Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hey ladies,

I'm glad you are ok Clare and got to your treatment.  Yeah all very scary whats going on there, its been happening for quite a few months now!

I have my last EC dose on Tuesday. You'll be fine, just remember to take your anti sickness meds.  I struggled the first time but much better now they upped my pre treatment meds.  I now take anti sickness meds for the next few days after treament, even when i dont feel too nauseous as it keeps at bay.  The nurse also advised to eat regulary and small amounts and not to get hungry.  Mistake i made the first dose,  i didn't eat while having the treatment and then only ate much later in the eve and got violently sick. I do feel like i've had a heavy night for a few days so mostly just sleep.  I had the heart mri before i started and then blood tests before each treatment. 

Thanks Sue, yeah I'll see what i do on Tuesday, might set it up myself lol! As you say it takes a while and they have quite a bit to sort out with drugs etc 

Hope you are all well and had a good weekend.  

xx

I'll be thinking of you today Mich, let me know how you get on.

Hugs,

Sue xx

Aww thanks Sue, just finished just thawing out now. Last Ec yay! 

Sunshine here, let's hope its lasts.

Hope you are well today. Fingers crossed for me later. 

Xx

Hi Ladies, hope its all going well, Mitch half way Mark, are you  paxo and carbo next? I am on number 2 paxo carbo, had mine yesterday, it takes a bit longer to infuse but you can have a good doze and catch up on ipad, i have noticed my hair is definitely growing back, very slow but there is growth and my nails are growing to, your right about the sickness tablets, I set my alarm and take them before I feel sick for the first week, then maybe drop the early 6am one off and gradually come off the others only having one if I feel sick, I've found the paxo carbo different to the EC it doesn't nock you out as much but it has upset my tummy in the lower region, I had to have a week off to allow it to heal before my second dose of Pax and Carb and the oncologist reduced my dose 20% so I'm really hoping it behaves this time. I also have paxo once a week, it's a pain having to go but apparently it's better tolerated, but some people have no issues at all with it, we're all different, my weakest part is my bowel so thats most probably why it hit there hard.

Keep well and rest when you need to, it helps, I over did it on Saturday and boy did I know Sunday, really tearful, 

Love to you all xxx

Hi Davia,

I had my first Paxo chemo Friday and I'm not tolerating it as well as EC. It's been really harsh on my stomach and I'm exhausted. I'm hoping it's just a glip. 

It's reassuring to know that your hair is slowly growing back. My hair is really thin now and looks awful.

Take good care,

Sue xx

Hi sue

Really hope your better soon, it was really harsh on me to, the oncologist reduced it, so hopefully it's kinder this time, maybe they can do the same for your next dose, I had a week off to so it could heal. Are you having pax weekly? It's a pain going into the hospital all the time but maybe better.

I'm also trying to limit acid food like fruit to see if that helps, fingers crossed it easier this time. Wishing your turned the corner soon and feeling better xxxxxx

Hi Davia,

I'm having chemo fortnightly, I'm seeing the Oncologist next week. Have you any more treatment planned? 

Xx

Hi Sue, 

I have paxo weekly and carbo three weekly, I have two carbo left so six weeks all going well, after I've finished chemo I have surgery, then radio therapy and fingers crossed that will be it.

I try and take it in small steps as if I look at the whole picture It can be daunting or overwhelming, it's a massive roller-coaster, horrible but doing the job, we will get through this, drink loads it flushes it out, I try to drink min 2 litres a day, hope your feeling better soon xxx

Mich congrats on the last EC! Suebea, hope you're feeling better.

interesting that you guys all do the EC first but I did the Paxo and carbo first.

On that note, my heart MRI showed slightly reduced function :( Had more tests yesterday to see if any reason for it but it looks like it's just the way I am so they possibly won't go ahead with the EC. Very nervous as to what that means in terms of treatment etc. Don't know if there's another chemo they can use instead although presumably ec is the best one otherwise they wouldn't have suggested it. Also wondering if it means no more chemo at all and just straight to surgery. And since it's my left breast can I now not have radio therapy in which case will it be a mastectomy instead of a lumpectomy. So many questions.... Seeing the cardiologist and breast surgeon on Monday and oncologist on Tuesday so should have a plan by then.

Suebea and Davia are they giving you meds to protect your stomach right before you get the paxo? My stomach was a bit up and down whilst on it but nothing too drastic.

Have a lovely weekend all.

x

Hi Claire,

I'm sorry that you're treatment plan isn't going as expected but the oncologists are experts. I know they will have experienced these setbacks before and will know the best course of action. I can only imagine how you must be feeling but I know you will feel more reassured after you have seen the breast surgeon and Oncologist. Keep us updated.

