Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hey ladies,

Welcome Linda :)

Hows things?  I had my paxo yesterday and dare i say i feel normal.....:p  Well no furniture walking like last week and i baked biscuits this morning and walked my friends dog.  Hmm that when they day oh yeah with paxo there is a delay of 2 days lol!

How you getting on with yours now Sue?  Not long now until your last one :)  Davia, you managing ok?

I'm not looking forward to my xmas eve one as its only at 1400 and it tends to take a few hours, boo.  but hey if i get to feel like today then Christmas wont be so bad eh ;)

I've done some more online shopping, oops!  Now just to wrap all the pressies.

Hugs all around

xx

Sue, I've just seen you are having those pesky injections still, boo.  Are they the same nutrphils that you take for 5 days.  If they are the nurse suggested i take paracetomol and anti histamine before hand as it helps with with bone pain.  Not sure if they had already told you.  They sure did play havoc with my body and it helped. 

Hi Mich,

I'm glad you are feeling better this time round. The Taxol doesn't agree with me at all. Yep, that's the injections. I do take anti histamine tablets as I get a nasty rash. Not sue if it's the chemo causing it or the injections. I usually start to feel a bit better once the injections finish. 

I found myself crying this morning, not too sure what brought it on but I am pulling myself together. Iv'e got an Oncology appointment on 24th so hopefully I will get a date to see the surgeon. 

How is everyone else doing? Keep in touch Ladies.

Love to you all,

Sue xxx

Hi all, sorry for the radio silence. I keep putting off replying so that I can take my time and so personals but I've given up.

These injections you're all talking about, are they the white cell boosters? Could they be making me feel even more tired?

Sue, after all we're going through I think it's fine to have the occasional cry!!

I had a bunch of additional heart tests and they can't find any reason for the reduced function so it's probably just how I am. They've switched me from adriamycin to something in the same group but less toxic to the heart and I have to have an echo between each treatment. Two down and two to go, not it's getting close to the end I'm desperate for it to finish! Even though I haven't had a bad time really. I'm definitely more tired and more emotional on the ec chemo but otherwise not bad at all.

Mich, rubbish to have one on Christmas Eve :( Although as you say at least you should feel ok on Christmas Day.

welcome to the *** club Lindy. I've found the chemo much easier than I was expecting so hopefully you will too x

Hey Davia. Sorry, can't scroll back far enough on my phone to see your last update!

oh the other thing that happened last week was my one year old got ambulanced to hospital when I got home from my chemo! That was fun. Turned out he had bronchitis and was admitted for 2 days. I don't think he was in danger as such but we were at the doctors and no cars are allowed where I live so I think ambulance was just the best way to get there quickly. We had to transfer to a private hospital as my white count was quite low that day and I didn't want to be on a ward with various infectious children! So two nicghts sleeping on the couch in his hospital room hasn't really helped my general tiredness.

Love to you all.

claire xx

Hey Sue, 

Aww sorry to hear its playing havoc with you. Just shows how we all react differently to these cocktails! Well I say cocktails as I read the side affects of Taxol yesterday and it contains alcohol and warns you may be over your limit so not do drive! Ha ha did make me smile  

I seem to be OK today, well apart from waking up at 0330! The cats were well freaked when I was in the kitchen at 5am rearranging baking tins and teapots on my side, mundane tasks. That's after I viewed random u tube videos in a zombie state!

I did notice with the taxol they give you more pre meds, than I had with the ec.

Hope u feel better later Sue, a walk does me good when I'm all teary, put on a big wooly hat and coat and wander! 

Hugs xx

Hey Claire, 

Lovely to hear from you, have been thinking about you and hoping all OK

Glad to hear they have adjusted your meds s d keeping a good eye on you. Strange how you find out all these things about your body you never knew. My mother in law washed rushed to hospital due to blood clots and they said her heart is enlarged and something she's probably always had.

Yeah the injections can make you tied, a few days I couldn't get out of bed with the pain, neuropathy and being morbid. The pain killers before had did help. 

Aww that's really scary! Glad to hear your little one is all OK, such a worry for you. 

Are u still due to come over in the new year for your opp? I've refrained from googling anything on oops, reconstruction until I see the consultant, quite proud of myself lol! 

Hugs xx

P. S excuse random words, using my phone and predictive text +space cadet =not a good combo! 

Hi,

Mich, I also read that Taxol contains alcohol but sadly I can't say I'm enjoying the effects!!! I don't sleep at all on Taxol, just one of the side effects I suppose. 

Hi Claire, great to hear from you. Yep, the injection can make you feel tired but if you read the leaflet in the box, there are many possible side effects. it sounds like the hospital is really looking after you so that's one good thing at least. 

I hope your little one is ok and that you are managing to get some rest.

Stay strong Ladies xxx

Hi Ladies, 

Mich I'm glad the paxol isn't being harsh, I found it OK, didn't know it contained alcahol, and here's me telling everyone I haven't had alcahol since May Any new on your Bracca test? 

Claire hope your little one is better, what a nightmare for you bless. I to have had heart tests as I had a AF while on EC and they wanted to make sure all was OK for surgery. Heart is OK thankfully, I have two combos left so where about the same in treatment time, although mine keeps getting put back My white cell count last week was low, 1.5 so they were reluctant to go ahead and this week it was lower .0. 8 so no chemo again, that freaked me out, went to see oncologist and she said the carbo is long lasting and it was this that was dropping my white cells, she is going to give me two of the pesky injections when I have my weekly treatments and has reduced the dose slightly, I really hope my bloods come back better tomorrow, I was so very frustrated Monday and Tuesday I also had tears, my finish date keeps getting pushed back,  I will hopefully have my combo on Monday

Sue, sorry to hear paxo is giving you havoc, are you on it weekly? And I'm sure we all have teary days, I've had a fair few. How is the hair growth? Is it still growing very slowly? 

Love and hugs to all xxx

Thanks ladies. I didn't realise Paxil contained alcohol either :)

I never read up on side effects as I'm too suggestible but have now read the leaflet in the box. Blimey! 
 

Davia I'm so sorry your date keeps being pushed back. I would cry if I went in and they told me that. So close to the end too! Got everything crossed for your next set of bloods.

xx

Thanks ladies. I didn't realise Paxil contained alcohol either :)

I never read up on side effects as I'm too suggestible but have now read the leaflet in the box. Blimey! 
 

Davia I'm so sorry your date keeps being pushed back. I would cry if I went in and they told me that. So close to the end too! Got everything crossed for your next set of bloods.

xx

Thank you Claire, xx