I'm currently undergoing chemotherapy for a chondroblastic Osteoscarcoma of my Sacrum. It all started in Sept 2012 and they managed to put it to sleep with lots of chemotherapy and radiotherapy (also currently sweating my way through early menopause so feel for you). Apart from it metasising to my Lung in 2014 and having that removed, I've been doing pretty well. But unfortunately towards the end of last year my worst fears were confirmed and it has started to grow on my sacrum again. I'm currently undergoing more chemotherapy but I don't really feel any relief from the pain as of yet. I'm pretty scared if I'm honest. Terrified. I guess that's all normal though isn't it. :confused:.
thanks for replying! I didn’t think anyone would ;)This is the first forum I’ve ever joined and I felt a bit daft writing but I wanted to chat to people who just KNOW, who get what we’re going through.
Im 17 months cancer free thank God. But this week it all hit me again. It’s weird how the emotions come and go in waves isn’t it?
It’s totally normal to be scared. I read your bio and it’s amazing how brave you have been after everything you’ve been through.
The fear creeps on me randomly. I know what you mean about the loneliness. My sister has been a great support to me and my friend too but everyone’s like “it’s over now”. It’s not that simple.
For me I just keep putting one foot in front of the other. I pray. I meditate and try to focus on the moment. Easier said than done sometimes. Or I just watch Netflix and funny movies which usually works to cheer me up.
I’m sorry to hear about your recurrence and the pain. Haven’t they given you any painkillers? I hope the pain eases soon xx
I'm so sorry it has taken me so long to reply, my last round of chemo wiped me out. I spent my week off in bed for 4 to 5 days unable to move. Getting up I'd find myself falling over so needed someone with me when going to the bathroom etc.
I was like that when I wrote my first post, I thought it would just get overlooked so it was lovely to see a couple of people engage with me .
I'm so happy to hear that you are 17 months Cancer free and I sincerely hope that you're now Cancer free for the rest of your life lovely .
Oh tell me about it, your emotions don't half play havoc with you.
Aww bless you, thank you. I really don't feel all that brave. You're just as brave though sweet, you've done this journey and fought it. You're a warrior.
Prior to being re-diagnosed the fear would creep up on me when I lay awake in bed. Now it's always with me.
Oh doesn't that just wind you up, how when you've finished your treatment everyone thinks that's it. It's far from over. How annoying.
I like to pray too, it usually is just me having a conversation with the big guy up there but prior to becoming poorly I never really prayed, so I'm not very good at it. Talking to him comforts me though. Is there any right or wrong way to pray?!?. I think I need to give some funny movies a go. Maybe they will up my spirits, thank you .
Aww thank you, I really appreciate it. Yeah I'm on pain meds but they just don't seem to work that well. I'm worried that the treatment isn't working this time round as the pain is still there, it plays on my mind every sec of every min of every day if I'm not being distracted by the few visitors from time to time. Thanks again, I hope to speak to you soon .xx
