Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hello ladies, hope you're all keeping warm in this cold weather!

    I bounced back to my normal self on saturday and got myself back to work today which perked me up 100%, only so much daytime tv one can take.

    Claire & Sue Good luck to you both with your ops,  I hope everything goes smoothly and you're not worrying too much. 

    Davia Good luck with the scan results 

    Mich I hope you're feeling better, good luck for your husbands op.

    Sending lots of best wishes to you all

    Linda x

  • Thinking of you today Sue ;)

    Yeah all a bit scary Claire, hope you doing ok with it all.  I guess you are over here now.  How long are you staying?

    I got my oncologist appointment now tomorrow, had a call yesterday.  This is the one i messed up, whew so glad they managed to squeeze me in.  

    Glad your picc line is all out now Davia, quite a relief.  Yeah one step at a time eh.  i'm getting frustrated with myself as feel like an old woman and every week i go for assessment i put on a kg!  But whoosah, can only do so much and must get better first.  Did have a nice walk and coffee at the harbour, now thats me done for the day!

    Glad to  hear you managing ok Linda and good for you going into the office, a sense of normality eh.  I'm checking my emails today, trying to use some brain power.

    Hugs all around

    xx

  • Mich, great to hear the oncologist has squeezed you in. I know exactly how you feel, I think I've put on a kg everytime I've been weighed, and I feel I've aged years, what with no energy, dry skin and I just look rough lol I will tackle the extra pounds after treatment, when my head can concentrate better on it, like you say, got to concentrate on getting better first

    Was lovely in the sunshine today, better than that cold wind we had. 

    Keep well xxxx

     

  • Mich, great that you got your appointment. No, I'm still in Hong Kong. Move back to the UK in 2 weeks.

     

    Sue, hope al has gone well and you're doing ok.


    Davia I hear you on the looking rough front :)

    love to all xx

  • Thanks Ladies, my operation yesterday went well. I went down to surgery at 10am, woke in recovery at 11.30 and was home at 2pm. I was in a bit of pain after the op so was given morphine in the recovery room and co-codomoal to take home. I am tender, sore and bruised but I have taken a couple co-codomal this morning which has kept the pain at bay. It was a lot better than I feared and it is all very manageable. I feel loads calmer now the op is done. I had the lump removed as well as lymph nodes, I will find out if I have clear margins on the 21st feb.

    Mich, let us know how you get on with the Oncologist.

    Good luck for your op tomorrow Claire, I know you will be fine.

    Is it tomorrow you get your scan results Davia? I'm sending positive thoughts your way.

    How are you feeling Linda? It really is a rubbish time for all of us but we are strong.

    Love to you all

    Sue xxx

  • That's great Sue!  I can't believe you were in and out in one day!!  Starting to feel they're over doing it here a bit.  I had to be admitted today, they've done an ultrasound, ecg and heart scan and I've seen the physio.  Tomorrow morning I've got lymph node mapping and something called a guide wire something or other then surgery in the afternoon, I won't be out til sunday.

  • Hi Claire,

    I had a lumpectomy, is that what you're having? I didn't need a guide wire. The physio came to see me before my op, spend 5 minutes with me, gave me a leaflet and left. It was a bit like being on a conveyor belt, one in, one out. Something to warn you about, after they put the blue dye in, your wee is bright blue and your boob is blue too. It's fine once you know that it's normal.I'm glad the are looking after you well.

    Let us know how you get on, it's honestly not that bad. 

    Love Sue xxx

  • Yes, lumpectomy and lymph node removal.  Originally it was only in one lymph node so hopefully won't have too many out.  Good to know about blue wee :)

  • Hi I'm new on this forum it was recommended to me a few weeks ago I got the proverbial kick in the teeth on the 13th December last year during a cystoscopy oh that's not good I heard from the doctor I quickly replied what isn't good, we'll discus it shortly? . I was asked to sit in a chair next to a computer still in my hospital gown trying to keep it closed at the back and putting my trainers on my feet at the same time I heard "you have cancer in your bowel " I will type up your notes and then you can go to pre-op. I still can't remember how I got dressed I just wanted to get out of there and how the he'll do I tell my wife? I still don't know how to feel I'm struggling too, I hope and pray you can get some or even all the answers on here help each other, I have found on here people that are in more pain than me have more advanced stages of cancer than me I feel for them I have no answers to any.

    i don't know why I'm writing this to you, you must be thinking who is this mad man ? I guess this is to vent to chat to strangers in a similar situation cancer is cancer no matter where in the body it is ?.

  • Hello all,

    sorry to jump in on your thread.

    can you please tell me what we're your first symptoms before finding out you had bc? 
    I have a mammogram tomorrow I am terrified.