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Just been diagnosed, BC - triple negative

Mich8
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Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Offline in reply to mumof3angels

    Hi Karyn, 

     

    Thank you for your kind words, we do expect a lot from our bodies, your advice on listening to them is so right, i have an afternoon nap more than not, I will be getting a rocker out on my back deck next

    I feel for you regarding the breast care unit, why these people don't know that realing off the whole history is traumatic to us, we are trying to move on and they ask you this   no news is definitely good news hang in there, ️ let us know when you hear anything

    Hugs  

     

  • Offline in reply to Davia

    Hi ladies,

    Glad Mich and Linda have their dates to start radiotheraphy, as everyone has told you, it really is a walk in the park after chemo. Yes, as Karyn says, drink loads of water, it really does help.

    Claire, how are you feeling? Any side effects from the RT?

    Davia, try not to overdo things. I know it's nice to go for walks so it's a fine balancing act.

    Karyn, I know you still have a huge hill to climb but this time next year, this will all be a distant memory. I don't blame you for feeling the way you do, it's the unknown together with the waiting. Stay strong, you have been through such a lot already. 

    Love to you all,

    Sue xxx

  • Offline in reply to SueBea

    Hi Sue, 

    Thanks for that, yes I do get frustrated when I can't do what I used to, but I am only 3 weeks after RT and Chemo can take couple of years to get over so they say. Weather is going to be lovely this weekend and all of next week so I will be in garden, under shade lol, weeding and pruning my lilac tree

    Have a good weekend ladies  

    Stay strong and well xxxxx

  • Offline in reply to Davia

    Hi Davia,

    Your garden sound idilic, I love lilac trees. What part of the country do you live in. Im in Essex and Mich is in Kent. I think Claire is staying at her parents in Kent but I'm not sure about you, Linda or Karyn. 

    I still suffer from a back ache and aching bones from chemo but got off really lightly with the RT.

    Enjoy the sun XXX

  • Offline in reply to SueBea

    I agree Sue Davia's garden does sound idyllic, I'm in Bristol which has been rather sunny today, hope everyone has had good weather x

  • Offline in reply to Lindyluu

    Hi Linda,

    We have friends in Street in Somerset which I don't think is a million miles away if I'm not mistaken? A lovely part of the country

    XX

  • Offline in reply to SueBea

    Hi Sue, Thanks, it was/is my passion, I try and do a bit each day, but as we know we're all on tesco economy batteries lol

    I live in a village called Borden, its just outside Sittingbourne, I do love it here, the neighbours are really lovely, when I was out of it on chemo one did my front beds and the other cuts the grass, we're lucky 

    Sounds like we're all pretty close, Essex isn't that far, do you have a garden to escape in?

    I to have aching back, my legs seem to have eased off, my arm where I had full clearence aches some days and has shooting pain in it, all part of the course so the BC nurse says. 

    Are any of you on medication for anxiety? I was thinking of asking Dr about it or is it a slippery slope?

    Hope your all having a good weekend, 

    Stay well ladies xxxx

  • Offline in reply to SueBea

    That's not far from me Sue, lovely part of the country indeed, I do there shopping  at clarks village x

  • Offline in reply to Davia

    Hi Davia,

    Yes we must go with our bodies as to how we feel. If you feel the need to take a nap then you must because its healing your mind and body after all that you have been through.

    I think it's a great idea for you to get a rocker and make use of it as often as the weather allows. All these little things will create the perfect sanctuary to aid you in your recovery and well being.

    I'm still quite traumatised about my appointment on Tuesday and with the total incompetence shown and lack of compassion by staff but at least I got through it and it's just the waiting again that is hard. 

    I will certainly keep you posted and hope you're feeling ok.

    Big hugs

    Karyn x

     

  • Offline in reply to SueBea

    Thanks  Sue,

    Yes it sure feels that way and it's like a rollercoaster  that I just want to stop. I'm taking it a day at a time as far as I can but I really just want all my surgeries out of the way and it's the not knowing of when exactly they will be with the covid situation. I'm listed as urgent for both surgeries but everything is moving so slowly but I'm trying to stay positive as much as I possibly can.

    Hope you're feeling stronger in yourself  xxx

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