I do have medication before the Taxol but my stomach is also very up and down. I found the EC easier all round. 

On a positive note, I tested negative for the BRACA gene. To say I'm relieved is an understatement.

Mich, how are you doing? How's the hair? I'm still using the cold cap although the nurses probably wonder why!! My hair looks terrible, really thin and bald patches on top. I hold on to the hope that the cap will help my hair grow back quicker.

I hope Davia and Roz are both doing well, keep in touch.

Love to you all, stay strong Ladies

Sue xxx

Hi Claire,

I'm sorry that you're treatment plan isn't going as expected but the oncologists are experts. I know they will have experienced these setbacks before and will know the best course of action. I can only imagine how you must be feeling but I know you will feel more reassured after you have seen the breast surgeon and Oncologist. Keep us updated.

I do have medication before the Taxol but my stomach is also very up and down. I found the EC easier all round. 

On a positive note, I tested negative for the BRACA gene. To say I'm relieved is an understatement.

Mich, how are you doing? How's the hair? I'm still using the cold cap although the nurses probably wonder why!! My hair looks terrible, really thin and bald patches on top. I hold on to the hope that the cap will help my hair grow back quicker.

I hope Davia and Roz are both doing well, keep in touch.

Love to you all, stay strong Ladies

Sue xxx

Hi Claire, 

Also sorry to hear your treatment plan has changed, I can imagion its a worry, let us know how the meetings go with oncologist and breast surgeon, I'm sure they will have come a cross this many times and will take great care of you ️ 

I have pre medication before the paxo and carbo, I have had to have my dose reduced by 20% as it really upset my insides, no sickness but really very sore bowel, I also had a week off to allow it to heal, so I'm keeping all fingers crossed it doesn't happen on this cycle, I'm 6 days in, feel very tired but hope by mid of next week to be feeling a bit better.

Mitch have you started the paxo /carbo, if so hope it's being kind to you. 

Claire i have noticed my hair is growing, VERY slow but thickening up rather than length, so fingers crossed you start to see some progress, 

Have a good weekend, stay well ladies 

Xxxxxxxx

Hi Ladies,

Thank you I'm doing ok, my last EC now done whoop whoop!  Went ok, no sickness just the pain in my body.  I stayed in bed all day yesterday, which isn't like me.  Think I was generally feeling bleugh and didn't help it was all grey outside, but hey we're allowed to have days like that, as we are real fighters!

Sorry to hear your plan has changed Claire.  Hope today went ok and let us know what they say tomorrow?  As Davia said, sure there are other options out there and i know they do adjust treatments quite a bit for individuals.  

I'm waiting on my next date for cabo / taxol.  It was going to be on the 10th Dec but that needs to change as now my pre-assessments and treatments are too close together for weekly and it will affect the results of my blood tests.  I chased them again today so hopefully I'll hear this week.  I was due to go in on Christmas eve and New years eve, I could change that and defer until the new year but thought nah rather just get it over with.  Not as if I'm going to have a house party! Hmm maybe a should a non-alcoholic pj one;)

Seems like taxol takes a bit of adjusting to, guess the norm with all the drugs.  My sickness was upped from my first treatment so hope that will continue to carry me through.

I wore the cold cap, still deciding if I'll continue with weekly.  I'm not sporting any new bald patches, err that i've noticed.  Just the lovely fine, fluffy annoyingly thin hair lol! I've still got my headbands, I ordered some headscarves from amazon but dont like them ha ha! Might experiment with my own scarves seeing as I own so many.

Hope you all keeping well.

xx

P.S.  Great news Sue on your BRCA result.  Hope I get mine soon too! :)

Hi Mich

Half way for you then that's a good Mike stone, the paxo carbo hasn't been as bad for me, the first week after I feel a bit delicate, and energy low but better than I did on the EC, I had my weekly dose of paxo yesterday and don't feel bad at all, I've had a loose bowel but it's known to do that or the other way, I've tried to limit my fruit and sugar like Rozza suggested, anythings worth a try

I have my last combo, pax carbo on the 30th Dec so just scrape through Christmas, my last paxo is 13th Jan, then surgery, I'm getting very nervous about surgery, they haven't really discussed what surgery yet, the oncologist said another scan, either CT or pet so surgion has better idea, I do hate scans

Have they told you what surgery your going to have after chemo? 

Oh my hair, well fluff is still there, so hasn't come out with the pax/carbo and my leg hairs are growing can't shave though as they say to risky for infection, so may try smelly veet but you may find your hair starts to thicken a bit on paxo, oh I didn't do cold cap, just shaved it off when it started to come out in hand fulls 

Clair hope today goes well

Keep well ladies 

Xxxxxxxx