Hey ladies, 

Thanks Claire for your truthful and inspiring words. It is *** and not easy what we are going through but we will get there! I keep reminding myself esp when I look in the mirror to see if my hair has grown or is there an eyelash trying to pop through! I've also signed up to the moving forward course. I've also chatted to a couple ladies today on the "someone like me" offered by breast cancer now. They both has mascetomy and two different type of reconstructions. Has anyone else used their service? 

Linda that's so funny that you mention your opp is next week as so is mine now! I got a call from the hospital to ask me to come in Monday for pre opp and my opp will now be on Wednesday! It's at a different hospital, a private one actually, about 40 min drive from me! So all happening quite soon for us. Just glad it is going ahead for us both and no further delays! 

Is it the lumpactomy u having? Can't remember if you said they are doing lymph nodes too? 

How's everyone else doing? I had a little cry this afternoon but feeling better now,i hope lol! 

Xxx

Sorry for got to say..... That's great news Linda, glad to hear you have the results and are negative. I know u were worried esp what your mum has been tough too! Such a relief. So aftrt next week no more opps for you? 

Hi All,

Mich and Linda, I'm so pleased your ops have been moved forward as there was always that worry that the op would be cancelled due to the virus. Linda, fantastic news about you being negative for the BRCA gene. I've not heard about the moving on group but will look into it.

My emotions are all over the place at the moment and I'm worried my radiotherapy will get cancelled with everything going on.

I'm getting really fed up staying in as I live near the sea and woods but both places are mobbed. People don't seem to take this social distancing seriously.

Claire and Roz, I hope you're both doing well.

Love to all,

Sue XX

Hi Mich

Yes 'm having a lumpectomy now i'm brca neg, he will take a couple of nodes too just to check it hasnt spread to those, breast nurse told me i'll be injected with a radioactive ink and then a blue dye ,,,all sounds delightful lol

Hope you're feeling ok about yours x

Hi Mich

Hope today went ok for you, I went in Monday and had a wire put in @ 8.30 then sat in theatre waiting room until 2.30 to be told it needed to be cancelled until Tue as they were 4 hours late starting the list as didnt have the proper PPE.

Anyway went yest was 1st on the list, went down @ 9.45 and got home at 2. No pain at all on boob or under armpit but i woke at 7am today and vomitted green bile on and off until 12 sleeping on n off, then had a funny tummy and slept till 4.I think it was the tracer and blue dye they used! Crazy to think I was pumped full of chemo and I wasnt sick once ...Oh and i have a blue spot on my boob haha.

Hope the rest of you ladies are ok x

Hi Linda,

Ah thank you for thinking of me.  sorry for the delay in replying, dont know where the time has gone and feel like I've been in Limbo Land!  The opp went ok, i was the first down to theatre so none of that long wait you usually have.  i stayed one night in hospital and then home with the drain.  They took the drain out on Tuesday just gone.  Was glad to get rid of it as quite big and getting heavy lol!  Of course glad i did have it for 6 days as it drained loads!  Now its out i have puffyness under my armpitt which he said would happen and i can see my arm is a bit swollen.  Apparently  it should all go down but can take a few weeks. I still have loads of different sensations and feelings eventhough most of it is still numb which feels odd too, but getting there.  I see the consultant again on the 28th April, to discuss the results from pathology and next treatment plan which i would imagine is radiotherapy.

How you doing?  Sorry to hear you had the runaround with your appointment but so glad the opp went ahead.  We were fortunate as not sure how many of these are still happening now. My local hospital is practically a covid19 hospital and the section i went to, to have the drain out looked like it was closed down with no one around.  I had my opp at a private hospital which hasn't been affected by the virus so they were sending the nhs cancer patients there.

Hows everyone else doing?  Any news on radiotherapy Sue?  Davia are you ok, we haven't heard from you for a while.  Thinking of you all ladies.  it has'nt been easy i'm struggling a bit at the mo, my emotions all over the place and i'm not sure why i just cry for no reason.  Weird as no i'm off the chemo, steroids and all the drugs!  Guess its all very raw now.  And also the fact i cant go out for walks with my friends dog and to the beach etc.  Thank goodness we do have a garden.  Although without much exercise i do feel a bit like a lump lol!

Big hugs, hope to hear from you all soon.

xxx

Hi Ladies, 

Sorry I've been quiet, needed time to digest what the surgeon said at my post opp appointment. I was told after pet scan that I had a very good response to chemo, that was great news so I wasn't expecting the news I received.

I had three infected lymph nodes, but he took out 18 and 13 were infected, it had spread to the other 10, I was shocked, so after all that, the chemo didn't do a good job. My oncologist said, it's all out but they will keep close eye on me, every six months. I'm having my radiotherapy at the moment, had 4 and having 5th today, it all seems to be going OK, have a bit of soreness and swelling of boob but nothing to worry about. It's been a really horrid time for me, I was worried sick about going to hospital for rads when all this CV is around, but they are being very thorough and the department is away from the main hospital, we really didn't need all this CV on top of what we're all going through. 

Mitch, the anaesthetic can make you feel very depressed for 7-10 days, I had it and the nurse said it's very common, so hang in there, I've also had pains in arm and boob, like pin picks and what I call tooth ach in my upper arm, it comes and goes, it's not always there. I've been thinking of you and the day you had your opp. and hoped it all went well, I had the drain in for 9 days, they came to the house to change it and dress my wound. I've got a pattern for the cloth drain bags and am going to make some up for the hospital, there a bit short on them. Keep me busy while I'm stuck in, actually going to the hospital for radiotherapy is a treat lol

It's random isn't it, before diagnosis we feel nothing is wrong, we feel great, then after we have chemo, op and rads, and a fuzzy brain, (I put fuzzy in place of my normal word ) that's what I think is hard to deal with. 

I'm sorry my post isn't more uplifting, that's why I didn't post, I didnt want to be negative, I also think that after the op it becomes so real.

Keep well ladies, love and hugs xxx

Sue good luck tomorrow with radiotherapy, if your department is anything like mine, don't worry, everyone stays 2m away, when you get to hospital they give you a mask and another one for the next day, take your temp and alco hand gell, all the radiographers wear masks and gloves, you can't take a yone with you, but my hubby waits in the car, he quite likes being able to drive me, gets him out for a while

When I get in I strip off put clothes in washing machine and shower, just to be double safe

Oh just read, your appointment was yesterday 13th  8,:30am so hope it went well, let us know how it was? 

Thank you for thinking of me, ️ ️ 

Hi lindy

Sorry to read you had the runaround when having your opp, hope your recovering well, are you having radiotherapy?

Keep well xxx