Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hi Linda,

My op will be 2 days short of 6 weeks since finishing chemo. They usually like to operate 4-6 weeks after chemo if all the vital statistics are ok. 

My side effects from chemo are slowly wearing off. I Still feel very tired and I do still feel very emotional at times but our bodies have been put through a lot.

I know it seems never ending but you're at the half way mark of chemo and then onto the next stage.

Have a lovely lazy Sunday and be kind to yourself 

Love Sue xx

Hi Ladies, 

Linda great you have hit the half way mark, I felt tge second half seemed to go quicker, hope the bone ache has gone, I took antihistamines as someone said it helps with the injections. 

Sue, glad you've started feeling better after finishing chemo, next chapter surgery  

Mich, I hope your getting over your cold and it hasn't knocked you back, thinking of you

I didn't have my last paxol today, oncologist was happy to miss it as its caused my rear end loads of trouble and I have red rash each side of my face that is apparently a side effect, so that's it, I have finished with Chemo and had my picc line out , it was very straight forward and I didn't feel a thing next step, scan and surgery, we're (my hubby and me) are looking at it as a transfer from our temporary full time job, that's what we decided to call this journey.

It does feel odd that I won't be going in every week for bloods, I thought they would still do bloods next week to see if body is recovering. 

But I'm happy to be picc free and chemo free. 

Keep well ladies, we can do this warriors xxxxxx

Hi Davia,

Onto the next stage of the journey, that's great. It does feel strange not going to the hospital regularly. Are you having a mastectomy or lumpectomy? My surgery is next Wednesday 5th. I'll let you know how I get on, I'm sure it won't be as bad as I fear. I'm really nervous which is funny as I really want the surgery to get rid of the lump.

How's the cold Mich? I hope you're over the worst.

Claire and Linda, how are you both getting on?

Love Sue xx

Hi Sue 

Oh I think we will all be very nervous before surgery, I know I will be popping it lol 

I am having full clearence of lymphs in left arm, I am a weired one, I didn't have a lump, the oncologist said its not unheard of, sometimes the body clears it. I cant say It didn't freak me out,  I had routine mamo and they found three lymph glands effected.

They have bought my scan forward as I couldn't have last paxol, that really is freaking me out, to be honest since being diagnosed I'm far more nurvouse about anything, hopefully that will pass. Oh and emotional, I could have filled a lake last week,seemed anything set me off, and again before being diagnosed I think I could count on one hand how many times I had cried in five years. This journey has definitely changed me as a person. 

Please do let us know how you get on with operation, oh and if they give you pree med wishing you all the very best, xxxx

Hey ladies, 

I still have my snotty nose and chesty cough. I called the unit today and they said to see my doc as could have chest infection so may need anti antibiotics. Of course I couldn't get to see them today so have to call at 8am tomorrow morning to see if I can get an appointment. I feel better in myself tho. Have given it to my hubby he has been in bed all day shivering with a temp! Must be going around. 

Glad to hear your opp is around the corner Sue, you must be relieved. Do you have a pre assessment or just go to hospital on Wednesday? We'll all be thinking of you. 

Aww Davia that's good your chemo is all finished, it did play havoc with your body. Hope the rash will clear up soon. The rash on my hands is now gone. I'm due a full node clearance in the left side too as 3 swollen lymph nodes tested positive. All I know about the opp is lots or drains! Not sure if I should read up about it yet or wait until chemo finished. When is your scan now then? This is the per scan?

Glad to hear you past the half way mark Linda. Don't forget the a antihistamines for bone ache

It has been very grey and dreary lately which makes me emotional too esp as I have been indoors for almost a week. Funny thing is I'm never ill, I hardly get anything that comes around, well apart from migraines and here I sit poorly with cancer too lol!

We'll get there warriors! Need to make my boob cake remember

Xxx

Hi Mich

Great to hear your on mend from cold, hope you get app for tomorrow, they should really fit you in as a priority when on chemo. Your bound to feel emotional, having a cold on top of chemo is heavy  

I've only read up on recovering from full lumph clearence, I don't want to know how the op is done, it would freak me out, well freak me out more than I am already lol oh I have three infected lymphs to, so were very similar

My scan should be bought forward a week, so I'm thinking 31st Jan, they need oncologist conformation, before changing appointment. 

My surgeon app is on the 7th Feb. But I have to get through this scan, I know it's normal to have scan fobia when your were we are, my oncologist said everyone feels apprehensive it's normal. Made me feel a bit better. 

Keep strong, love and hugs xxx

Hi Ladies.

Davia fab news you are now chemo free and ready to step into the next stage of your journey. 

Mich am sorry to hear you could have a chest infection, insist on seeing a Dr tomorrow, I read somewhere that if you're a cancer patient that your seen asap, though I do know some of the receptionists are a nightmare to get past.

