Hi Ladies,

I have 3 more sessions of radio to go and luckily no soreness yet. I was meant to be having 4 weeks of radiotherapy but because of the coronavirus, I am having the same amount of radiation but over 3 weeks.

Has anyone been told the likelihood of a recurrence? I was told a 20-30% chance as I didn't get a a good response to chemo. I find the thought really hard to live with. 

Davia, I keep changing rooms for radiotherapy so always something new on the ceiling to look at.

Love to all

Xxx

Hi Mitch

Glad the excersize are working keep pushing your arm a bit further each day, just an inch, I still get pulling when I stretch my arm above my head, and at night I get aching in in, wierd sort of feeling it keeps me awake some nights, I think it's nurve pain, my elbow has it to, hopefully it will settle down, the radiologist said it takes a while to settle. 

I haven't felt sick at all, I've had shoulder aches I think it's the arms being above head on hard bed when there zapping, all I have is a red rashy look in the area of treatment, and my neck area is OK, it's a bit more swollen in that area like lymph drainage not working as well, but again nurse said this happens when having nack area treated, I haven't suffered with sore throat I do have a very slight cough, not constant just now and again, a feeling of needing to clear throat, the worst bit is the itching, I got some 1% hydrocortisone cream that supposed to stop itching, but I use that very sparingly as it thins the skin and I don't want any sores appearing. But all in all its really OK, bit tired but that could be lack of sleep because of arm.

If I were you I'd ring BCN and ask about app for mapping and rads ,  with all this corvid stuff going on things can get overlooked, I got my mapping done 2 week before my radiotherapy and rads were done 6 weeks after op, but don't forget I didn't have mastectomy so my healing was less restricting than yours, let us know when you get appointment

Keep well  

Hey Sue, 

That's good u almost done and no pain. No doubt when I finally get there I would of forgotten all you ladies have told me and will bug you again lol!

I haven't been told anything yet. Well apart from the tumours all gone, over the phone. Still waiting for confirmation in black n white. How do they tell? Is it looking at start average in the past? I guess for us ladies there is always a risk of reorrcurence, that's why they remind us to keep in tune with our bodies. But like u if someone gave me stats I would also over think. 

Can u call your breast care nurse or consultant for more info? 

I feel I should be exercising but not happening at the mo, well apart from bits in the garden. I know they say you should stay healthy but then you have to live as well and treat yourself. So I guess everything in moderation. 

Xx 

Thanks Davia, I'll keep going It's 2 weeks on Friday since they said I would get a call in 2 weeks, so I'll call the nurse then if I don't hear back.

I'll make a note of the cream just in case I need it. 

I do get burning sensations in my arm pitt which I guess is the nerves. And most of it still numb. But like u said 4 weeks is early days as can be months for it to be better. 

Does your arm have to be flat above your head? If that makes sense? 

Thanks for the chat ladies, nice to hear from all of you. I'm going to bake some biscuits now for my neighbour hmm and us of course. 

Big hugs xx

Hi Mich,

Feel free to ask away. I was told that if I got headaches or nausea, it would be because I'm not drinking enough water. It's important to keep really hydrated.

I was told about the recurrence risk by my surgeon after surgery. My radiotherapy didn't start for about 11weeks after my op. Radiotherapy is a walk in the park after chemo.

Take care,

Love Sue xx

Hi sue

Not long now, I weirdly miss my trips, my hubby just took us out for a ride, I was feeling low so we just went round local haunts, it's raining so not many people out at all  

I have the same odds as you, I didn't have a good response to chemo either, my oncologist said after rads I was 25%, it's really REALLY hard to get out of the dark room as I call it, my head is whirling all the time, it's so difficult but I try and tell myself, that's 75% not coming back. I really hate that I can't plan for future, like before diagnosis I would think about holiday 6 months away but now I can't do that, my brain will come in with all the *** thoughts. I was given a leaflet about AFTER treatment, it's a good read, about how to go forward and stuff.

I'm not even excited about finishing treatment, nurses in radiotherapy were lovely, saying congrats and pop the champagne, some of my family and friends are like, woo hoo, its over, your cured, but I'm just flat, no excitement, and that's upsetting in itself, so I think it's normal, what ever normal is, I've forgotten, so yes I know  how your feeling ️ ️

Hi Mich 

Your arm needs to go above your head like when your lounging and you put your arm up if you know what I mean   By the time you have radiotherapy you will be able to do that, you are doing well, keep at it

Hi Davia,

Thank you for sharing your feelings, it's exactly how I feel. It was the oncologist that gave me my odds, not the surgeon like I originally said. I thought it would help me to know the odds but I'm not so sure. We have a holiday booked to go to Montenegro in September but because of the coronavirus, it's not looking likely. It's hard to look forward to anything because of the uncertainty and the hospital said I would have to find a way to live with it. That's easier said than done.

At least we have the all clear for now and praying it stays that way.

Stay strong, the only way is up.

Love Sue xxx

I've just got to wait for my appointment to come through she said i will have had my rads within the next 31 days. 

My friend had her mapping today, shes having the full 15 days then a boost, she asked about the 5 days and was told she couldnt have that because she had node involvement. x