Oh blimey Sue! What do you do? I do know of someone that failed probs toon in his job a couple of weeks ago (sounds like it was to avoid having to pay him) and he's managed to find another job so fingers crossed for when you start looking.

x

Happy belated birthday Linda,

What a lovely surprise the cream tea must have been glad you had a lovely lockdown birthday  

Mitch, great news you have been in contact with team and rads will start soon.

Claire you must be nearly finished rads now,? How is your skin? Mine got a lot redder after I'd finished, I'm hoping it's easing off now  I just keep on lathering on cream  

Hope you ladies have a good VE day celibrations today. 

Take care stay well xxxx

Me and hubby drove to deep countryside yesterday, parked the car and had a good walk, it was lovely, we didn't see a sole, when I got home I had to have a nap I was so exhausted, but it was worth it

It seems like we are all full of aches n pains eh! I can't wait to get out walking, esp after I did my 10k steps challenge. I can feel my buttocks wobbles now when I walk to the biscuit tin! 

We can be the walking warriors! 

Your walk does sound Lovely Davia Hi light of my day will be going in the car to get the tesco click & collect in Dover! So we'll scenic route haha!

How u feeling now Sue? Have u found the moving forward course yet?

I got a letter this week to see my consultant on the 6 May. I called his secretary and its May next year! Weird to think that. She said they send them out early to keep you in their database. 

So hopefully mapping me for me next week. Feels like forever esp as I was also diagnosed in August! 

Have a fab VE day my warriors. 

Hugs 

Xxx 

Hi ladies,

Did any of you not have a complete response to chemo? By that I mean did any of you have a tumor that shrunk but didn't disappear completely. That happened to me and when I had a phone consultaion yesterday with the Oncologist,he offered me oral chemo. He  said it had to be my decision. If I have it, I won't stand much chance if I catch the virus. It is not known if it will help stop a recurrance but it might.The chemo is called Capecitabine (Xeloda) I wondered if anyone else has been offered this. The Government guide lines are not to have it because of the lowered imune system it would give but my Oncologist said it might help reduce the chance of a relapse. I really don't know what to do.

Help. He is phoning me back in 3 weeks for my answer. Any advise please?

Love Sue xxx

Hi Sue 

my lump shrank and went from being hard to like a sponge full of holes, I had clear margins and 0 node involvement but after my op my surgeon said i had 5% cells in what was left but the pathologist was happy with that as I only had 5 chemo so the 6th would of killed those so I had clear pathological response on my letter. I'm in a fb group for TN and a few ladies on there have Cape, from what I can see it's the ones who had node involvement(sorry cant remember If you did) I think before I made a decision I'd be asking what the side effects are and do they make you feel as yucky as iv chemo does, and how long would I be on it for. sorry I'm of no more help to you Sue xx

Hi Linda,

No I didn't have any lymph node involvement. I had clear margins and am now at this moment clear of cancer. The fact That I didn't have a complete response to chemo means there is more of a chance of a recurrance. The side effects are much the same as my previous chemo but no hair loss. It's the fact that I haven't be told anything definitive, it might help my chances isn't really an answer. I really don't know what to do.

Thnk you for your reply, it helps chatting online to you all.

Love Sue xxx

Hi Sue,

Strangely enough i was thinking of you last night and wondering about the xeloda as i know initially they said you would be on it, then changed their mind. I'm on instragram and a few of the woman in the US are on it, it seems to be the norm over there after chemo, radio etc.  Really scary that the choice is yours, i would rather they say what is better for you, but guess not everyone wants to have any further treatment that is not neccessary.

Have you spoke to your breast care nurse?  I actually put it on my list last week after the radiotherapy call, as usual i had questions to ask afterwards.  I'm hoping they will call this week with details of mapping etc.

Have their said how long you would be on it?  I would chat to other people that are taking it too.  Breast Cancer now, they have helped me with some decisions and advise.  If you do want to chat to someone that is currently having or did take it you can contact "someone like me" and they will set it up for you to get a call.

Sorry cant offer any more info on it, all quite new to us.

Hugs xxx

When you say you didnt have a complete response Sue did they tell you what you had % wise? Because surely if you they took the cancer out with the lump and you had clear margins you have the same chance as any of us xx

Hi Mich,

The course would take me up to November, it's about two weeks on and one week off I think. Did you get a total response to chemo? If not, you might also be offered it.

I will look at breast Cancer Now, th