Hi, really sorry to hear about your daughter, it's such a very hard time for you both, one thing, DON'T GOOGLE  its so outdated and all you get are the negative side of anything, lots of ladies have had successful outcomes, your daughter will get her plan and once she has that and starts on the treatments you and she will feel more posative. There are charities like Mcmillan who have nurses you can chat to, or just someone who will listen to you no matter what you want to say, and Breast Care is another great charity, they have, someone like me, a person they buddy up with your daughter who has had same diagnosis and got through, they are brilliant, I've used this service. 

But we are all hear if you need to chat or ask anything, 

Sending you and your daughter BIG HUGS  xxxxx

Davia mines sprouting out everywhere like its on bogof!! I am very dark haired almost black so ive always had hair on the side of my face but I always wax it, can you believe the 1st thing what came back was my moustache :laugh: that was soon waxed away lol my hair is starting to thicken now but it has some white in it which I never had before, the chemo nurse did say it could come back grey, it's starting to darken now so fingers crossed the white goes.

Thanks for the tip about my arms I'll take 2 paracetamol before I go xx

Hi Carla,

Thanks for advice. Yesterday, we were shaking with fear all day, talking to a few nurses, and nurse and doc came by to take bloods in preparation for CT scan.

Yes, Sacha will be having a genetics test to see if she carries the gene.  Although there are no breast cancers my side, her father may of,  he is of Jewish descent.  I think they are at higher risk of this gene.

Really appreciate your help, Sacha can't focus to chat here, but hoping she will soon.

Lovely kind words you sent. xx

Take care,

Jan xx

Hi Sue,

Thanks for your lovely kind words, means so much hearing this, so overwhelmed how supportive you all are when you are all fighting a terrible war yourselves.

I have been googling, sorry, and what a minefield! A lady online who seems v nice advising Sacha not to eat or drink soya.  We are veggies/vegan, so now worried if this has caused the cancer? 

Oh dear!

Thank you, your adivce has helped. 

Best wishes,

Mum Jan xx

Jan I was so sorry to read about your daughter, how terrifying for you all. I would echo the advice already given, do not google! You only see the bad, not the good. Treatment is so good and advancing all the time.

Any time you or your daughter want to chat we're here to support you.

Much love to your family x

Hi Linda,

Thanks for your reply, means a lot to me.  I never expected you ladies to send such support.

I am not sure how this forum works, just wanted to know more from triple negative ladies as doc and nurses said it is rare.

She has to go back 4th June, v worried if the lump will grow out of control between these dates as it has appearred from nowhere.  Scared of it spreading before treated.

Take care ,

Best wishes,

Mum Jan xx

Hi,

Sorry I do not know your name, but  thanks for replying. Yes, Sacha feels v isolated, but luckily she has lots of friends who have been rocks.  Young men and women which has surprised me how caring they are. 

I will write another post on her update, no so sure how to use this forum, so many threads.

Best wishes , take care

Mum Jan 

xx

Hi Mich8,

Thank you for your support, I will pass on the app advice etc. to my daughter who can then use this when she has more focus.

All has been v helpful as Sacha is a lost sould wandering around in a vast desert.

Best wishes

take care,

Mum Jan xx

Hi Sue Bea,

I am not sure how this forum works, I am really interested reading about triple negative posts here and do not know the best way to go about this.

When Sacha returned to hospital to receive diagnosis, she was given another scan under arms and metal pin placed in her lump.

She goes back 4th June, for a CT scan of stomach. I think then she will be given her plan.

It's been a confusing time as she has CF and her CF unit is at another hospital.  She asked if she could go for treatment at the same venue as she is treated for CF. She thought that when she has surgery, the CF physios could then see her, well all the CF team.

Well, it's not that easy,  the hospital she is being treated atm will do treatments at a private hospital in Winchester.  The hospital where she goes for CF has a fantastic website for breast cancer, so many more doctors etc. Anyway, nurse from this hospital said she could go there, but they are doing treatments at Ascot and Windsor, not where hospital is (covid 19reasons). Nurse said she would be better off staying where she is.  She also said that due to covid 19 , they would do surgery first and then chemo.  I told her that other hospital said better to shrink tumour then operate, she agreed and said better stay where she is then.

She also said she didn't really know what teeatment she would have, oh how confusing!

Please, can anyone give advice? 

Are larger hospitals better? 

Poor Sacha hasn't a clue what to do, she was so confident, a feisty CF warrior and now she has crumbled.

She will have to travel far as we live bang in the middle of Winchester and Ascot.