Hi I've just started on this site so I'm new at it and not very good at taking . My husband was told the same that he has esophageal cancer and it's in the stomach as well last May 18. He was going for his operation only to be told he's to weak for it. I'm so trying to not cry and be strong but it's hard. My McMillan nurse has been great for us. Have you been referred to one . If not ask them to do it. My husband nurse has been great . I'm also thinking the same how long have we got together.  We have been married for 35 years and never been a part he's my world. We do everything together.  My husband as finished chemo and radiotherapy treatment.  Please phone the hospital and ask to see the doctor and  get everything explain  to you both. My heart goes out to you and your family.  Sorry I'm no good at spelling. Sending lots of love.  Nobody knows how you feel until they are going through it xx

Thanks for your reply. I need to get in touch with Macmillan next week. Hopefully we will see someone atvthe hospital next week to explain everything to us. I'm so sorry you are going through the same. I just feel broken at the moment.

Hi sweet.

I thank it  helps to speak to someone who is going though the same thing.  Me and my husband took our doughter with us to appointments so she knows what's happening as well. But also if we not heard something right. She puts us right on what they have said. We don't like to ask her to do to much as she busy with her young family but she says she wants to be their. I'm going back to work next week but dont to leave my husbound.And I feel the same as you broken,sacred, not knowing what's happening.  I feel I've left everyone down. I keep reading up on things about this cancer and just end up crying. I try not to cry in front of him. My dogs know somthink going on as they follow him everywhere around the house. Let me know how you get on. 

Lots of love take care 

Just reading your post breaks my heart all over again. I am trying so hard to stay strong and not cry in front of John but it's so hard. He just said to me that he just has nothing to look forward to an never will again... how are you meant to stay positive with that he is trying to be practical and sort out all hi pensions for me and even said where he wants to buried. I am finding it so hard to be strong for him. But I know I have to. 

I hope things go ok going back to work. I have a couple of weeks off but will have to go back financially an even the thought of leaving him for that is breaking me. 

I just want to wake up from this nightmare. 

Hi sweet

I know how you feel. I'm crying all the time . I just don't know what to do when it happens. I think this feeling we have will never go away. I don't know how I'm going to cope without him. The McMillan nurse aked him to thank about his end of life care and about what he wants to happen and Getting things sorted in my name . Its a nightmare I feel I'm never going to get out off. My daughter says come on mom be brave and stop crying. I hope I've helped you with writing on here . Its been nice to get my thoughts out to someone who is going through the same thing. Good luck to you as well when you go back to work. I'm only going back because of the money. Make sure you get the benefits your husband is entitled too. The McMillan nurse will be able to put you in the right direction. I would not have had a clue without their help. They been fantastic. Thinking of you and love to you both.

Xx

Hi Niki,

My father (65yrs old) was diagnosed Nov 18, we received similar news - See my info.

If you have any questions please fire away & I'll be glad to answer - Please don't think the worst due to the 'Palliative' label they have given you both. Some people, like my father have done fairly well so far despite an advanced/ inoperable diagnosis.

I'm so sorry to hear about your husbands recent news.

Regards,

J

Hi sweet

Sorry to hear about your father. When the McMillan nurse came last . We thought does she know something we don't as she said we need to do the end of life care now so they know for the future I know its been year. Is it to soon to be for making pains like that.

Xxx