Well, this is rather inconvenient!

Or, as Terry Pratchett stated when diagnosed with Alzheimer’s “What an embuggerance”.

Right out of the blue, I was told in A&E that there was a mass on my brain after having reluctantly been dragged there by the paramedics. My reaction of “I really don’t have time for this ****, I have too much grown-up stuff to do” was not exactly what they expected.

Several weeks later, I’m back home with the tumour “debunked” and commencing radio and chemotherapy in two weeks time.

Yup, let’s take off, nuke the site from orbit, it’s the only way to make sure...sort of. Looks as though they want to go full NBC warfare scorched earth policy on this one. Glioma - Astrocytoma - Glioblastoma. I’m going to feel like crap afterwards, aren’t I? Do you want to talk numbers, the oncologist asked. 15 months average. Are you ******* kidding me? This is just not on. Anyway, I’ve decided I’m going to live a long time or die trying, after all, I have an 89 yr-old mother with an amputated left leg to care for and a brother going through a mental and emotional meltdown.

I realise this is all deadly serious and I’m being extremely flippant about it, but all this has happened over such a short period of time that the gravity of the situation may not have registered yet.

  • Hiya, sorry for what you've went and will go through. I was diagnosed just over a month ago, I'm the same unsure if it registered, but I deal with it with humour and positivity.  Sometimes my mates look at me as if to say did you actually just say that.

    I may crash and burn at any point but like you I have adulting to do also.

    Big squishy Scottish hugs coming your way, xxxx

  • My God you're brave. I wish you every drop of good luck in the universe.xxxx The same to Annemcc too. xxxx

  • That’s really kind of you to say so. I wouldn’t say that I’m brave, though, it’s more that I’m just extremely busy with other stuff for it to take over my life. Mind you, that all might change when the radio and chemo  start on the 15th. Difficult to say. Am I living in denial in the meantime? Possibly, I don’t know. As Annemcc said, I may crash and burn at any point, who can tell?

    Sending, strength of spirit, “positive waves” (Oddball -Kelly’s Heroes), Bright Blessings and Love and Light to all.

  • Hi low, if everyone had your and Annie's attitude (i spelt it right) the world would be a better place, there's to much panic and rushing about, last minute jitters (i don't know what it means it sounds right though) I've been diagnosed non curable over three years ago i still enjoy myself though I'm getting past it now, age doesn't help when you want to have fun,. Keep up the attitude you'll go far as long as you don't get arrested,. Good luck and watch you don't step in something squishy, (i think thats a word)

    Billy 

  • Hi Anne, thanks for the hugs, the squishier the better. Going in tomorrow for some kind of CT scan and getting my Hannibal Lecter mask made for the radiotherapy which starts on the 15th. Going to get nuked five days a week for six weeks in addition to temozolamide tablets once a day. 

    The tablets sound less fun than being nuked from the side effects I’ve read about. Three weeks after the operation and feel better than I ever did. That’s not going to last once I start the therapy, is it? Still haven’t told mum, my brother or the rest of the family about the prognosis. Don’t really believe it myself. I’d rather set myself on fire than have people feel sorry for me. 

  • Hi jwp when i was diagnosed i was worried people would change there attitude around me but nothing changed, family, friend?? Work mates every thing was just the same it was marvellous, i was very worried you here stuff about people not wanting to know you and things, hope you're going to save the mask use it when nucance callers come round,best wishes. 

    Billy