Big hugs Sue. I think it’s completely natural to feel like that. You’re going through a lot physically and mentally and sometimes you need to cry! 

Yes my crown was bald by the end and then did the cold cap anyway but they just put a little gauze barrier on top so I didn’t freeze burn it. I wasnt at that stage until the last 6weeks of taxol though... Are you having a break for your operation or have you had that? If you have a break then I would think it’s worth persevering for the last 3xEC because my hair is growing back like crazy right now so your crown should recover in the op break.

One thing I have realised is that all my hair that’s left is my natural hair (I had blond highlights) and all of the blonde is the stuff that fell out so if your hair is completely dyed that could be why it’s shedding quicker.

Mich I had one bottle of beer and it tasted great! I haven’t had anything else yet though. I didn’t drink any alcohol during treatment as I didn’t think more toxins was a good idea! 

My port was a bit sore for a couple of days but fine when it healed. I had mine on a general anaesthetic but my cousin had hers on local. I’ll be having mine out soon, waiting for a date. It will be funny if that happens the same day yours is put in!

Take care ladies. As dark as it may feel right now just hold on in there. I can tell you that it gets so much better once the op and EC are out of the way xx

Hi,

I haven't got a date for my op yet or radiotheraphy. The chemo should finish early January but depending on the results of the BRACA test depends on whether I have a lumpectomy or mastectomy.

I feel much brighter today but yesterday I was a wreck. Have you been given the all clear yet? That is the day we all wait for.

My hair was dyed all over so I live in fear of losing it all but I will hang in there for as long as possible.

I've forgotton what alcohole tastes like! The thought of it makes me nauseus which I suppose isn't a bad thing.

Take care ladies

Sue xx

Hi Sue,

Yes it appears to have gone so I’ve been left alone until November and will then have a scan of some sort. I had the mastectomy and had reconstruction at the same time. It was alright actually, but hopefully you will get away with a lumpectomy only, less hassle.

Losing your hair is rubbish and no matter what anyone says makes it doesn’t make it any better. I did meet some people who wore a wig and you wouldn’t have known at all though. Your Macmillan nurse can probably help you prepare for one just in case. Keep on the cold cap and  I’ll keep my fingers crossed for you that the hair loss slows down soon xx

Hi Roz,

I have got two lovely wigs and loads of headscarves but I don't feel ready to wear them yet.

What a relief to be given the all clear but I bet it will take some adjusting to get back to a normal life.

It gives me hope when I hear success stories as there is so much negative stuff on the internet.

Be kind to yourself,

Sue

Hi Ladies,

Sorry to hear you had a *** day Sue. Glad you are feeling better :)  is there anything you are doing this week that will help? That will probably be me next week when my hair starts falling out! My friend that has gone through it reminds me that is fine to have bad days and feel vunerable and weak, its not easy what we are going through and those not in the know will remind us to stay positive all the time, which we are but we all have bad days in our life and often its the smallest of things that spark it off. 

I had a bit of a meltdown when I read everything on my diagnosis and admitted to my friend I'm really scared now.  I know its going to be a long road so I'm focusing on whats around the corner, err chemo 2!  I'm probably similar to you, where I'll have the opp and radiotherapy.  I've looked at my BRCA forms today and will give consent to the test.  I'm seeing my oncologist tomorrow. 

I dont have headscarves or a wig yet, that will be on Saturday.

Glad you have the all clear Rozz, cant wait for that day. Can I ask, have you changed your diet at all? I've read about being super healthy esp with TNBC but then you do need to live your life too. I think i'm fairly healthy now and hardly drink, ok prob more exercise which I'm sure most of us will agree too.  Hmm maybe me over reading again lol!

Big hugs to you both.

xx

Hi ladies, hope it's ok to join you.  I live in Hong Kong but was home in the UK in August, found a lump and now been diagnosed with triple negative bc.  I'll do an introductory post and write a bit more.

I just wanted to say since diagnosis I've come across two women that have had breast cancer (not trn) and gone on to have children naturally so it definitely is still a possibility.

Looking forward to getting to know you despite wishing none of us had to be here!

Claire

Hi Mich,

It is a very long road but as you say not worth thinking about the big picture and just take it in small steps. I’ll tell you both another positive story about my cousin: Diagnosed 2 years ago, same as us TNBC grade 3. She ignored the lump in her breast and even ignored lumps under her arms that appeared thinking it was nothing. They got larger and she went to the doc. It was all a bit out of control stage 3-4 by this point. So she commenced FEC, which didn’t quite work due to the advanced nature of her situation, so they switched her to carboplatinum, then taxol, radiotherapy, mastectomy. She’s now in the clear now and enjoying normal life again. So there’s definitely hope in 2019 :)

Mich I saw a dietician who told me to eat loads of antioxidants (veggies) and to limit sugar (even natural sugar in fruit) on the day before/of/and day after chemo. Apparently spiking your sugar level on these 3 days can make the side effects stronger. She said eat protein every day if you're less active (even just a glass of milk) because if you are losing muscle this again stops the chemo toxins hanging around in them and gets it out of your system quicker. On top of this I switched to organic milk and have almost cut out red meat, just a luxury steak once a month! I tolerated the side effects well and I’m sure it was down to a healthy diet, lots of water and as much walking as I could do. 

I’ve been racking my brains as to what I could have done differently in life, less bacon, wine, not living in polluted London, but in all honestly for triple negative I think it just happens! So now chemo is over i’m just ensuring an ‘everything in moderation’ attitude and will ensure exercise twice a week, but I haven’t drastically changed anything. 

Both of you stop googling :) enjoy your day xx

Welcome Claire! 

So sorry to hear your diagnosis and I hope you’re doing OK with the treatment. Thanks so much for sharing about your two friends, it’s great to hear these positive stories xx

Hi Ladies,

Sorry that you have to join our club Claire but hopefully we can support you.

These positive stories are really great to hear as people seem to forget to post once they get the all clear but it's the boost most of us need. Wow Roz, that's amazing news about your cousin. 

My cancer nurse told me that there was nothing I could have done differently to stop getting TN cancer. Obvoiusly a healthy diet and healthy lifestyle is recommened but we would have got the illness anyway. I will find it hard to cut out sugar as all I crave is chocolate and most other food makes me feel sick. 

Keep positive Ladies, easier said than done I know!!!

Sue xxx