First timer

Hi everyone.

This is my first post to the forum. My husband was diagnosed with prostate cancer last week. Luckily it is in the early stages and we are now deciding what treatment to have either robotic surgery or radiotherapy.

Life is very strange at the moment as he had no symptoms at all. My way of describing it is that we are Ok but we are not. We have suddenly entered this world of levels,blood tests,urine tests,hospitals,referrals etc.

Its all a bit scary but I know we will get through it. 

Thanks for listening.

 

  • Hi sherbet welcome to the forum the club nobody wants to join, I've got advanced pc. But I know other more like your husband, there's [@woodworm]‍, [@telemando]‍ to main ones to help you.

    Billy

    P.s psa, gleason score would help 

  • Hi 

    I was diagnosed with prostate cancer some years ago now. Because mt psa was considered high at 70, I was offered hormone therapy followed by radiotherapy. The treatment worked well for me and my level dropped to 0.01

    Like your husband I had no syptoms. The only thing was everytime I helped my wife with the washing up and I heard water splashing in the metal sink, I had to run to the loo. My wife made me go to the GP and in doing so probably saved my life.If it is caught early these days, there is a good chance it can be cured so please take heart from my story and I wish you and your husband all the best

    Please let us know how your getting on as we can all help each other on here, Brian 

     

  • Hi Billy. You certainly hit the nail on the head with your comment about the club no one wants to join. Sorry to hear about your advanced pc. 

    Thanks for the info as well. At the moment its all very bewildering. On the positive side the consultant did say he wasnt worried and we have until October to make our minds up what treatment to have. 

    I already know what I would do but was "politely " told its not happening to me. 

    Sending you big hugs.

    sherbert

  • Hi 

    Thank you so much for your reply, it means a lot. The only reason my husband went to get checked as there is a history of pc in the family. To be honest we were blase about it, little did we know.

    The consultant isn't particularly worried as we have until October to make our mind up which path of treatment to take. We are going to gain as much info first. 

    Everything just seems a bit bewildering at the moment but its early days as we only got the diagnosis on Tuesday.

    Glad to hear your well and it shows there is a light at the end of this place that nobody particularly wants to be in. 

    Thanks for your good wishes 

     

  • When you get information we can give you a better idea of treatment side effects from personal experience which is better than a piece of paper, most people on here went to doctor for something else and got a surprise not a good one either just like you,., it looks like your going to keep your eye on him, i know it's cheeky but can you let us know how things are going,. 

    Billy 

  • Hi Sherbert,

    We all want to glean as much info as we can but may I just recomend you stick to well known sites as there is a wealth of missleading info out there as I found. Some American sites were I found to be the worst as they want to channel you into their own treatment ragime as they have made a lot of investment into particular machiens etc. so they dont give independant information like most do. 

    You will feel better once you know the full facts and treatment starts. Its always a worrying time when you are first diagnosed. But if you have any questions pleaaase feel free to ask away for thats where this site helps so much as we can often give answers the doctors cant as we speak from experiance.

    Take care, Brian

     

     

     

  • Me again.

    Don't be daft course its not cheeky . You made me smile with your comment it looks like I'll keep an eye on him. 

    We have been married 38years and are totally different. I'm a chatterbox and want to talk where he is quieter and more reserved. i know people deal with things different ways . And I suppose the consultant had a point it isn't happening to my body. 

    I will keep in touch and thanks a million for replying.

    Big hugs

  • Me again.

    I've promised that I will NOT go on Google. I agree it would scare me to death !!! My husband will not make any decisions till he has gained all the info. We have the luxury if you can call it that of four months. Just hope we get the refferals soon from radiotherapy and the hospital which carry out the surgery.

    Thanks once again for the welcome and advise. I will keep in touch.

    Take care

  • Hi Sherbert

    I used to be very quiet unless I knew people well but something happened during the third radiotherapy. I dint know why but I changed overnight, just like someone had found a hidden switch. I suddenly was able to talk to others going through the r/t and a group of us became good friends. It was almost as if we bacame like family for the 7 weeks. 

    I am pleased with the change as I never liked being as quiet as I was. I would never have joined in a group like this and joined three diffent cancer charities. I felt I was so lucky to have had such a good result, Brian

  • How did they confirm, what Did he have biopsy or scans, bone, mri, ct etc. Hope you get all the info you want to make the best choice, i know you'll tell him what you think, but you want to be careful of after effects,. As well some can last a long time,. Best wishes and good luck.

    Billy