Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hey Sue, ah thats great news.  So glad to hear the procedure went well and home by lunch time whoop whoop! Hope you are having a relaxed evening. 

    Good luck for tomorrow Claire ;)  Does sound like you are a celebrity there ;)  I got all mixed up , thought you were coming over here for your op, doh.  Hugs.

    Good luck for tomorrow Davia, let us know how you get on.

    Today went ok with the oncologist.  Was'nt my usual one, he did mumble a bit haha!  Anyways, the big tumour has shrunk quite a bit from 53 mm to 11mm, so just over 1 cm now so looking good and i'm all on track with treatment.  So just 4 after tomorrow, yay!  I have quite a bit of neuropathy pain this week, which i dont usually have much of on this drug, perhpas just building up.

    Big hugs

    xx

  • Hey,

    All the best for tomorrow, you are in the best hands and have done the right thing by going to the docs.  Most the time lumps are not cancer so try not to worry.  Symptoms vary a lot with everyone, so mammograms and ultrasounds are the best way to tell.

    Good luck and hugs

    xx

     

  • Hi Wagondriver,

    Welcome to the club, that we dont want to belong haha!  It has been good for us to share our stories, worries and laughs.  I find you dont always want to worry your family so chatting to the ladies here have been my saviour!

    Yeah i felt odd when i was told, all very numb like they were talking about someone else. Funny thing is i walked out of the hospital with a pretty pink pouch with loads of brochures.  Just like i've gone to a travel agent to book a holday, err maybe not!  I did have a sense of relief though, as i had to wait a few weeks for the final diagnosis, which it seems you didn't have this period and more of 'What the ......'

    Have their said what your treatment plan is?  

    Hugs xx

  • Wagondriver, welcome to the *** club no one wants to belong to! I tend not to read the other threads as I find it too upsetting but the support on this thread is great.

     

    LTLondon I didn't have any symptoms as such, I just found a limp whilst I was breastfeeding. Good luck!

    Mich that's great news about the tumour! You're  it going mad, at one stage I was going to come home for the op but then decided to have it here.

    x

     

  • Ha ha thanks Claire, for once not me chemo brain!

    BTW Iistened to a chemo meditation on you tube last night. Was good although found her accent a tad annoying, so maybe not as relaxing as I hoped. Can't remember if you said there was a specific one you listened too? Ta. 

    You probably having breakfast now! 

    X

  • I have just eaten a large breakfast before my 8am nil by mouth deadline

    Yes there is one I like, it's called something like meditation for cancer patients and caress and his voice is nice.  Not sure if I can post links here but will try.

    https://youtu.be/YjMed9F2Ng4

  • Good morning 

    no not as yet, after my TURBT in December my urologist said that he wants me to have a 6 week course of Mitomycin but unfortunately it's in short supply now February no treatment, I did have another ultrasound and it showed tumours have returned my GP wrote a strong email to the urologist telling him to fast track me for another TURBT which I'm having done 14th February instead of 10 March original date after the 3 month. I called my Macmillan nurse the other day asked her about the treatment she said we'll wait and see till after my procedure next week. Which really doesn't help me at all if I can't get my bladder washed out with chemotherapy my doctor said it will just keep coming back.

    i am considering a bowel reconstruction if there is no treatment for me drastic I know any thoughts I'm open to suggestions 

  • Hi Wagondriver,

    Welcome. I have just had an op for breast cancer, I am happy to offer emotional support as we all have the same fears. When I was first diagnosed, I spent the first week in tears and was a total wreck. People try to be supportive but unless they have been through it, they have no idea what it feels like.

    Al, I can say is that you come to accept it in time but I still have days when I have a total meltdowm and I was diagnosed last July.

    Feel free to sound off any time, the ladies on this site are amazing and have kept me sane.

    Thinking of you

  • Hi Ktlondon,

    Welcome. Good luck today, let us know how you get on.

    I was due to have a mamagram later in the week but found a lump and was fast tracked. Unfortunately, my lump was cancer but lots of ladies lumps turn out to be something far less sinister.

    Thinking of you

  • Hi thank you for such a warm welcome.

    i was a bit apprehensive at joining at first as I'm not going through all the incredible nasty pain the treatment is doing to you. I am aware though as my sister went through it 30 yrs ago having non Hodgkin's lymphoma. 
    I do have a friend who had a mastectomy but we have lost touch since I moved to the West Midlands when I got married. 6yrs ago.

    i hope your treatment works for you and isn't too painful and you get cancer free.

    i was so looking forward to being back at work I'm a as you may have guessed a wagon driver I delivered steel tubes around the country mainly south, freedom of the road my nights away have stopped due to my urgency of needing the loo so quickly lol now.

    i still don't know how I feel really  apart from angry, I was chatting with my sister in-law sat in my car outside my house not wanting to go back in so quickly, she has been very supportive she was a nurse now semi retired she does lectures and teaching nurses at 73 don't say I told you her age lol. 
    my wife's first husband died of cancer now I'm putting her through it again different type, she like me having many sleepless nights. 
    got a busy week next week Monday pre op for my Turbt on Friday Monday night the joys of moviprep clearing out my bowel ready for colonoscopy on Tuesday morning two days rest then another Turbt on Friday. Thinking of telling them just take my bladder out be done with it no more cancer if no treatment  available x