Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hi Mich

    Hopefully they will speed the result through once they have the concent.

    I have my paxol tomorrow, do you find your still under the effects of the carbo paxol when you have your weekly one? I still feel run down from the combo,

    I did my walk today, weather was nice, quite warm for season, I bet seaside is lovely and refreshing when you do your walks. 

     

    Clair and Sue, hope your both feeling OK after chemo, how's the hair? Is it still growing back slowly?

    Take care ladies, hugs to you all xxxx

  • Hey Davia

    Thanks hope so too. I've been told ill have the results before my opp is due. 

    Good luck for tomorrow. I seem to be ok on the taxol, no furniture walking. Just really tired when the steroids wear off. I didnt do much today, mostly chillin. Hope to get out tomorrow for me walk, better not be raining lol!

    I've given up on the cold cap, hopefully carbo /taxol won't be as bad as ec. I haven't had a massive shed again, err yet. Wig is awaiting if it does happen. 

    My taste buds still seem OK, although did notice the gammon it extremely salty err and celery. But sweet tooth is still there and I still have mince pies left oops! 

    How your taste buds doing ladies? 

    Xx

  • Hi Ladies,

    Mich, Taxol is much kinder to your hair, mine even started growing back slowly whilst on it.

    I am thrilled to be finished chemo but have other worries now. I was told the safe limit for surgery after chemo is 4 - 6 weks but I am only having an ultrasound and mamagram on the 17th Jan which is 3 weeks after my last chemo. No surgeon's appointment yet or surgery date so I doubt it will be done in the time guide. 

    The wait for the BRCA is never nice but hopefully you will be negative. 

    Good luck today Davia. I hope it goes OK.

    How are you getting on Claire?

    Happy New year to you all.

    Love all round,

     

    Sue xx

  • Thanks Mich. I think you will notice the hair growth, it is slow but I haven't lost any like the EC, my leg hair is growing back to lol

    Hope you've had a lovely walk, sun is shining and it doesn't feel to cold. 

    My taste buds are very hit and miss, some days OK others salty others no taste at all, but apatite is still OK.

    Sue, is safe period to get you over chemo, get your bloods back to some normal,?( Normal what is that lol)

    Stay well ladies, xxx

  • Hi Ladies, thought I'd come in and wish you all a very happy HEALTHY new year, it's an emotional day for me, I normally feel funny on NYE but this year I'm just reflecting on what we've been through, but 2020 is going to be a great year for us all, Worrier club here we come. 

    Love and hugs to you all xxxxx

  • Thanks Davia! Happy New year ladies 2020 is going to be a great year for us warriors! Gonna kick butt! 

    At the moment I'm being lazy in bed already, no celebrating for me lol! Yeah mixed emotions too, esp when I see all these post of friends on FB professing how wonderful their lives are. I know cynical much!

    Hope u ladies are doing ok today. Don't have any plans for tomorrow so maybe lunch and a walk. I did want to go to London to see last of the Xmas lights but hubby not too keen, he does worry a lot about things. So lazy day in Kent tomorrow. 

    Hugs all around xx

  • To all the ladies in this group and especially Mich and Sue who I was originally chatting to, a very happy new year. May you all have swift and easy roads to recovery. 
     

    Mich, hope taxol is being kind and the BRCA comes in soon.

     

    Sue I'm delighted to hear you are through the chemo and only the lumpectomy left to go. I would not worry about the lack of appointments, I have faith your medical team will look after you. 
     

    I look forward to us all being in the warrior club very soon and out the other side onto better things. Roz xx

  • Hi Roz, it's great to hear from you. I take it you are now fully recovered? It's so wonderful to know that you are out the othe side and hopefully enjoying life to the full. 

    Have a wonderful new year, you have a lot of catching up to do. I'm having my first glass of wine as I write this, the first alcoholic drink since July!!  

    I'm now just playing the waiting game which isn't much fun.

    Keep well my lovely,

    Sue xxx

  • Hi Ladies

    Happy New Year to you all.

    Cant believe i'm having my 2nd Fec tomorrow, doesn't seem 3 weeks since I had my 1st hope the other 4 fly past as quickly, my consultant felt my lump on Monday and said it feels smaller after 1 round so I came out feeling positive. 

    Downside is my hair has started to come out so Friday my girls are going to shave it off for me so the new hats I had for xmas will come in handy lol.Oh and Genetics team have agreed to test me for BRCA as mum had triple negative in Feb 19 so its all going on atm!

    Linda xx

     

     

  • Hi Linda,

    Happy new year to you. Great news about your lump feeling smaller, it makes it all worth while. How did you get on with your second FEC yesterday? Hopefully you are able to tollerate it. Hair loss is never nice but it is only temporary. My hair looks terrible, short, lank and thin. I used to have really thick hair past my sholders. I need to stop looking at old photos as it's not helpful.

    Take care of yourself,

     

    Sue xx