Hope you're doing ok Sue & Claire.

Me ... I have felt utter poop since my last Fec, think it is its parting gift to me :\ I am taking antihistamines so the aching isnt so bad but I have been so weepy these last 2 days! I have listened to my body and rested and slept so much. I just hope the Doxetaxel is nice to me.

Coming in to read your messages keeps me going, I am surrounded by my caring famiy but can still feel alone at times as they have no idea how it affects me. 

Right thats enough of feeling sorry for myself!

Keep well ladies xxx

Thank Linda, oh and your allowed to feel sorry for yourself, feeling emotional is part of the chemo journey, I was terrible last week, I just couldn't stop, I'm sure the chemo does it to you, runs you down so much and I think the accumulative effect really does take effect on last week of each cycle.

I found paxo and Carbo were not as bad as EC, I have had a few side effects with paxo but nothing to put me in hospital like EC, mostly tummy upsets, rash so hopefully you will sail through next lot. 

Keep strong, your half way, the next half will fly by honest xxx

Hey ladies,

Finally got to see a doctor today and hes confirmed ive got a chest infection, boo. Hubby too, so we walked out with His and Hers amoxicilin lol! I have to take it for a week and go back if it doesn't clear up.  If i'm feeling ok i still go for my bloods tomorrow and if they are all clear i can still have my chemo on Friday as the anti biotics would of been in my system for 72 hours.  Its combo week too!  Eeek.  Oh well will see what happens tomorrow.  I do feel better in myself and chirpier so hopefully i can wake up early again for me bloods.

Aww Linda i found my last EC tough, took ages for my body to recover.  Felt like i'd been hit by a bus, double decker one!  so glad to be off it, as this drug isn't nearly as bad.  So i have my fingers and toes crossed for you.  When do you start the new drug?

Yeah we all get that scan phobia or scaniexity as they call it.  When i was diagnosed i was convinced i had it in my bones, as the tenseness gave me back ache.  Just shows how our body is affected when our mind plays trics on us.  You'll be fine, as before the waiting is the worst.  I'm still waiting to see my oncologist since i messed up my last appointment.  That reminds me i'll ask the nurses when i have my pre assessment tomorrow.

How you doing Claire? Hope all is ok on your side.

Hugs all around

xxx

Hi Mich

Glad you got to see Dr and you have antibiotics, if your nutapines are OK they will go ahead with Chemo, that's what nurse told me, it's scary as we're told so often to keep eye on infection but they keep such a close eye on you and like you say you would have had antibiotics for 72 hours. Is this last combo or do you have one more? I know you said but I forget. Nice to hear your feeling chirpier, we've had nice sunshine today hope you have it too. 

I have my scan on Friday I've felt really shaky today, it's the scanziety, I am pooping it, well not the scan but the result. Like you say, any twinge and my brain is away. But I'm trying to keep it real and tell myself it will be OK.

Take care xxxx

Hi Mich

Glad you got to see Dr and you have antibiotics, if your nutapines are OK they will go ahead with Chemo, that's what nurse told me, it's scary as we're told so often to keep eye on infection but they keep such a close eye on you and like you say you would have had antibiotics for 72 hours. Is this last combo or do you have one more? I know you said but I forget. Nice to hear your feeling chirpier, we've had nice sunshine today hope you have it too. 

I have my scan on Friday I've felt really shaky today, it's the scanziety, I am pooping it, well not the scan but the result. Like you say, any twinge and my brain is away. But I'm trying to keep it real and tell myself it will be OK.

Take care xxxx

Hey Ladies,

How you doing, what did you get up to this weekend? I'm feeling better with my chest infection and today is the last day of anti biotics yay!  Chemo went fine on Friday and got taxol & carbo, was quite surprised my bloods came back fine with me fighting this chesty thing too!  The steriods have kept me going the past couple of days but today i feel like a zombie, like my head is full of cotton wool.  No furniture walking so managing ok with that.

Ooh and before i forget i finally got the result of my gene test and I'm negative!  Whoop Whoop, finally!  Took long enough.  So quite relieved about that, they did say there is quite a bit of brreast cancer still in the family but not linked with the gene mutations they tested.

Davia, how was your scan on Friday?  Hope it went ok :)

And this week is opp week, if I remember correctly Sue, Davia and Claire.  Will be thinking of you ladies, big hugs :)  I have 5 more chemos left and counting....

Hope you managing ok Linda ;)

xx

Hi Ladies,

Mich, quite right, my op is Wednesday and Claire's is 2 days later. I won't lie, I am terrified. I feel like such a drama queen. Fantastic news about the BRCA test, the wait is the worst.

Davia, I hope the scan results were positive.

Linda, I hope you are feeling more positive. We all get weepy days when we feel rubbish so you have our sympathy.

