arm above my head, it's become such a habit I hardly notice I'm doing it now lol 

Glad you got out for a walk, it does make you feel so much better doesn't it, its just the next day I feel it, but it's got to be good for you, but saying that, I've had three days off slobbing lol 

I take vid D and calcium, they gave it to me in the chemo unit, ad cal and vit D tablets, but my bones feel like someone else's, I get neck stiffness and shoulder aches, I wondered if it was the excersize so eased off but no, it's just aches it could be all the healing and tightening up doing it. 

My sister has been my rock, especially right in the beginning, she kept me calm, well as calm as you can be when first diagnosed, she didn't have chemo as her lump was found soon and she had full clearence as one lymph was suspect, infected, she looked at the stats and chemo would have taken 5% off her stats, so she decided it wasn't worth it, but she hasn't got TNBC she has estrogen posative one, but I think she made the right call,

Keep well, big hugs xxxx

Hi Davia,

Sorry you have been feeling low with your lung inflammation, it must have made you feel pretty lousy.

My radiotherapy finished 8 months ago and I am stiff suffering in many ways with neck pain and shoulder pain which comes and goes and my lower back pain as well which comes on if I over do things.

I seem never to be able to get comfortable at night because of my arm and bones ache ar times.

I just think its all an accumulation of effects of everything we've been through and it will eventually pass.

Up until a few weeks ago I was also still getting shortness of breath on exertion but I'm glad that has gone now as I think that was through the radiotherapy.

Davia I dont blame you converlessing for 3 days it will certainly do both your mind and body good.

If I had someone to take the kids off my hands for a few days I think I would do the same lol.

At least as you say we know we're not alone in this journey with so many support networks.

I felt abandoned by my breast nurse soon after treatment finished, she never calls me and when I ring she never returns my calls.

Stay strong Davia, life will get easier xxxx

Big hugs xxxx Karyn