So so scared

Hello all, 

I found a large lump on Saturday, I thought about the size if a grape, but I've seen the GP this morning and it seems to be much bigger around 5cm diameter, doctor says its smooth and moves slightly which is good but she's concerned as its hard and not painful. Have been referred to the breast clinic. My husband came with me and he is a fantastic support but I am so so scared. I just can't stop getting this awful panic feeling. I'm so shocked at how big it is, how have I not noticed it until now. My head is spinning. I really don't know what to do. 

  • Good morning, I found a lump (10mm apparently) one evening so next morning called the gp. I got am immediate appointment and was referred to the hospital. My gp said she didn't think it was a cancer as it was round, smooth and wasnt stuck. 10 days later I saw the consultant who agreed with my gp but i had a mammogram and ultrasound, this ruled out a cyst but couldn't say either way so I had a biopsy there and then, it was described as a possible fatty lump or blocked milk duct. (I'm 51 btw). I wasn't worried at all and attended 1 week later for the results. My world was rocked when I was told it was an invasive ductal carcinoma and I would need to have a lumpectomy, however it was decided to do a deeper biopsy 1 week later. I got the results 2 weeks after as I was on holiday and got the shocking news that I also had a ductal carcinoma in situ that was all through the breast so needed a mastectomy. To cut a long story short it has taken 2 whole months from original diagnosis to my operation and that time felt like forever. I imagined all sorts of things including pains which I'm certain were in my head but you can't setup them. I opted for the DIEP reconstruction whichI had last Tuesday 11th June. Don't bottle up your feeling, talk to someone because what you feel is very important. Good luck I am proud that although the wait seems like forever there is light at the end of the tunnel x

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    Hi Jennifer,

    There is no point in contacting the consultant's secretary until the 2 weeks are up. All hospitals are under pressure to see patients within 2 weeks and most manage to do this, provided your GP has referred you as an 'urgent referral'. If she hasn't, it could take quite a lot longer.

    The hospital quite often leaves it to the last minute to contact you. Sometimes it is by letter, but it is also frequently done by phone.

    I'm afraid that scary though it is, most of us have to wait 2 weeks, so you're still in with a shout if it's only been 8 days so far.

    Kind regards,

    Jolamine xx

  • Today I had my appointment, two weeks exactly since seeing the gp, I was all geared up, but posative it was nothing serious. I waited an hour past my appointment, I went to enquire if there was a delay, but they had missed me, they called me a few minutes later and I was given a quick check over, doctor said it wasn't likely to be cancer, more likely a cyst and he would book me for a two week scan. I was very upset, I had been told by my gp and read on the website that it was a one stop clinic and all the checks would be done today, I might not get the results today, but tests would be carried out on the day. We left and I was so upset. Relieved the doctor didn't feel it was serious but would have liked to not be looking at another two weeks before getting a scan, biopsy etc and full confirmatio.  We did go back in because we both felt we had been squeezed in and shoved through, and the doctor did agree to see us for a chat. He has reassured me more and put my request through as urgent. I know the NHS is under Huge pressure but if it had only said on the letter that I may not have scans on the day it would have been so much better. We prepare ourselves for things like this, here's hopi g I can get another appointment quiet quickly. 

  • Thank you very much for your reply, so sorry you have had such a rough time, I hope you are on the road to recovery. I've just been to the breast clinic today and didn't have a great experience. I have posted about it below. I'm do upset and confused. My gp said she didn't think it was a cyst as it was hard, but the doctor today said he thought it was, but I now have to wait for another appointment for a scan. X

  • I'm so sorry your experience was rubbish, it's the worst feeling I know. I have remained positive throughout and although my results were not what I expected that's no reason yours won't be. I am thinking of you and my fingers are crossed. Anytime you feel the need to let of off steam just type away. I'm always listening. Please keep me updated x

  • Thank you very much, it means alot, and I will, I feel like such a worrier to my family, so  just try to keep upbeat,. Thank you  

  • Hi Jennifer,

    I am so sorry to hear that your appointment today was so disapointing. I am glad to hear that you went back in to chat to your consultant and, that you felt more reassured after that.

    I have had several tests throughout the past 10 years.and know how devastating it can be when your expectations don't come up to scratch

    I sincerely hope that you get your next appointment through before 2 weeks are up.

    Kind Regards,

    Jolamine xx