Thank you so much

i can’t sleep for thinking about receiving bad news :(

Little update on my scan

she said my bladder wasn’t full enough for the abdominal to be clear. Transvaginal was hard I had to lift my bum up so high I was doing a crab almost lol! She had a look around both sides, she took measurements of a grey circle on my right side, but not my left? Was she measuring my ovary? She said ovaries looked okay but she was whispering to the other nurse while I was getting dressed so that was weird. And kept saying I need to wait for the specialist in 5-7 days when I asked more questions. Frustrating but I understand it. 

Im getting much more pain in my right pelvic area and back, the pain under my ribs is getting worse too but it’s not constant like the pelvic pain. 

I just want answers :( 

any ideas what she was measuring? And why only one side if it were ovaries? 

Hi Joanne, sorry to hear that you are experiencing more pain.  At least the scan is out of the way... one step closer to finding out what’s causing the pain.  During my ultrasound & internal scan they measured the womb, the cyst and a few fibroids. Could really have been anything that was measured during your scan today so please try not to worry too much (I know that’s easier said than done!). Hopefully you’ll get some good news from the specialist next week!

Thank you for your reply! 

They only measured that one thing which has got me thinking it’s not great. 

The pain is is so bad I may have to make an appt tomorrow it’s horrible

how are you doing?x

I’m doing okay, thanks.  Just waiting for a letter for my next appointment - waiting is always torture but I know there’s a bumpy road ahead so trying to enjoy this time when I’m feeling good (it was a massive relief to have the huge cyst removed & I’ve now recovered from that surgery).  I could almost convince myself that there’s nothing wrong with me :)

Did you make an appointment today to see about the pain?  

I’m glad you’re feeling so positive :) and you recovered well! 

No I had all the kids and then work, the pain eased off but it’s still there and I can feel a lump on my right side of my groin still. I feel like I’ve been kicked in the moo lol I also started spotting while I was at work. 28 days into my cycle when usually I’m 35-37 days so I’m not sure if it’s the start of my period or something else. Time will tell. Just spoke to my aunt and told her and she told me she also has numbness in the tops of her legs like I do and everything I’m feeling she feels the same. But it still could be fibroids or something I’m hopeful about that. Something definitely isn’t right I know that much. To be honest if she didn’t have ovarian cancer I wouldn’t have asked for that test as I didn’t know the symptoms I was having were related. So I owe her a lot! 

Im going to call tomorrow to see if they have my results yet. If the pain is getting worse I’ll book an appt too but it’s so hard with 5 kids on school holidays :( sorry for the rant I’m just constantly thinking about it it’s taken over my life

They called me at 3pm saying the doctors needs to speak with me so said I have a telephone appt next Tuesday I asked why it wasn’t a regular appt and she had a look and said one had just come available for tonight so at least I don’t have to wait four more days

Hi Joanne, I know what you mean... these thoughts are all consuming - I’m finding that work is a welcome distraction! I don’t have kids so can only imagine how difficult it must be to go through this while looking after little ones.  Glad to hear that you didn’t have to wait long for the ultrasound results though.  How did your call with the specialist go?  x

I saw the gp last night,

Well it was all a bit of a kerfuffle. She got the blood and swab tests up and was talking about those and I said that I’d seen her already for that and that I was there for my scan results. Then she couldn’t remember the password for the system so had to ask reception to print it out which was handy as she let me keep it. She said it’s suspected adenomyosis as there’s a mass in my uterine wall, she couldn’t tell me the size or how deep or how bad it was etc she even had to google it to see what it was. It’s when the Endometrium layer starts growing into the uterus muscle wall. They put on there that I have irregular periods and heavy bleeding with it but I don’t which is annoying as that would have contributed to the suspicions. I told her about the pain I’m having in my groin and the numbness in my legs but she just went mmmmm mmmmm yeah that’s for the gynaecologist to talk about. So I still don’t have proper answers as she couldn’t even tell me what the gyne would do like more scans etc. She said it can be managed by the pill for the heavy periods (which I don’t have) but there’s no cure besides hysterectomy. I’m still waiting over two weeks for this gyne appt so I’ll be calling them Monday as I can’t keep waiting like this.