Angry, upset and feeling let down by the hospital

Not sure I know where to start and I'm writing this through tears. Haven't stopped crying all day. 

Firstly I need to advise that my mother in law recently died. My sister in law died this time last year of cancer and my sister bless her will be starting chemo shortly. My oldest and youngest are sitting important exams so you can imagine the stress we were under before all this hit. 

Anyroad up I was advised following an ultrasound, ca125 at 167 and various weeks of waiting that it was highly likely that I had ovarian cancer. As such though I wasn't happy about it I had a full and radical hysterectomy. 

Fast forward 10 days in a post surgery meeting with the surgeons that this was indeed cancer and advised of the staging. Ultimately on the back of this diagnosis I put a critical illness claim in. I asked everything several times over in order to take everything in and neither myself or my husband were in doubt. 

Week later I receive a general call from hospital after my wellbeing they mentioned that this is half way between cancer. Given the information and diagnosis  in my post op meeting I asked for full clarification to then receive a call from the cns to advise its not quite cancer but isn't cancer. Confused - so am I. Received a further call half hour after that to advise oh sorry its not cancer at all. 

Had I not put the claim in I would have gone through the rest of my life thinking I had cancer. 

Just how can they do this to people. The stress and upset is disgraceful and unimaginable. The stress and upset this has caused my family is horrendous. The school called me about my youngest to advise me that he had been caught googling depressed and don't want to live. As you can imagine this just broke me. Poor lamb was worrying so much. 

Sorry for venting but I feel I have no faith in the medical profession. 

 

  • Hi there ...

    Now breath ... o.k that's really bad ... and I can understand as I've had lots of things in my family .. everything from cystic fibrosis... Parkinson's... dementure ... then my cousin died of lung cancer .. now me and an auntie both got grade 3 Brest cancers within weeks .. plus loads more ..

    So I know what that does to everyone ... and yes they got it wrong .. nothing is 100% safe or get it right every time ... nothing in life can do that ...I'm so so sorry for going through so much ... that sucks ...

    But your o.k ... you've been given a life line ... you've got something really precious... time ... most of us on here have cancer ... what we'd give for a Dr to turn round and say .. hay got it wrong ... your cancer free .. I can't understand why your not shouting out ... with a huge smile on your face ... your o.k ... 

    So yes , thankfully you've got those words we'd give our right arm to hear ... so go and grab life by the short and curlies... run with it ... get your babies and give them the biggest hug ever ... and show them your not depressed any more ...  Chrissie x

  • Hi thanks. 

    Think I'll get there, it's been a shock and I know that hospitals make mistakes. I'm still reeling from the last one where I had to have an abortion as following an ultrasound they advised it was ectopic to then come to me and say oh sorry we made a mistake it was a cyst. Never mind better luck with your next pregnancy. 

    It's the cover up and the lies I feel let down by and quite honestly I might be able to shout from the rooftops if I actually trusted the twice revised diagnosis. I suppose time and faith in myself and hope will get me through this. 

     

  • I can so understand that ... you've had a really rough deal ... but I suppose l just always turn bad stuff around .. coz if you look for pluses,  you can find them .. that's how I was brought up ... life's knocks are there to help us learn a lesson in life ... I've had way more then my share of knocks ... but looking for the good in everything has got me through .. my breast cancer and masectomy .. and emergency op after .. .

    You know feel angry .. we all do .. but at a government that's cutting back so much.. everything in the N H S is stretched to braking ... no wonder they get it wrong ... it's a bit like a house of cards .. it's gonna come crashing down... if it carries on ...

    Any ways ... I hope you can find it in you now to feel calmer ... those kids need their happy mum back .. 

    Chrissie x