Papillon Treatment

Hi I was diagnosed With anal cancer six weeks ago and I am looking for advice from anyone that has had papilion treatment or anyone that has information on it .I am awaiting an appointment .The hospital I am at have advised a Colostomy bag and seem anti papillon treatment but would still like to explore this option. 

Many advice would be appreciated and any one who has had it good or bad out comes .Just need some opinions ...feeling a bit lonely and scared as hell .

kind regards

J x

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  • Hi J,

    I am sorry to hear of your diagnosis and totally understand it is a worrying time.

    I had T2 anal cancer and the tumour was around 4 cm. It was therefore recommended that i have chemo and radiotherapy at the same time and this was successful. I also have a friend that had the same cancer and treatment as myself and hers was successful also, hers had spread into her lymph nodes.

    As far as i understood it the type of tumour, yes there are different types of tumours you can get in your anus, the size, and locality within the anal canal determines whether chemoradiotherapy is an option before surgery is considered and the inevitable colostomy bag.

    I would therefore ask why Chemoradiotherapy is not an option for you, it cannot just be that they dont like it, there has to be a medicall reason why this is not an option for you. If you are able to have the treatment it is a chance to get rid of the tumour without surgery and so you should certainly ask and understand why this is not an option for you.

    I am happy to discuss further if you wish.

    Jules

  • Hi Julesb

    I hope ur well & reading this. Can you tell me if you had the Papillon contact radiotherapy after chemo radiotherapy or was it just the chemo radiotherapy. Ta.

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