Worried and feel alone

hello I don’t really know where to turn to so i thought i’d try here,

i have been going back and forth to the doctors for over a year complaining of tiredness, sore throats , swollen glands in my neck, underarm and groin, and generally not feeling very well.I have lost over 4 stone in the last 6 months, feeling full and not much appetite, pain in my left side and pain when swollowing fizzy drinks.

I was referred to general medicine but the hospital referred me to ENT, having had a few tests they discovered i had a grade 3 benign lymph node in my neck, and suggested i went back to my GP to be referred to general medicine.

3 weeks ago i finally had an appointment to see the general medicine specialist at a different hospital and finally i felt as someone was finally listening to me, i then had a full body CT scan, and a gastric endoscopy which was a failed intubation (due to me being silly and not asking anyone to take me) after this i had a report with the words Urgent two week referral- suspected cancer! This was the first time it was actually mentioned. I’m planned to go back in next week for the gastric endoscopy taking someone to drive me home this time , i just feel so scared and alone, I don’t want to tell anyone because i hate to be a burden on anyone.

In the last week i can barely eat anything and feeling more tired- getting me down a bit as it’s the summer holidays and i have a young son

  • Hi there - I have just done an internet search as I am also worried - your post came up first! I have just joined the forum to reply to you. I have confirmed Prostate cancer only a week ago confirmed. I was fast tracked so less than 4 weeks ago I was absolutely fine , working and going about normal daily business. I have been highly stressed as a bone scan indicated degeneration in back so that needs investigation and the Dr who did biopsy has sent me for a PET scan as well . I can’t describe how my life has been turned upside down , total disruption. But what has got me to this point is having someone to talk to , someone to listen. Have you any person you can confide in ? Mentally this is so so important for your wellbeing- I understand what your going through. My thoughts and empathy are with you at this difficult time. Positive thoughts are vital , however hard that seems. Much love to you.

  • Yes i have my mum and Dad but they’re away on holiday and I don’t want to spoil their fun with this, i also have very good friends but feel as if i tell them they will only worry about me, and I feel as I don’t want to put anyone in that situation. Hopefully everything will be good for you, thank you for replying 

  • Hi I'm waiting for an urgent referral too after an abnormal pelvic scan & blood test. Time is standing still & I'm terrified. Please don't do this alone, I'm like you & don't want people to worry. I originally told my husband & a couple of close friends, there was no way I was going to tell my mum as she lost my Dad & Grandad to cancer but I did &  she's been a good support. Being 'happy' for the kids in the summer hols is exhausting but hopefully we won't be waiting too much longer. You're not alone, we're all here too. Sending love

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    Hi Worriedmum,

    Welcome to the forum. I am so sorry to hear about the comings and goings you've had over the past year. It is so frustrating when nobody seems to take you seriously. Please try not to worry too much about your 'urgent 2 week referral'. This is the normal time scale for most cancer investigations, although fortunately, a lot of referrals don't show up anything untoward.

    For as long as this forum is here you don't need to feel alone. We have all been through cancer ourselves or are looking after someone with cancer, so we all know what you are going through. Still, I agree with Lucky. It really does help to have a family member or friend who you can confide in about your innermost feelings.

    I can understand that you don't want to spoil your parents' holiday, but please don't feel that your friends will only worry about you. It all depends upon how positive you are when dealing with this. Instead of feeling sorry for you, they can then support you and lend a listening ear. I have had 2 bouts of breast cancer in the past 10 years and have found that the support that I have received has been invaluable.

    I would imagine that your emotions are all over the place at present, but rest assured that this is perfectly normal. Your feelings will begin to settle once you get a diagnosis and start to move on to treatment if it is required.

    I hope that your gastric endoscopy goes well next week. You should have been told that you needed someone to drive you there when you were given your appointment, so don't think that you are stupid.

    Do please let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Unfortunately i had another failed endoscopy with sedation :| 

    can they tell anything with a Ct scan?

    i have a long 2 weeks to wait for my consultant appointment 

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    Hi Worriedmum,

    I am so sorry to hear that this endoscopy failed with sedation too. A CT scan can tell somethings, but the more supporting tests you have the more accurate your diagnosis will be.

    Are they going to try for another endoscopy or not?

    Kind regards,

    Jolamine xx

  • I can't imagine how you feel, I've only been waiting for my appointment for a week & it feels like a lifetime. I hope you get the answers you need soon & that you found some friends to talk to & support you xx

  • I’m not too sure I’m going to have to wait what the consultant says they might opt for an endoscopy under general anasthetic, ive had a lot of blood test so hopefully i will have some sort of answers in 2 weeks xx