My son's chemotherapy is once every three weeks as j  patient and then once per week for the other two weeks.

So he finished the first in patient treatment on Wednesday and came in today for the bleomycin which took about an hour.

Next week he has the bleomycin again and then the following week is inpatient again.

We are learning as we go, today on the ride home he was sick, we were not prepared for that. So we have a protocol to follow now with the right things with us when we travel.

We had his head shaved today in preparation for mkre side effects, it's better his hair is short now so it has less impact when it falls.

Jazakallah for your duas, you're right that it doesnt stop us spending time, or doing things we like, just need to make allowances in time.

Take care, hope you are well in yourself. 

 I think it gets easier as time passes. At the beginning it’s all a bit of a shock. However, you find ways to cope. I find when I’m playing with my children or doing other activities I just don’t think about the illness. I guess we just have to take our mind off it as much as we can. I find the battle is more psychological than physical sometimes. And reading survivor stories really helps. You probably need to keep your son as busy as you can so he doesn’t think too much about the illness. Maybe try to make life as normal as possible with routines. I sometimes feel that if I let it the illness would drive me mad, but I can’t let it. And I find the hospital staff so supportive. I also find going to the park or walks down by the river helpful. I think being out in nature has real benifts and I love this time of year and the approach of autumn. I did an English degree and I love reading. Books can be a real comfort and a help. They can not only take us to other worlds but help us value and appreciate this one. I believe we all need stories in our lives and they are part of what makes us human. I just want to add that I have been praying for your son.