Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hi Linda

    Look on Muslim scarves on Instagram or you tube, I found loads on there, and they look stunning.I bought a few from an Asian site on ebay really cheap and loads of colours, can match to outfits I love them more than the wig, and I have a lovely crochet beanie hat I got from the hospital, ladies crochet them for us, it's my all time grab and go, so comfy, 

    Yes I to have an appetite, I seem to have a savoury tooth to, sweets don't do it for me lol I must have put half a stone on if not more, but they keep saying, don't loose Wight, so I'm being good and doing as I'm told, keeping the weight on LOL  some perks need to be embraced while enduring this chemo

    I don't blame you sticking yo the cannula, save you a trip each week getting picc flushed, you can always opt for port or picc later if need be, but I've seen people having cannula right through, my veins are to shy and I end up having veins nutted together, that's the only reason I opted for picc, but I can't wait to get it out  

     

    Hi Mich 

     

    Yes I'm in Kent, just outside Sittingbourne, village called Borden. I do envy you your sea air walks, must feel so good, really bracing. We go to Whitstable now and again, but the walk along the coast path in Broadstairs is great. 

    I'm going to find and book on my look good feel good course tomorrow, something to look forward to, great idea to list good stuff to look forward to Mich, you've inspired me

    Off to sleep now as had my pax today, night ladies, keep well xxx

     

  • Hi Davia,hope you're feeling ok.

    Thanks I'll take a look at them Instagram as i am finding I prefer to wear a scarf or cap instead of my wig, I went to the mall earlier with my daughter with my wig on, I thought i'll take a hat just in case and by the time i got there the wig was off lol just didnt feel like me,

    As for an appetite i;ve been good all day am now sat with my hand dipping into the heroes tub!

    Hope you're well Mich :)

    Linda 

  • Hi Linda, 

    I'm not feeling to bad at all thanks, the weekly Taxol isn't so bad, it's the combo that hits me at about day 3, I get very emotional on it for some reason, oh and yesterday my eyebrows decided to shed a load of hair, how strange, my hair on body and head is growing back slowly but now my eyebrows decide to do one, joy, just when I thought I'd hung on to a few strand, hahaha good old wonder brow does the trick though oh I booked on the feel good look good course today, February 17 is the only one I can get on as there monthly and on Mondays, my chemo is Monday, but something to look forward to unless I'm having surgery by then

    Yes I get that with the wig, I feel more self conscious with a wig on than my scarves or hat, funny that but I'm always worried the wig had moved or become lop sided lol 

    How are you feeling, good to get out shopping or just out isn't it? Hope your feeling as well as can be, keep well xxxx

     

  • Hi Mich 

    How you doing? Have you mastered the scarf tying?

    Hope your feeling well and enjoying those brisk walks along the coast, I've been out walking round a lovely country park near us, bit muddy but lovely to hear the birds and get some fresh air,

    Take care xxxx

  • Hey ladies,

    Thank you, i'm doing ok after yesterdays double cocktail.  The drunkeness furniture walking hasn't started yet and i actually went out to visit my sister today.  She helped me with ideas on putting my eyebrows on lol!  I also went out with one of the scaves i got for my birthday and managed to tie it with a rose / knot on the side.  My sister said it is very cute and trendy (she's 13 years younger than me) so must be good!

    I'll probably just chill at home tomorrow and take it easy. Ah that's great you have your date now booked Davia, so cant wait for mine.  I cant wear miscara at the mo as hardly any eyelashes left so practising with eyeliner!  I also look pasty and peaky but dont want to end up looking like a clown with too much blusher or bronzer.

    Did i say i'm going to Herne bay on saturday to have the fringe of my wig trimmed.  its really in my eyes and i look like one of those shaggy dogs lol!  When i initially fitted it i had hair so she said i would probably have to come back to have it cut.  So I'll see how i get on iwth it, but like you said the scarves are really comfy to wear and i like the variety of all the colours!

    Aww and i did a silly thing on Tuesday this week, i missed my appointment with my oncologist, doh!  It was at canterbury and i didn't read the letter probably and thought it was at my hospital.  So very annoyed as only realised when i got to the hospital they said no shes not here today.  I've called to reschedule but they said shes quite booked up to April. Hopefully they can squeeze me in.  No my finest moment eh #chemobrain.

    I'm still on a sweet tooth mission but trying to be good with smoothies but i biscuit cupboard is overflowing! I've been quite partial to crackers from xmas with butter though, a few nibbles before dinner haha!

