Mum and metastatic breast cancer - Struggling to cope

Hi 

In April 2016 my mum was diagnosed with metastatic breast cancer which had spread to her lymph nodes, lung and bones.

She was given 12 to 18 months. The first month was really bad but she was put on this trial chemo drug along side hormonal injections.

This was a godsend as she responded really well, the cancer even shrunk in places. However last year she had to come of the chemo as her white blood cells were staying too low in between cycles

They kept her on the injections only, this went on for 7 months and seemed to be keeping everything at bay. Her last scan in January showed the growth on the lymph had grown 2cm. The doctor said he wasnt concerned about this but wanted to put her on new drugs to try and reduce the cancer rather than just contain it.

The drug if choice was Afinitor and Exemestane ( has anyone had experience with this) shes been on since March and her scan is due for June. Shes been having monthly check ups and everything seems ok

However the past few weeks shes been pretty bad. She caught a cold shes struggling to shift which has lowered her appetite alot and her arthritis in her leg has gone pretty bad.

Now theres a good chance it's all a unfortunate coincidence but I'm just thinking the worst.

I've never been this worried about her, I'm struggling to sleep, focus at work, eat and go to the gym which is a big hobby of mine.

I'm going on holiday in October and getting married next year in June and just can't face it that shell be too I'll or not even here. I just need reassurance and dont know where to turn. Not sure why I put this all here but I'm really at a lost end right now 

Sorry for the big post and thank you for any replies 

  • Hi Rob don't worry about long posts sorry your mum is struggling with a cold im afraid i have no ideas but hopefully someone will notice and reply, I know it helps to write about the problems get it into the open a bit, best wishes.

    Billy 

  • Hi Rob

    I can certainly understand that you are feeling very worried and anxious.  A good place to go is her breast cancer nurse. Or you can always have a chat to her GP. GP's can be very helpful in this situation they are very happy to talk with family members and may offer you some suggestions regarding food. With cancer the appetite changes, its normal. Sometimes she might fancy a fish and chip then the next thing she will want porridge. I wouldnt worry about that so much. The main thing is to get shut of this cold. Her immune system is not as good as it should be so try to focus on getting her well. If she cant get to the GP book a home visit. You become a VIP if you have cancer and GP's will come every day if you need them too. Maybe he can offer some medication to get her back up to speed again. Let me know how it goes. K

     

  • Thanks Kynren 

    She was put on antibiotics to shift the flu like symptoms which has helped but shes still coughing up flem, her main pain right now is her arthritis.

    She had her monthly check up yesterday and she had a different doctor who was apparently quite blunt and rude and disregarded the flem. She gave her an abdominal xray and took blood then sent her on her way!  Very frustrating, wish I was there.

    I spoke to her on the phone and again shes barely eating. It's been like this for weeks now and I cant see it improving I just dont know what to do. 

    I know it's hard to tell if the afinitor is working until her scan results. 1 mind says it must be if she hasn't been on the original meds since January, the other suggests it's not with how she's been recently 

  • Hi Rob

    Does your mum live far away? Is that fact telling you she is barely eating a call for you to see her? Can you go to see her ths weekend at all? You mention she phones you. Is there any way you can set her up with Facetime? That is what I did so I could see mother for myself on a daily basis. What about your mums visitors, neighbours? Can you confide in them to update on the situation. I so understand the frustrations if you live many miles away. Mother was a ferry ride plus 200 mile on top of that. Do you have any siblings that could help you?

     

  • my wife has secondary breast cancer, lymph nodes liver and bones

    she has been taking LETROZOL for 3 months and ALL the surface tumours have gone, found out with a routine ultrasound...confirmed with a CT......there are some tumours remaining inside her liver, but it’s promising......going for a full body MRI tomorrow to see if the remaining tumours have been reduced.

     

    LETROZOL  has extended her life span......wasn’t offered initially by the consultant, only when we asked what else there was to help......her main problems are severe fatigue sleeping a lot really bad nausea...

     

    she weras an aspen vista collar 24/7 for a neck fracture.....which is a constant pain to fit and causes her neck sores......