Hi 

I am new to this forum but wanted to get some advice.  I ended up in A&E recently with lower pelvic pain causing me to vomit several times (had to leave my car at work and get my boss to drive me in).  To cut a long story short I recognised the pain as ovarian cyst pain having had an issue around 7 years ago - had xray and bloods taken given lots of painkillers and eventually sent home around 10 hours later to await an appointment for ultrasound.  The letter came and date was 3 weeks time so I decided to get a private scan in the meantime which showed a complex cyst around 6cm with septations.  Finally had my NHS scan 23rd March and they decided the cyst was 8cm x 6cm by 7cm and also has a solid looking area which wasnt shown on the private scan.  1st April I had a consultants appointment, they decided I needed keyhole surgery urgently due to the size - found out a week later that hospital is so overrun that July is the soonest urgent keyhole surgery can take place.  I had some bloods done before Easter which I just got the results from nearly 2 x weeks later and the CA125 is showing up at 36 which I know is not high but above the norm by 1 point.  I have suggested to my GP that we test again in a few weeks to see if there is a rise?  

I have been caught between the hospital and the GP with neither talking to each other - havent really gone into it but I have had to make 100's of phone calls chasing progress and making sure the hospital is updating the GP.  I seem to be the only person concerned with my own well being as the consultants registrar has labelled the blood results as all fine - am I mad to suggest a retest here?

I also found out recently that my maternal Grandma 26 years ago took part in the CA125 trials and as a result had a complete hysterectomy but doesnt know what the outcome was of the test only that some women in the trial went on to have chemo she did not though - does this potentially put me at a slighly higher risk?  I told my GP's PA this morning as no-one has even asked me about my family history and she asked if I was concerned that I might have cancer then?

Any advice would be appreciated

Thanks