Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hi Ladies, thought I'd come in and wish you all a very happy HEALTHY new year, it's an emotional day for me, I normally feel funny on NYE but this year I'm just reflecting on what we've been through, but 2020 is going to be a great year for us all, Worrier club here we come. 

Love and hugs to you all xxxxx

Thanks Davia! Happy New year ladies 2020 is going to be a great year for us warriors! Gonna kick butt! 

At the moment I'm being lazy in bed already, no celebrating for me lol! Yeah mixed emotions too, esp when I see all these post of friends on FB professing how wonderful their lives are. I know cynical much!

Hope u ladies are doing ok today. Don't have any plans for tomorrow so maybe lunch and a walk. I did want to go to London to see last of the Xmas lights but hubby not too keen, he does worry a lot about things. So lazy day in Kent tomorrow. 

Hugs all around xx

To all the ladies in this group and especially Mich and Sue who I was originally chatting to, a very happy new year. May you all have swift and easy roads to recovery. 
 

Mich, hope taxol is being kind and the BRCA comes in soon.

Sue I'm delighted to hear you are through the chemo and only the lumpectomy left to go. I would not worry about the lack of appointments, I have faith your medical team will look after you. 
 

I look forward to us all being in the warrior club very soon and out the other side onto better things. Roz xx

Hi Roz, it's great to hear from you. I take it you are now fully recovered? It's so wonderful to know that you are out the othe side and hopefully enjoying life to the full. 

Have a wonderful new year, you have a lot of catching up to do. I'm having my first glass of wine as I write this, the first alcoholic drink since July!!  

I'm now just playing the waiting game which isn't much fun.

Keep well my lovely,

Sue xxx

Hi Ladies

Happy New Year to you all.

Cant believe i'm having my 2nd Fec tomorrow, doesn't seem 3 weeks since I had my 1st hope the other 4 fly past as quickly, my consultant felt my lump on Monday and said it feels smaller after 1 round so I came out feeling positive. 

Downside is my hair has started to come out so Friday my girls are going to shave it off for me so the new hats I had for xmas will come in handy lol.Oh and Genetics team have agreed to test me for BRCA as mum had triple negative in Feb 19 so its all going on atm!

Linda xx

Hi Linda,

Happy new year to you. Great news about your lump feeling smaller, it makes it all worth while. How did you get on with your second FEC yesterday? Hopefully you are able to tollerate it. Hair loss is never nice but it is only temporary. My hair looks terrible, short, lank and thin. I used to have really thick hair past my sholders. I need to stop looking at old photos as it's not helpful.

Take care of yourself,

Sue xx

Hi Sue

Hope you're well :)

It went ok thanks apart from the bossy little nurse who wanted to know why i didnt have a picc line and when I said well I didnt wish to have 1 preceded to try and bully me into having 1 telling me chemo is bad for veins, she soon stopped when i asked her if she had heard of patient choice, then sat the whole time having it saying to myself veins dont you dare let me down with her today but i actually have a very small bruise this time up to the last time haha

Pleased to say I have no nausea again and havent taken any cyclizine at all but i do have the dex fuzzy head and the aches from the lovely filrastim injections but i'm not complaining cos i know it could be a lot worse!

I'm just getting anxious now that when i start the Docetaxel that I will be hit by every side effect going but i will have to deal with that as n when.

My hair came off thursday eve as it was just faling out on its own accord and blimey i can feel every draft going so am glad i had chemo hats ready to use lol. 1st time in my 48 years i've not had hair, i was born with a mop of black hair which i never lost mum said.

Take care

Linda xx

Hi Linda,

I'm glad you are tollarating the chemo well. I have what the hospital call superficial veins. They think they can see them but I always get butchered as I think they see me as a challenge so I sympathise with you.

Well done for shaving your hair off, I wasn't brave enough to do that and used the cold cap until the very end. I'm not sure if it was really worth it as I lost loads of hair but was never bald. 

I hope the rest of you Ladies are doing well, let me know how you are getting on. I am just playing the waiting game now, next hospital appointment on 17th and nothing else booked in. I am still stressing that I dont have an appointment with the Surgeon yet.

Love to you all,

Sue xx

Hey Ladies,

Glad to hear you are coping well after your dose.  Urgh yeah the injections.  I got used to injecting myself just struggled with the bone ache.  Taking Paracetomol and antihistamine half an hour before injecting did help.  Ah what a lovely nurse you had, not! I was given the choice on what i wanted to do an opted for a port.  if your veins are fine then continue and see how you do. 

Aww I shaved my head Friday night! I ddn't wear the cold cap when i had my first taxol / carbo as was feeling rough that morning and now i guess its caught up with me.  The past couple of days its fallen out in huge clumps so i succumbed on Friday.  its rather airy now haha!  I tried my wig on and fits ok, the fringe is too long though so have to take it back to have trimmed tomorrow and then lovely woolly hats i guess. 

I do have rash on both my hands and see rashes are a side effect of Taxol.  Do you ladies have any rashes?  I also have nose bleeds which i see is also on the list but luckily no nausea either.

 I have my look good feel better workshop on the 28th Jan, so looking forward to that esp as i have no hair and hardly any eyebrows.  Have you ladies lost your eyelashes too?  Mine are really sparse, i can barely put masraca on and end up painting my eyelids, doh!

Hugs all around

xx

Hey Rozza,

Lovely to hear from you :) And as Sue said so glad to hear you are doing well.  You were a great support for us with all our millions of questions and stopping us googling everything lol!

Taxol is going ok, apart from rashes and nose bleeds which i can handle, nothing compared to nausea on EC!

I'll get the BRCA result early Feb, annoying there is a delay.  But they've said i'll get it before my opp is due. 

Hope you are well otherwise and having a good weekend :)  Onwards and upwards eh for a fab 2020 for us!

xx

Hey Rozza,

Lovely to hear from you :) And as Sue said so glad to hear you are doing well.  You were a great support for us with all our millions of questions and stopping us googling everything lol!

Taxol is going ok, apart from rashes and nose bleeds which i can handle, nothing compared to nausea on EC!

I'll get the BRCA result early Feb, annoying there is a delay.  But they've said i'll get it before my opp is due. 

Hope you are well otherwise and having a good weekend :)  Onwards and upwards eh for a fab 2020 for us!

xx