Hi Karyn,

The hospital won't do any procedure unless they think it is totally safe. I can only imagine the stress it's all causing you, it must be unbearable. Maybe now's the time the have a glass of wine, it's been my saviour. 

It will be June soon so not too much longer to wait. Enjoy the sunshine and eat as much chocolate as you want, you deserve it and if that's your only vice the. You're doing well.

Love Sue xxx

Sue, that sounds like the right decision to me.  Its very tough to be strong for everyone else, not something we should really have to do, they're all supposed to be strong for us :)

Karyn, I'm not great at rationing myself with chocolate - or anything in fact!  I do understand your anxiety but agree with Sue, if there were any real risk they would delay the op - you're better going ahead with it if they are happy to do so.

Carla, apologies if I've already said this somewhere but I had no trouble at all with the radiation so hopefully you'll be fine.  It's interesting how differently we all react to the chemo.  I basically had no side effects from taxol, felt slightly sick with carboplatin but felt horible on ec.

Mich, Davia, Linda, hope you're all ok.

Love to all x

Hi Karyn

How are you doing? Sorry I haven't replied sooner, I haven't been in to read all the messages, your message was lovely again thanks. X

I read your very concerned about your op, it's not surprising really, but I have read that other ladies have had there ops in private hospitals well away from Covid patients, hopefully this will be the case for you, I have a fear, like fobia of anaesthetic, I hate being put out, it scares me, why I don't know cos its so quick, your put out and it seems your awake within seconds, it's also horrid to think that you have to go through yet more trauma to get to a safer place in terms of the TNBC and BRACA, my friend had a double mastectomy and full reconstruction using her own skin not implants and she was so happy with the results, she showed me her new breasts and they were lovely, like she had plastic surgery, it's hard before but once you have had it done you will feel better. Just pretend in your head your going in for plastic surgery, it may help. 

Really hope you have been able to enjoy the nice weather, sending calming hugs xxxx

Thanks Sue,

I know your right about that and they wouldn't take the risk if they thought it was unsafe.

I hope you are managing to enjoy the sunshine and make the most of these fine days while we have them.

My gp rang me as she does every 2 weeks for a courtesy call and said that elective surgeries are still subject to delays so there is nothing I can do but wait to hear from my gynae consultant but I have sent him an email in the meantime asking for it to be put back until all my breast results are back.

Mich, Davia, Claire, Linda & Carla hope you're all ok.

Big hugs & stay strong ladies

Karyn xxx

Hi Karyn,

You need to do what's right for you. No one knows the anguish you're going through except you. 

Stay strong, you will get over this. This is a horrible chapter in your life but it's only one small chapter.

One day, this will all be a distant memory for you and you'll be amazed at how strong you were.

Sending love 

Sue XX

My daughter was diagnosed with exactly same as yourself yesterday. We are in shock to put it lightly. I hope we can get support at this time as we feel very alone.   I've been reading your posts and have been talking to my daughter about them. If I Google TN it all seems doom and gloom. Please any advice would be greatly appreciated.

Thanks x 

Hi there, 

A cancer diagnosis at any age is awful but for someone who is only 24..truly heartbreaking. You must feel overwhelmed at the moment with it all...for me, I did lots of googling about Triple Nrgative and all I'll suggest is don't do it - not all of the info is up to date. If you really feel the need to look online stick to Cancer Research and MacMillan (that's what my breast care nurse told me).
 

With regard to your daughter are they planning to do a BRCA genetics test? As she has been diagnosed at a young age they may suggest it - people with a genetic fault may need different treatment with regard to surgery and chemo. So it may be worth mentioning - the tests are quicker now too, I had mine last year and it took four months but my mom had one recently and it only took 5 weeks (we're both BRCA1 positive).

in my opinion the best thing to do, albeit difficult, is to keep as busy as possible as any time thinking about something else is less time thinking about cancer. It's awkward going out and about at the moment but I hope you can both find something enjoyable to do

sending you love and prayers xx Carla 

Hi,

Sorry to hear of your daughter's diagnosis. All the ladies on this thread including me have been diagnosed with the same cancer as your daughter. Most of us are finished treatment and are out the other side so there is light at the end of the tunnel. I cried for a whole month, mostly with shock and disbelief. Googling is not a good idea although we are all guilty of doing it, most of the stuff you read is so outdated. It's true that there are less treatments available for triple negative but the ones they use are excellent. It's still very early days so still very raw.

Stay strong,

Sue xx

Hi there,

Thanks for reaching out and I'm sorry to hear about your daughters diagnosis.  It is all very daunting especially in the begninning and we all react differently.  I was in shock and numb for weeks, felt like it wasn't happening to me and there are no definite health symptoms apart from what you have found.  The ladies on here are great and us TNBC girls tend to stick together and support each other as we are the minority and at times want that reassurance from each other.

I see you you have had a few replies from your own thread so dont want to bombard you but please do reach out if you want any advice, reasurrance, virtual hug.  The charities mentioned are also fab so i would deff recommend using them.  There is a lot more out there for younger woman too, as more younger woman are being diagnosed nowadays esp with our type. Breast Cancer now is great and they have an app called BECCA which i use and the scheme 'Someone like me' which i have used a few times.  Coppafeel is also aimed at younger woman and offer a lot of information online.

Thinking of you and your daughter at this strange time with covid en all!  We are here if you need anything.

Big hugs

xxx