Dermoid Cyst

Hi,

So April 2018 After 4 years of Doctors visits with Heavy, very painful periods, pain in lower back, hip and down my left leg (much worse when I walk) they finally refered me to a gynecologist, then in July 2018 i had a scan to find out i had a large (10cm) cyst on my left ovary, which would need to be removed, I then had to wait till November 2018 to be told it was a 10cm Dermoid cyst and right tube blocked. Which i would be put on the waiting list to have it removed.

Almost a year has gone since the first scan in July and I've had 2 letter to say I'm still on the list but it's going to be longer then expected, I'm worried if the wait is too long it grows or causes more problems, I'm still having alot of pain. I've been to my GP and I'm told there isn't alot they can do for the pain I'm having to wait for the Op, it feels like it's taking forever, I am so worried I can't sleep, in so much pain when walking.

  • Wow I’m shocked!!  I had exact same diagnosis and was operated on within 48hrs, good thing too because unbeknown to any of us as none of the scans showed anything and no symptoms but I ended up having the cyst removed and some bowel due to them finding a small amount of cancer there.  Apparently that was the primary site of the cyst.  Not trying to scare you but I would push harder to be sorted out.  My cyst was also same size, I was in terrible pain and could not go to the toilet At all.  Best of luck x

  • Thank you for your reply, I dont know what else i can do, I've rang countless times to be told the waiting list is long, they can't say how long it will take. Ive also been into my GP too, and I'm told the same thing, I am very scared and worried, scared more then just the Dermoid Cyst will need to be removed. In alot of pain also. I urinate alot but extremely constipated. X

  • I think you need to take yourself to A&E I know it's always s long wait but it may force them to take a proper look and do something.  That's my advice if you in a lot of pain and worrying.  Truly madness!  So sorry that you going through this. Please let me know of any progress x

  • Hi had the dermoid cyst removed on 3/10/2019 they also had to remove my ovary, double in side they first thought, but they managed to unblock my right fallopian tube, they also found endometriosis which they also removed too, 2 days later I am home, feeling very sore but just glad I have it over with, and my chances to conceive is still high! :) 

  • That's great news thank you for the update.  Now be kind to yourself, recovery well and enjoy life xx