Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hi Mich,

    I hope your pre-assesment goes well today.

    You made me laugh, I bet you don't look like a bloke. When you wear make-up, earings and a pretty scarf, I reckon you look pretty as a picture. We all feel self conscious when going through chemo but what I have learnt is that it is noticeable to us and not other people. I haven't had any strange looks even though I look weird.

    love to everyone,

     

    Sue xx

  • Ha ha thanks Sue, yeah I was in an over analysing phase!

    pre assessment all OK, so set for 9am on Wednesday. I don't have my next schedules yet, theyll have it on Wednesday. Hope don't get afternoon slots I always pass out!

    How did it go today Davia? 

    Xx

  • Hi Mich, 

    Sorry you had a blurg weekend, not nice when your brain goes into overdrive, hope your feeling better now, and glad pree, assessment went well  

    My hubby advised we leave at 8am to get to hospital in time for 9am, (think I said they lost bloods on Friday so had to go in early to have them done again,) but sods law the traffic was good so arrived at 8:35 but was a, result as oncologist was there so spoke to her to ask about pet scan and surgeon app, she sorted straight away, pet scan booked for 7th Feb agggg,.

    We went for breakfast in cafe and I got in chair for chemo at 11:40 so not to bad, home at 2:30, but wide awake now on stetoids lol

    You did make me smile, looking like your Dad, I see my brother when I look in mirror, my hair style is the same near enough lol so yes the make up is well and truly put on and pretty scarves and hats, I do see people looking at me but it doesn't bother me at all, I think they just look in a caring way, I have had so much kindness I'm really blown away with how kind people I hardly know,l are. 

    Next week is my last chemo, it's the paxol, it feels exciting but weired as well, what a strange emotion to have A!

    Mitch you must be close behind, hang in there, we've come this far, xxx

    Keep well ladies xxxxx

  • Hey ladies, 

    Ah thanks Davia, feeling better well mentally at least! I woke up with a cold today, I know on chemo day! My hubby has been nursing one for 2 weeks so knew I was bound to get it. So all dozed up on paracetamol and drinking honey and lemon now. Hmm how many guess I'll be wide awake at 3am!

    Chemo went well was quite quick actually and was back home by 1200! I fell asleep again even drank offee to stay awake a bit! It's the combo next week.... I have 6 more, 2 combos and then the 2 in between so will take me to the end of Feb.

    That's great Davia you have a scan booked. Is that a standard scan after chemo to check everything. I still haven't heard from my oncologist on the appointment I missed nor the times of my treatment next week, I should get a call this week. I'll follow up tomorrow afternoon, can't take that long to book a time slot for my chair!

    Ah and I've noticed my hair has grown in 2 and half weeks of shaving. It looks a bit messy as fluffy and spacey so might go over again tomorrow. 

    How's everyone doing today? 

    Xxx

  • Hi Ladies,

    Wish you better Mich, a cold is the last thing you need!! I haven't had any scans apart from 2 mamagrams and 2 ultrasounds which I find really odd. I have my surgeon's appointment tomorrow to find out what surgery I'm having.

    I'm having my hair trimmed by my neigbour today, there is hardly any to cut but it is so messy and all over the place that she is going to tidy it up (well try anyway)

    I hope everyone is well, I look forward to your up-dates.

    Love as always,

    Sue xx

     

  • Hi Mich

    You really don't need a cold on top of chemo, poor thing, hope you get rid of it soon and it doesn't delay combo next week, drink loads try flush it out. 

    My oncologist said the scan is for two things, looking to see how cancer has reacted to chemo and also for the radiotherapy team, I have a lymph in my chest that is effected, on last CT scan it was undetectable, I think pet scan is to see if any avtivaty is there, I'm not looking forward to it, blooming scary, but I know it needs doing. Talking to other ladies it's normal to have a CT or Pet scan at end of chemo. You have to wait two weeks after your last chemo before having a pet scan. 

    My hair is growing, it looks a mess, I get bed head now and it's a bit curly and spiky, I said to my hubby, I look like the joker from batman I really hate the way I look now, no eyelashes and no eyebrows make me look so pasty. 

    After my paxol on Monday I have felt really yuk. I think it's the top up effect as I had combo week before, Tuesday I did to much and ended up an emotional mess so stayed in bed and solobed  yesterday, feeling brighter today so may venture out. 

    Hope your not feeling to crapy, sending hugs xxx

     

     

  • Hi Sue

    Maybe ask your oncologist if you will have a scan, they may bring it up at surgery appointment. 

    Hope the hair looks better after your trim, I've been contemplating having my sides and back zibbed of just to give my half inch of hair some sort of style, it's looking so messy and sticking up rather than laying down.

    I'm still waiting for my surgeon appointment to come through, they say I should have surgery around 21st February onwards, hope they don't leave it to long, just want to get it over with. 

    Good luck with your appointment, keep well 

    Love and hugs xx

  • Hi Davia,

    When I look at my hair in the mirror, I don't know whether to laugh or cry.. I often do both!

    it's four weeks tomorrow since my last chemo so I hope to get a date for surgery soon. The waiting game never gets any easier.

    The hospital seem to be taking good care of you, it's hard our fate being in someone elses hands but I have to keep reminding myself that they are the experts. I hope your scan goes well.

    take good care of yourself,

    love Sue xxx

  • Hi Sue, 

    Thanks Sue x

    Hope you get surgery appointment soon, yes waiting game is hard. X

    I do the same, some days it doesn't bother me, others I feel so gross, I say to my hubby, "I just want to be me again" I know we will get there but u till you have walked this road, you really don't know how hard it is emotionally and physically, we will start that warrior group up after all our treatments and we've kicked this C to kingdom come x

    Let us know how appointment goes, sending love and hugs xx

  • Hey Ladies,

    Ah thanks not doing too bad, just have that silly tickly cough.  So out comes the Corvonia!  I was wide awake at 5am so up having porridge and doing washing.  I only went to bed at 1am! So maybe having a cold so close to treament not too bad timing with the steriods getting me through.  Just gotta get rid of it by the weekend when i crash.  Funny thing i realised is that i have lost my nose hairs so you dont get th tickly feeling any more when you are going to sneeze and no pre warning when your nose is going to start dripping like a tap when you bend down, no hairs to bufffer haha!

    I'm staying indoors today and keeping warm.  I might ice my christmas cake,ive got the fondant and marzipan out.  Although cant really call it christmas cake any more.  Just didn't get around to doing it!  Hmm maybe celebrate my boobs cake.

    Good luck for your appointment tomorrow Sue :)  Ooh and fingers crossed Davia your opp will be around 21st Feb.

    I'm going to trim my hair too today.  Going to pop to my friend around the corner and use their clippers. Hubby says it looks less scruffy when shorter, hmm thanks!

    Hugs xxx