Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hi if the question was for me ?

i had absolutely no idea I had b/c I went to my doctor with severe pain in lower part of my back he asked me to do a urine sample which he tested right there and said " you blood in you urine " I replied.  No I don't then he showed me with a chart then it went from a ultrasound to a cystoscopy to a Turbt in about a month doctor told me he had cleaned out my bowel in December only for it to return in February with having no treatment of chemotherapy available x

Hi Sue

Hope your healing well and pain is manageable xx

Had my results today of pet scan and surgeon said it showed I had a very good response to chemo, and there were no other areas infected, few, that was a long week, but relief now that results are good. Now I just need to get my nutraphyls up before the opp. There still very low, so I'm off to Holland and Barrett for some Immune boosting vitamins. 

Mich, hope all went well with oncologist today and your over your cold, I thought of you yesterday when we had a coastal walk along the Lees in Minster, it's a lovely place, first time we've visited. 

Keep well all xxxxx

Davia that's great news, congrats!

x

Fantastic news Davia. What a relief. I'm doing ok thanks, still very sore and bruised but that's only to be expected

XXX

That is great news Davia, such a relief. I'm off now for cream tea in Broadstairs before chemo! So much for fasting eh

Hang in there wagondriver, it will get better. Sorry to hear you having so many hassles with the drugs, frustrating. Often there are these teething problems and lots of faffiness I've noticed! 

Hugs xx

Hiya

just to let you know I was diagnosed with an inflamed chest wall. 
very happy yet confused because the pain really seems like it's in my breast! 
 

xx 

Hi Mich, it was a huge relief, xx Hope you enjoyed cream tea, was lovely in the sunshine, hope chemo went well only four left, it will go so quickly.

Stay well Hugs xxx

Good evening ladies,hope you've all been in the warm out of this horrific weather we have had today.

Sue and Claire I hope you're both resting and healing after your surgery, another step closer to the finishing line :)

I hope you are both keeping well Mich& Davia

I'm off to see my consultant tomorrow before 1st Docetaxol on Friday but its number 4 so i'll be over the half way mark whoop whoop!

Keep well all xx

Thanks Claire, 

Hope your healing well xxxx

Thanks sue, hope your healing well and the brushing is going down xxx

Thanks sue, hope your healing well and the brushing is going down xxx

Hi Ladies,

I'm sore and bruised but healing nicely. The dressing came off today and it's not pretty!!

How are you Claire? Did you come out of hospital yesterday?

Linda, fantastic you're at the half way mark. Hopefully, Docetaxol will be kind to you. let us know how you get on.

Davia, how are you doing? Have you got a date for your op?

Mich, how many chemo's have you got left? it's one long journey!

Friday 21st is D-Day for me when I find out if the cancer has spread or if I have clear margins. It's a worrying time and totally out of my hands.

Stay warm, love and strength to you all,

Sue xx

Hi Sue and Claire, hope your healing and not to sore. 

Mich hope chemo is being kind, 

Belindajane, hope you get good news, always a worry, fingers crossed for you x

I have my date for surgery, 25th Feb I will have full clearence of lymph nodes in left arm it's going to be a long recovery, I saw breast care nurse today, she gave me leaflet of excersize I need to start doing day after surgery, I am nervous, I've never had major surgery before, but many people have had this op so I'm sure I'll be OK, and I will feel better that the infected lymphs will be out

Hope your all well, keep strong xxxxx

Hi Sue, I came out on Sunday. Feeling ok just a bit sore under my arm but I think my son may have pulled the drain slightly! I'm having it removed today thank goodness. How are you doing?

Davia, that's great you have a date for surgery. You'll be absolutely fine :) How Kong will you be in for?

love to all.

x

Hi Claire

I stay in 1-2 days then nurse will visit me, at home to do drain and check dressing.

Hope your managing OK at home, must be hard with baby, 

Keep well . Xxx

Thanks Davia. My parents are here which is a great help. On my way to get my drain removed now :)

Good luck, that should feel so much better once it's out, xxx

Hi Ladies,

Belindajane, I hope you're ok. Let us know how you get on.

Davia, what surgery are you having besides Lymph node removal? I'm sure you will feel better after surgery, it's easier mentally.

Claire, I'm glad you're feeling ok, I didn't have a drain. I'm getting better every day.

Mich, How are you coping with the chemo? Not long now till you finish.

Linda, how are you doing? What stage of your tratment plan are you at?

Have a great weekend,

Love to you all,

Sue xx

Hey ladies,

Sorry for the delay been a strange week.  Hubbys hernia opp went well so been looking after him. poor guy they said it was quite a large hernia so had to open surgery not keyhole.  He's never had general anesethic so was rather groggy when he came around.  But all good now. I was emotional this week after the steriod low and morbid, urgh was horrible.  But did go for a long walk on my own along the beach and just took it all in.

Chemo done today whoop whoop!  Just 3 more now with combo next week.  I started with a new symtom this week, sore mouth.  Felt like my tongue was on fire!  The nurse has given me some gel solution to use and a rinse for my mouth and i know have Wilko kids tooth paste lol! Guess not too bad its started now with 3 to go!

So glad to hear you are managing ok Claire and lovely your parents are out there with you. 

I'll be having full node clearance on my left too.  Random question, if you have full node do they do the lumpactomy / masectomy the same time?

Good you have your date Davia, they seem to be working quite quickly with the opps so hopefully not long for me to wait.  I'll be having my LGFB workshop on that day, so will be thinking of you :)

Linda you managing ok with the side affects?

Hey BelindaJane, let us know how you get on :)

Hugs all around ladies!  Spoil yourself today.

xxx

Hi Ladies,

I had chemo number 4 today which was my 1st Doxetaxol, veins played up but i think its because i didnt drink much this am I had to be there at 8.30 so after a failed cannulation in my right hand the Picc lady came along with her scanner and found a vein in my left arm and hey presto it all went ahead with no reactions, now to see what side effects it will grace me with in the next few days!

Hope you are all doing well xx

Had doxetaxol today Mich and feel ok as am full of steroids, hoping its king to me like Fec was, Glad hubbys op went ok x