Subungual Melanoma

Hi

I have recently completed my treatment after three excisions of the left thumb and a sentinel node biopsy, I am extremely lucky to be clear at the moment. There are some important points though that I have learned.

I visited a GP at about 8 months after the thumb nail darkened photos were sent off but as I did not have typical markings it was decided tht it was most likely a nail infection, I treated it with a variety of products and went back after a year, because I was elated that it wasn't dangerous I missed the suggestion I come back sooner.

I then took a five month referral as it still didn't have typical marks.

After a delay that took it to 6 months I saw a dermatologist and a consultant dermatologist who suggested it was not dangerous but a granuloma, they took a photo and sent it to a nail specialist colleague. The elation this time lasted less than 24 hours as a colleague assurred me it was the same as his and it was dangerous. By now half the nail is missing and there is an angry lump weeping blood and fluid from where the nail was.

I was sent a sudden callback and salvation came when the nail specialist saw the nail , after a fleeting moment she decided to excise the nail right then and there with the hand on a stool, a tumour was removed. two frantic weeks went by and I was diagnosed stage 2A.

Main fact I learned you must be referred to and see someone who knows what they are looking at, even a consultant dermatologist may not recognise it.

Once I was referred to plastics things really took off and I was told a lot more and there were still invasive cells present 6 weeks after the first op, so another excision and then 4 weeks later a small amputation and node biopsy.

I was assurred that It is not uncommon to feel tired and have other symptoms when first diagnosed as I did also and this is partly panic, once I was more informed and calmer these eased.

I can only wish you the best of luck with your diagnosis and treatments.

Rick

 

  • Hi Rick,

    Thank you for coming on the forum and giving details of your experience. Subungal melanoma isn't common so it's hard to find patients here who have had experience to share with those who are awaiting diagnosis (I'm a subcutaneous melanoma patient so I know others with subungal melanoma but I have no personal experience to share).  

    I'm glad your treatment so far has gone well and I wish you well with your second surgery. Tiredness & experiencing other symptoms is very common when first diagnosed with cancer. Every surgical intervention causes trauma to the body and the stress causes untold symptoms - the trick is to learn how your body responds to stress. I hold stress in my shoulders & neck which then causes pain in those areas & in my head. It took a clear scan & my consultant telling me it was stress before I understood. 

    Good luck & let us know how your next surgery goes,

    Angie (Stage 3)

  • Good morning RickyB,

    Thank you for sharing your experience. I’m currently awaiting biopsy results for my left thumb nail. 

    Congratulations on completing your treatment.

    do you have any thing else with regards to treatment or check ups now or is that it for you? How much of your thumb did you lose? 

    Xx

     

  • Hi

    I have 3 monthly skin and lymph node checkups for 2 years dropping to 6 monthly for the next 3 afterwards. I did however get my proffesional medical re-instated which I was really worried about as it could have stopped me working.

    In the end I lost about 10mm off the end of the thumb, this is a lot better than it could have been, as I had started to consider a DIY approach. The entire nail is gone for good but that is where it was located.

    I also have a blue thumb which as far as my research has found could be long term as the dye used doesn't dissipate very easily from the injection site.

    Best of luck with the results.

    Rick