Hi

i too am replying as Steph tagged me. Sorry it has taken so long but I’ve not been on here for a while. I was diagnosed last year with stage 1b grade 1 endometrial cancer. I had s hysterectomy with ovaries removed. When histology came back cancer had been upgraded to 3 still stage 1b. I was offered 25 sessions of external radiotherapy or to take part in a trial. Some people would have further surgery to remove and test lymph nodes whilst others would have chemo and radiotherapy chosen at random. Neither option appealed as I’ve been type 1 diabetic for 57 years. Eventually after discussion I chose further surgery and fortunately the nodes came back clear. I then had three sessions of internal radiotherapy which has only temporary side effects. I’m now cancer free and just about to attend my second four month follow up, 

Everyone has the right to choose their treatment after careful consideration. Of course different oncologists have different ideas of what is needed. I assume that the follow up treatment is preventative to stop it coming back and make sure all cancer cells are gone. Sort of belt and braces approach by the sounds of things in your case. It took me a long time to decide what I wanted to do and lots of discussions with my gynaecologist. It was tough. The second op was only 12 weeks after the first and it completely knocked me out. Internal RT was not too bad though. My thoughts for you are to think carefully and weigh up the options and discuss it with the experts. I know that it can be agonising and my thoughts are with you. However in the end you have to choose what is right for you and feel happy with your decision. Unfortunately no one can make the decision for you as I know from experience. I listened to advice from whoever would give it but in the end it was down to me! The important thing was that I was happy with my decision and as it turned out everything was ok, However if they had found cancer cells in the nodes I would have had chemo and RT. But I would have known that it was needed. 

I hope you reach a conclusion soon and everything goes well in the future, Feel free to private message me if you would find that useful.

Sundial

Sorry I know this is an old post but I was searching anything to put mind at rest and came across this. Yesterday I was upgraded to grade 3 from a 2. As was only a 2 when they did hysterectomy they didn’t take lymph nodes, so now grade 3 and nurse says more tests on womb to see if cancer cells have changed to anything else, I’m so confused did this happen to you and could you offer any advice to calm my nerves xx

I was extraordinarily difficult every step of the way through my treatment largely because I was denying my anxiety in order to 'survive' in my own way. Now two years on ( and having had a radical hysterectomy, chemo and radiotherapy) I am glad my Onc was as tough as me and didn't give an inch. We all cope in our own ways. If I have any 'advice' it is to say trust your feelings, trust the process and try not to become your own expert in the way I did. Your medics may know sweet fanny adams  about you, but my experience is (gritted teeth!) they know quite a lot about a little. I have my review on Friday and I might now confess to the she-devil Onc that I am grateful. All good wishes. Xx

I never knew I had so many anxiety issues ️ I know when we get diagnosed with the big C lst thing we think of is I’m going to die, and this is weighing very heavy on me. Now the fear of the nurse saying they are looking at my cells cos might change my diagnosis is really scarey.  

I too was upgraded from 1 to 3. I was dismayed. And yes, it was scary.  But as my old Dad used to say 'while we have life, we have hope'. It's worth remembering. You do.
 

Hi I was looking at my old posts and wanted to know are your going still xx hopefully is all well

Hello Mario11. Yes. I'm still here! It is now two-and-a-half years since my 'cancer journey' began with a bleed as my first grandchild was stillborn. I quoted my old Dad, now long deceased, saying 'where there is life, there is hope' - on the final day of treatment, I was blessed with the arrival, two months early of another, to my youngest. We have all been brought up short, required to mourn and celebrate. It's been tough on us all but somehow Grandpa's simplistic take on life has held true. I very much hope you are doing ok with some lessening of anxiety. Best wishes.

Dear Alissico

Lovely to see your posts x

my mum has a recurrence of endometrial cancer in her lymph nodes    Para ortic lymph nodes and no further spread thank goodness but I think she's now probably stage 3c.  She's due to have her last chemo next week ... 6 sessions and I think she's feeling a bit nervous about "what next "?

are you still under observation and any kind of immunotherapy etc?  I think my mums on a trial too as well as receiving the chemo 

look forward to hearing from you and sending you lots of good wishes xx ️ ️ ️ ️

Hi I’m glad everything worked out well for you and life is in a happy place. I’m ok thanks to anti depressants lol, anxiety is lower as all ok at moment, so while it lasts il be ok. I’m now 4 months past hysterectomy and brachytherapy, had shadows on lungs but found to be shadow over aorta, and mri came bk this week as what they think is scarring, so more more check ups till October. So touch wood things ain’t so bad xx

Hi not sure if ur still on here, last time we spoke July 21, just wondering how ur getting on still, my hope is all is still well. 

Yes all is still well, thank you. How are things with you?

sundial

Ok thank you, another year forward, are u still having checks with hospital?? My next one next week, wishing us all good things in 2023 xx

Ok thank you, another year forward, are u still having checks with hospital?? My next one next week, wishing us all good things in 2023 xx

No my check ups finished a year ago. I hope everything goes well with yours netxt week. A trouble free year would be nice.

Sundial