Hi Jay, sorry to read about ur diagnosis. There's never a good time to be told you have the big C, but as long as it's discovered & treated early enough, it's definatley curable, so now we call it the little c.

Papillon treatment is for rectal cancer as the machine they use to administer it gains entrance through the back passage. If the tumour is more than 3.5cm in size, it has to be shrunk by means of EBRT & u usually get a course of chemo at the same time. There is a video of the Papillon procedure on YouTube. I'm not medical, but I have had the treatment myself 17 months ago, so I know how it all works. From what u have said, it sounds to me like u have colon cancer & that is why u are being offered surgery, where the infected park of ur colon will be removed & then they reattach it. I have 2 friends who both have had this operation done & are still here after 3yrs with no reoccurrence. One was stage 3 & the other stage 4. Surgery is always the gold standard offered at the moment in this country, as this has the highest success rate, I hope this helps & I If u need anymore info I will try & provide it for u. 
 

S

Hi S

I've just been diagnosed with rectal cancer and considering papillon therapy. Can you please share your experience and was it successful. They recommended permanent colostomy as the tumour is very low in rectum but would prefer alternative treatment.

Chetz

Hi C,

sorry to hear of ur diagnosis. I hope I can be of some comfort & help to u. I had papillon treatment in Sept 2019 & up to press it has been a success. I had to have EBRT with chemo first though as my tumour was 5.5cm in size & classed as a T3N0M0.
Have u searched for this on YouTube? There is a video about it there & the papillon website has several peoples experiences on there to read. Please feel free to ask me anything u wish to know about the procedure.

M

Chetz 

I am sosorry i didnt reply earlier have just logged in.

Hope everything went well for you.  I have just had latest results and all waswell 3 and half years on. just signs of scaring from the papillon.

best wishes

sue

Cant believe its thattime again. due for flexi next week and scans to follow always a worry but fingers crossed. 4 years since end of treatment

Good luck, hope it all goes ok. I'm at 3.5yrs & was told if it was going come back in the same spot it would normally show within 2yrs. They just check us for 5yrs because that is the belts & braces standard to make sure there is nothing else going on.

Thanks so much for the reasurrence. try to put it to the back of my mind but its always worrying when check up time comes round. will let you know

Thanks so much for the reasurrence. try to put it to the back of my mind but its always worrying when check up time comes round. will let you know

results said ill defined abnormality = site scar tissue with slight inflammed mucosa at edge

have no idea how bad that is. they took biopsies so will wait to hear.  all a bit of a worry

Fingers crossed it will be nothing to worry about