Surry went to soon. Thank you Mich I will look at breast cancer now.

I hope you are keeping well,

Love Sue xx

Hi Sue,

My tumours responded to chemo so was no evidence when they operated.  I was told though the risk of reocurrence is still there but they do what ever they cant to reduce it by following up with radiotherapy.  i wasn't given any stats etc.

Just having a look now at the breast cancer forum, the ladies they are taking it have mets to reduce growth.  So its not essential for you to take but like you said they want to give you the option.

I'll find the number for 'Someone like me'.

xx

Hi Linda,

That's what I thought. My tumor shrunk by 9 millimetres from 2 1/2  centimetres. I also thought that as I had clear margins and no lymph node involvement that it would reduce my chance of a recurrance. Aparently, thay like the tumor to have disapearred as well as clear margins. I don't understand why my risk of a recurrance is still 20-30 % but it is.

Happy days!!!

Love Sue xxx

Someone Like Me <someone.likeme@breastcancernow.org>

They are working from home. You can find out more on here.

Many thanks Mich xxx

Hi Mich,

I have just left a message on their answer phone asking for a call back xxxx

I don't understand it Sue because what about people who had surgery before chemo, how would they tell if they had a complete response, my mum had hers before chemo with clear margins but they didnt offer her Cape. I'm glad your oncologist is taking care of you, I wonder if I'll be offered it after rads then if i had 5% cells even though it destroyed 95% of them, the fb group I'm in is called triple negative breast cancer uk and Ireland support, its really good for answers xx

Hi Sue,

Silly question so if no lymph node involvement, there would be no risk of mets?  Is that right?

I read that with triple negative there is always the risk which is about 25% of recurrence. 

You have to decide if you would be happy not taking it, or mentally would it make you worry that 'what if' and all the aches and pains you have would make you think it has returned.

I'm not sure yet, if i would take it if offererd, although bouncing it off my husband now. He says yes why not, if any percentage can help go for it.  You've been through the chemo you can deal with a few more side effects a bit longer then at least you know you've done everything.  Guess easier said then done when its not their body.

xx

Hi Mich,

The cancer hasn't spread but that doesn't mean that it won't spread. The worry about taking the oral chemo is that I already have a reduced imume system and if I got the virus and take the oral chemo then I don't stand much chance. I have googled it and some experts say it works and some say it doesn't. My Oncologist said that in truth they just don't know . telling me that it might or might not help has kept me awake at night worrying.

xxx