Bladder Cancer

Hi everyone, 

I am new here and really don't want to seem insensitive to all of you. But, I haven't officially had a diagnosis.....

So I finally went to the GP as my urine had been a strange colour for around 2/3 months now, I initially blamed this on the vitamins and supplements that I was taking. So, I stopped taking them for three weeks to allow then to fully go out of my system but my urine was still a funny colour. St this point I had started drinking 3ltrs of water each day (Too much, I know)

So I take a water sample whilst waiting to be seen, I see the GP, he dips my pee- clear, clear, clear oh..... erm... (concerned look on his face) you have blood in your urine, he sat back down and said its probably a UTI i will give you 200mg antibiotics for 7 days then you must come back in 3 weeks to be retested, he also put my urine in a bag for me to take to the receptionist to be sent off. 

After looking online I realise my off coloured urine is actually bloody urine and am now very worried. I am very paranoid thinking a lot if the things I feel with my body is indeed an indication of bladder cancer. I feel a pressure in my lower left abdomen quite often but not all the time, from the inside it feels st though there is a little ball in there. 

Sorry if this post isn't okay with not being diagnosed but I am scared. Can I ask what did you feel before you found out? Could you tell that there was something there that shouldn't have been? As it blood in urine? A lot a non visible? 

Thank you x

  • It was great talking to someone of my own age that had been through it. It has given me a lot more confidance .

    Ronnie

  • Hi Minska just had a call from the cancer nurse and my ct scans with contrast was ok and the tumar is still in one place. and not speading. So i get my bladder and prostate out on the 17th Nov.  Looking forwards to xman know. And the fishing next year.

    Regards Ronnie

  • Hi Ronnie

    Thats really good news for you, and a very quick date! Very glad you got such good scan results and everything can go ahead. You take care-it's a big thing to go through, but all the best for your surgery.

    It's good to have those goals to look forward to-keep them in your mind if things get tough! 

  • Yes i know it will be tuff but my lovely wife will be there to help me 

    Take care and i will let you know how i fair

    With regards

    From Ronnie

  • Definitely please let me know how it all goes-and I'm sure your lovely wife will take very good care of you. ️

  • Hello i went to see the stoma nurse yesterday one hour later i went for the fitness test IE had a ride on a bike ETC one hour later had a pre op test. Pleased i had all 3 in one hospital in one day as i live 50 minuets away. I must say i felt sick when i got home after what the stoma nurse told us. Especially about the 28 injections that has to be done after the op.My wife said she couldn't do it no matter how much she loves me So it's going to be up to me to do it. I watched a video on you tube about after the op when you get home and it's daunting to say the least. All the prep  you have to do changing the stoma bag ETC. My wife is taking it very badly because she knows i will be relying on her a lot when i get home.She is putting a brave face on for my sake but i know she is struggling inside. I feel helpless and feel so sorry i am putting her threw this. 

    Ronnie

  • Hi Ronnie

    You know something? I have never watched videos on YouTube about any of this stuff as the reality is likely to be very different and I couldn't see the point in it increasing any anxiety before I had any real life experience of it all. 
     

    I've had periods in my life when I've had to do the blood thinning injections for a month or more at a time.  It's a tiny needle, takes a couple of seconds and I wouldn't describe it as daunting at all. 
     

    Seriously, I'd give up on the YouTube videos as it seems to be upsetting your wife. Everyone has their own routine for dealing with stoma bags, and I suspect mine might not be anything like what you've watched online-these people who make the videos are out to gain views and attention usually. While you will need some help at the start, you soon get into the way of it and it becomes very straightforward and quick to do it yourself. I think you're worrying yourselves unnecessarily. For example you say "all the prep you have to do". I've no idea what this could mean and I have 2 stomas to deal with every day.

    For example, I am not as old as you but have bad mobility issues, and it takes me 30 minutes to shower, wash and dry my hair, get dried, change 2 stoma bags and get dressed. I just can't imagine what all the prep is you think is required?  I think you may be anticipating more difficulty than is actually involved in all of this. 

  • Well that told me and i let my wife read it which i don't like to let her do. I think the most worrying thing with my wife is if i get an infection. It's not like you can just phone up and ask for a doctor because that wont ever happen. She says it will all be down to her when i get out of hospital. We never had children and she has always looked after me. I am very spoilt. Probably because we have been through so much together in the past 46 years such as getting through prostate cancer x a leg bypass. and of corse my deafness caused by meningitis when i was a young lad.She has always been my ears so to speak. I take asprin and no one has told me if i have to stop taking it before the op. No one has told me when i can have a shower after the op. Nothing personnel but i need a doctor to answer them sort of questions. She will be phoning the cancer nurse up on Monday to get some answers. She got really upset when they told her she would b better of going home once i am in the doctors care on Thursaday.They said i would be going down at 10am but have to be there at 7.15am. That the op would take 7-8 hours i am having robotic surgery then i would be in recovery for at least 2 hours then the visiting time would be over. So no point in staying in the hospital which i know she would do if there was a chance of seeing me after the op no matter how long it took. She sat for 7 hours outside in the waiting room when i had my last op. Anyway you don't wont to listen to all that so i will dry up. Thanks for the advice

    Ronnie

  • Hi Ronnie

    I'm so sorry to have caused offence-not my intention at all. I appreciate you will want answers from medical personnel, but I was only trying to give advice based on my own experience of actually living with cancer and stomas for a long time. You must of course watch whatever videos you wish to, and I wish you all the best for your surgery next week. 

  • no ofence taken at all. please keep intouch with me

    Ronnie