Thanks Sue,

I know what a worrying time you are having at the moment but just take a day at a time as I try to and keep the wine flowing.

Keep strong xxxx

Karyn

Hi Davia

Breast plastics is just the department that deals with plastic surgery and it is one of the plastic surgeons who will do my reconstruction but the breast surgeon will do my double masectomy.

You're right about Angelina Jolie, she is Brca 1 and has had all of the preventative surgeries but never had cancer.

Sharon Osbourne and her daughter  Kelly are also Brca 1 and Sharon has had a preventative double masectomy.

That's great news about your friend and I'm just hoping that I will feel better after all of my ops but I know recovery will take time as was told 4 months or more with some lasting effects.

How are you doing?

I've heard many people say that it's the weeks after raids that tiredness kicks in and again this may last a while.

I hope you have a relaxing weekend. 

Big hugs xxxx

Karyn 

Hi ladies, I don't think we've 'met/spoken' before Karyn and Carla so hello to you both :happy:

I had my mapping done on Tue and came away with 3 lovely black dot tattoos :laugh: the team who did it were lovely, I hadn't realised i had hairs all of a sudden appear from no where under my armpit so I apologized to the poor man marking me with a pen, he found this hilarious, said no one has ever apologised for having a hairy armpit before haha. So I start tue and am having the 5 intense then 5 boosters, seems like only 5 minutes ago that I was thrown on this rollercoaster and in 2 weeks I can finally get off it!

Sue I read you have made the decision not to have the cape, i how you feel more relaxed now x

Mich I hope you're healing well after surgery

Hope you're ok Claire and Davia, sorry if I have missed anyone.

love to all

Linda xx

Hiya

I'm sorry to hear of your daughters diagnosis. It is such a shock when you get told you or someone you love has cancer, as Sue said all of us ladies on this thread has been diagnosed with triple negative so I hope you find it a helpful tool if you have any questions please ask as we may be able to answer them or advise you of where you can get the answer.

Every emotion you have will rear its head in the first week or two and its ok to cry, scream and shout, once your daughter has seen an oncologist and has a plan things do seem to settle. I read on another post of yours that your daughter also has CF and that worries you. Oncologists know their stuff and will look after her in the best way they will know what treatment should suit her better. 

I know its easy to say but try not to worry too much .. your daughter will be fine, we are all stronger than we think when we start chemo and she will be in the best possible hands.

Take Care

Linda x

Hey Linda

I was wondering how it went for you, glad to year you are dotty now too and ready for next week. Tuesday, same as Carla then and me just over a week after that on the 04th.

Ha ha funny you should mention the hairs, I had the same on Friday.  I only noticed when i was getting ready to leave, sprouting long hairs like im 12 again!  I was hoping they woulnd't come back as i've been told not to shave as i have no feeling their and mustn't cut myself.  So lying on the bed, i also had to apologise, i felt sooo embarassed.  I'm sure they must see all sorts anyways eh!  When i went back on Monday i tried my bikini trimmer under my arm, which was easy enough, will have to see when they grow back.  I've got veet cream now but never used it before so hope it will be ok. 

So 2 weeks for your rads then, it will fly by.  Hey if we can manage almost 6 months of chemo rads will be walk in the park eh.

Thanks for the advice on the creams ladies.  They actually didn't say anything to me about moisturising but i remember you saying Davia thats its important to start as soon as.  I do anyways every time i shower.  My skin is still so dry from chemo. 

Thanks for the heads up too about delayed side effects Davia, no doubt I'll be asking you again in a months time.

After my walk today i felt my hand had swollen and was sore to the touch, like i had bashed it and bruised.  i guess walking with all the blood rushing down.  i could see my fingers were swollen too. I do still get strange twinges and in my chest too.  its still weird i dont have feeling in my arm pit and down my arm.  i still have the lump but its smaller now and when i mentioned it to the radiologist she couldn't really notice.  When i have my arms up it looks like there is no lump.  Its still so tender to  the touch and some of it is flab, great!  I realised that when i looked at my right arm, erm yeah i have back flab.  How do you get rid of it?!

Hope you doing ok today Karyn.  You have a lot to contend with and June seems to be the month when its all happening. One step at a time eh. 

I was watching a programme last night called the Rookie, quite easy going.  Anyways one of the cops was giving the other some advice as they were waiting for test results and they said "Focusing on the fear is not going to change the outcome" And that hit home for me, as so often we focus on what can go wrong rather than what we have done and achieved.  I know at times easier said than done with what we are going through, but that statement resonated with me and something i needed to hear. 

xxx

Hi mitch 

Just read your post, when your hand fells swollen lift it up, like put your hand up as if your in school and getting teacher attention lol it is the fluid poing in hand, try the scarf thing, or if you have a zip front top, zip it up to boob level and put hand in to support it and when you put cream on hold arm up and brush cream on in downward strokes, from wrist to arm pit, you most probably do this but just in case  

Best way to get rid of back flab is church bell ringing or rowing lol but church towers are closed, so maybe rowing lol 

I love that saying "focusing on the fear isn't going to change it" we all need to have this written down where we can see it daily, so very true, thank you for that x

Oh just in case, my sister when she had rads was told not to use veet and be very carful shaving as it could make the area more sensative when having RT maybe ask them first

I have numb arm pit and parts of arm to, I don't think it will ever recover fully, again my sister who had full clearence 10 years ago still has numb arm pit and upper arm, but she said it just becomes normal.

Have good weekend enjoy sunshine keep well xxx

Hi Karyn 

Feel stupid now, breast plastic what am I like lol, are they going to try and conserve your nipples? Again with judi the managed to keep her nipples, but I don't think that is always possible.

I'm sure after all the opps you will feel better, they say 4 months but after 4 weeks you will feel better, but will just need to take things very easy, you did chemo, you can do this xxx

I'm not doing to bad, just get very frustrated when I expected to feel better than this by now, but I have taken your advice and slowed myself right down and it works, when I was doing to much I would ruin the whole next day as I was so exhausted, so better to be a snail and feel OK the next day, it does make me feel like a really old woman mind, lol 

Hope you have a really calm relaxing weekend 

Sending hugs xxx

Hi Sue

How are you doing? Has it made it any easier now you've made decision not to have Cape?

I think we're all finding it that much harder as we can't get out and take our minds off this for even a few min, like you say, if we could meet up properly with friends we may have times of respite from the constant churning in the brain,  it's hard even to motivate, I've done garden, made pop up  birthday cards, new craft for me, sewed drain bags for hospital, I'm crafted out.

I hope in time we will start to feel better and more relaxed, sending you calming hugs xxxx

Linda

Don't mention hair, I am sprouting out everywhere, I'm sure there is far more than I had before I started treatment, gross coming up!! I had to use my hubby's nasel Trimmer! And I'm sporting loads of facial fluff, I tweezer any big hairs but don't know if I should wax the sides of my face, it's terrible, and I shave one arm pit, I'm not allowed to do the other one as like mitch I have no feeling in it and I'm not allowed to nik it, to be fair there is hardly any hair that side, so not to noticeable, but I don't wear sleeveless, maybe later I will try veet.

Let us know how you get on with your 5 intense and 5 boosters, sounds interesting, hope it all goes well, if your arms are in holder's for longer than normal maybe take paracetamol before you go, you may get cramp, I did by the end, I had 15 but only took 20 min from placing me right and zapping. 

Good luck sending hugs xxx