Phyllodes Tumour

Hello everyone. I'm 28 and I've just had a rollercoaster of a journey with a lump in my left breast.

I had a lumpectomy to remove what the doctors were convinced was a fibroadenoma. It turned out to be a benign phyllodes tumor. I understand these are quite rare, fast growing (it was in my case!) and can regrow.

My pathology report showed that the tumor what removed entirely but, in certain sections, they were unable to determine whether the thin band of fibrous tissue abuts the surgical resection margin. I.e they weren't sure if there was a wide enough cut around it (presumably because they assumed with my age and health that it was in fact a fibroadenoma). 

They are reviewing my case today, but I have a relative in Canada who has told me that the surgical resection margin in 1cm around the tumor site minimum there to prevent regrowth.

On the basis that my surgeon decides not to re operate and just discharges me, does anyone have experience with regrowth?

I obviously put all my faith in doctors and especially my surgeons they have been wonderful. I just cant help worrying about a regrowth when my aunty (also a doctor) has raised concern about the pathology report.

Any advice would be appreciated !

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  • Welcome to Cancer Chat Mcvikki although I'm sorry for the reason you've joined us.

    I've had a quick look through the forum and found that [@HA1310]‍, [@sky_lights]‍ and [@Nansam]‍ have had experience of phyllodes tumour so hopefully they'll pop by when they can to offer their support and advice.

    I hope you don't have to wait too long to hear back now that they've reviewed your case but make sure you discuss any concerns you have with them once you've found out their decision.

    Kind regards, 

    Steph, Cancer Chat Moderator 

Reply
  • Welcome to Cancer Chat Mcvikki although I'm sorry for the reason you've joined us.

    I've had a quick look through the forum and found that [@HA1310]‍, [@sky_lights]‍ and [@Nansam]‍ have had experience of phyllodes tumour so hopefully they'll pop by when they can to offer their support and advice.

    I hope you don't have to wait too long to hear back now that they've reviewed your case but make sure you discuss any concerns you have with them once you've found out their decision.

    Kind regards, 

    Steph, Cancer Chat Moderator 

Children
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