Good luck Claire, I hope you're surgery goes well.

Love to everyone,

Sue xx

Hi Sue,

Ah I'm sure you are, its the unkown that makes it worse and our mind eh.  Have they said how long you'll be in hospital?  Its deff a week of operations as my husband is having a hernia opp on Saturday, due to a cancellation so heading to the hopsital this afternoon for pre-assessment.  At this rate I think i'm at the hospital almost every day!

Thinking of you all ladies, its a tough week but we'll get through it fellow Warriors ;)

xxx

Hi Mich,

I'm only in for the day as it's a lumpectomy. It was touch and go whether I would be having a masectomy as my tumor hasn't shrunk. The density has changed which I think is what swung it.

I hope your husband's op goes well, I'm sure it will. Is that also a day op? Any idea of his recovery time?

Do you know what op you're having yet? We are all certainly fighters although not a fight any of us would choose!!!

Take care of yourself,

xxxx

Hi Mich

Really pleased you got results and there negative woop, also good news your chemo wasn't postponed, you have strong nutraphils that's for sure lol 

I had my scan on Friday, was scary but I got through it, I haven't had results yet, it takes 2-3 days for my oncologist to receive them, so more axiouse waiting on Friday is my appointment with surgeon to discuss operation, sorry if I made it sound like I was having opp.

Sue and Claire Good luck with your opps, I think we're all going to be cra.. ng it, I just know I will be, I've never had an operation, but you can do this, if you can do chemo I think you can do anything

I am still feeling the effects of the chemo, my energy levels are none existing, i try to walk most days to build up the stamina, my husband tells me off for expecting more, he says, you've had poison pumped into your.body for 6 month and after 3 weeks you expect to be back to normal, lol, he's right. 

I had my picc line out, it was very straight forward, no pain at all, it's nice to shower without having arm sleeve on.

Well ladies, will be thinking of you both when your having your opps, sue Wednesday and Claire Friday, I hope that's right xxx

Mich, hang in there your 5 weeks away, not long  

Love to you all xxxx

Thank you lovely ladies. Yes, I go in to hospital Thursday and the op is Friday. Lumpectomy and some lymph node removal, not sure how much. Out Sunday. Bit scary in Hong Kong at the moment of you have a poor immune system!

Davia, good luck for the scan results!! Totally get the fear. The doctor told me as she did the ultrasound that she couldn't see the tumour anymore but I was still shaking with fear when I opened up the PET scan report!

Sue, that's good that the density has changed and it's still a lumpectomy, good luck and keep us posted.

Mich, hope your husbands op goes smoothly. Glad you're feeling better and great news on the BRCA! I think I'm the same as you. My mum's mum has breast cancer and so did my dad's sister so it's on both sides of the family but my test was negative.

Lindy totally normal to feel like that, I found it particularly hard being on EC, more emotional, just feel generally sick and horrible. I really had no problems at all with carbo or taxol. Very mild nausea for a few days with carbo and I lost my hair (I shaved it when it started falling out) but other than that I felt absolutely fine.

Love to all xx

Hello ladies, hope you're all keeping warm in this cold weather!

I bounced back to my normal self on saturday and got myself back to work today which perked me up 100%, only so much daytime tv one can take.

Claire & Sue Good luck to you both with your ops,  I hope everything goes smoothly and you're not worrying too much. 

Davia Good luck with the scan results 

Mich I hope you're feeling better, good luck for your husbands op.

Sending lots of best wishes to you all

Linda x

Thinking of you today Sue ;)

Yeah all a bit scary Claire, hope you doing ok with it all.  I guess you are over here now.  How long are you staying?

I got my oncologist appointment now tomorrow, had a call yesterday.  This is the one i messed up, whew so glad they managed to squeeze me in.  

Glad your picc line is all out now Davia, quite a relief.  Yeah one step at a time eh.  i'm getting frustrated with myself as feel like an old woman and every week i go for assessment i put on a kg!  But whoosah, can only do so much and must get better first.  Did have a nice walk and coffee at the harbour, now thats me done for the day!

Glad to  hear you managing ok Linda and good for you going into the office, a sense of normality eh.  I'm checking my emails today, trying to use some brain power.

Hugs all around

xx

Mich, great to hear the oncologist has squeezed you in. I know exactly how you feel, I think I've put on a kg everytime I've been weighed, and I feel I've aged years, what with no energy, dry skin and I just look rough lol I will tackle the extra pounds after treatment, when my head can concentrate better on it, like you say, got to concentrate on getting better first

Was lovely in the sunshine today, better than that cold wind we had. 

Keep well xxxx

Mich, great that you got your appointment. No, I'm still in Hong Kong. Move back to the UK in 2 weeks.

Sue, hope al has gone well and you're doing ok.

Davia I hear you on the looking rough front :)

love to all xx