    Hope you all well ladies

    xx

  • Hi Mich,

    I'm glad you're doing better with chemo. I had my last one on 27th but still feel very week and still have chemo brain. The funny thing is I can hear myself talking rubbish but can't stop it!! My husband says 'no change there' lol.

    I have a mamogram and ultrasound on 17th and get the results on 24th, I can't pretend I not bricking it!!!

    Davia I also get very emotional some days, it comes from nowhere.

    Linda, I didn't have a picc line either. it was never really mentioned until the chemo nurses complained saying I should have had one!!

    Take care ladies, love to you all

    Sue xx

  • Hi Mich

    Hope your feeling OK today after the combo, I have my last combo on Monday then two pax, one a week, looking forward to getting my picc line removed then ill be able to get back to my bells before surgery

    The scarf with rose on side sounds great, if I had known I wouldn't have bothered buying a wig, I have wirn mine a handful of times, and being winter it's so easy to pull on a Wooly hat when going out for walks. 

    Hope you get an app with your oncholigist, what a disappointment, I haven't got an appointment with my oncologist, don't quite know when I will get dates for scan and surgery, I'm happy with finishing chemo but also apprehensive for the next journey

    I find my taste buds are all over the place, some days I have taste, others I don't like salt then I crave salt, I don't seem to have a sweet tooth thank goodness, I have put om some weight mind lol

    How many cycles have you got left Mich? Have they told you what surgery your having? I was told full clearance on lymphs in left arm but no mastectomy, I was suprised with that, I really thought they would do mastectomy, but I think it all depends on scans.

    Hope you don't feel to bad on this combo, keep well 

    Sending hugs xxx

  • Hi Sue

    They say it takes time to get over chemo, let's hope your feeling a lot better soon, I know what you mean about talking rubbish, when I'm on steroids I can't stop talking lol

    I think we all "bick" it when we have scans, I think we always will I really hope it goes well for you,

    Hugs xxxx

     

  • Hey ladies, 

    How's things? I was doing OK after my combo no drunk days but it all caught up with me this weekend and now my body is so tired and achy. I did some walking around harbour on Sunday nothing major but felt it this morning, eso as I had to wake up early for my pre assessment. Felt like I had been hit by a freight train! 

    Today I felt rather bleugh and chilled on the couch and read. Wasn't also pleasant standing in the scales and seeing my weight go up by a kg every week! I know small things but they add up when u feel low eh. My face seems to round and puffy, esp now I have no hair! 

    I have signed up to another meditation class on Thursday eve, just paxo this week so hopefully be OK. 

    I'm feeling a bit apprehensive today, I said to my hubby I can't see an end in sight at the mo and can't imagine myself looking 'normal' again. Do you ladies have that? I guess Its normal as we are still going through it but I just can't visualise myself being back to the way I was.

    How u doing Sue?  Do u feel any better chemo is finished? Yeah I deff have chemo brain at the best of times, steroids haven't done much to me this week, hmm think it's this week I'll end up being the duracel bunny!

    Thinking of you ladies xx

  • Hi Mich

    Bless you, I know how your feeling exactly, I have sat there and cried, well sobbed and said the exact same thing to my husband, will I ever be me again, it's huge what we're going through and as brave as we try to be the chemo runs us down, especially the combo, it's horrid, I had my last combo today thank goodness, but the paxol has decided to give me a rash, ON MY FACE so no eyebrows bum fluff for hair and red blotchy face but if its making us feel and look this bad, just think what it's doing to the cancer I also get really frustrated that I don't have the stamina I used to have, I've noticed if I do to much one day the next day I'm flat out on the couch exhausted, so don't feel guilty about having a compleat slob out, your body is working hard, that's what the nurse told me when I told her how I felt. Were nearly at the end of Chemo, and although that's bloody great in every way, it's also a bit scary as we have to get on a different bus, surgery and scans, I'm feeling very mixed emotions and that confuses me as I have been crossing of the days to be rid of chemo, but as my friend said, if you can do chemo you can do anything keep strong, know its the combo draining you, I will be in the same place as you by Thursday my hubby can time it down to the minute, every combo cycle has followed that pattern, I get my kleenex out, and just let it go, its a release. You will be you again soon, so I'm reliably told by friend who went through this 6 years ago Lots of big virtual hugs ,