Just lost my mum to grade 4 brain tumour

hi.. my mum was diagnosed with a very aggressive grade 4 brain tumour on the 11th of December 2018. Prior to this she had only been showing signs of illness for 5 weeks it started with what the doctors were trying to say was a water infection and some confusion from mum. To which they gave her antibiotics. The confusion just got worse she wouldn’t make much sense in conversation and was very flat. She had what was her 3rd doctor appointment and fell whilst there they called a ambulance and that was the start of a horrible nightmare for me and my family. We were told on the Tuesday she had the tumour but wasn’t told until the Thursday that it was a rare fast growing aggressive cancerous tumour that they referred to as a butterfly tumour. We were told that the prognosis was weeks and the following Monday she was gone!!! Her funeral was on Friday and now I kind of feel at a loss it’s all gone so very fast so fast I don’t think I’ve been able to process it yet I almost still don’t believe she’s gone. It’s even harder to process because she was still so normal apart from becoming inconstant and muddling her words she didn’t lose a lot of weight was still active and didn’t complain of pain hardly at all! She was so very very brave right till the very end! I hope that I can maybe find some comfort out of talking to others that have been through the same or similar situations. Xx

  • Hi,

    I have a mum who is currently in what we believe to be her last few months. I saw this post was fairly recent and you seem to be in a bit of distress- i just wanted to reassure you the people on here have good hearts and will do their best to help you.

     

    Sending my thoughts and prayers to your family at this very difficult time.

    D x

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    Hi Sassy,

    I am so sorry to hear about the loss of your mum and offer my sincere sympathy to you and your family. You must be absolutely devastated to have all this happen so quickly.

    My mum had breast cancer for 12 years before it metastasised into her liver, lungs, brain and bone. She didn't have long at all after she got this prognosis. Unfortunately it was untreatable. That was 21 years ago and, although I have come to accept that she is gone, I still miss her every day.

    I have had 2 bouts of breast cancer myself in the past 9 years and, see a tremendous change between the treatment my mum had and, that which I have received. Hopefully, in years to come we will have treatments that are fully effective against this horrible disease.

    It is very early days for you still. You tend to still be running on Adrenaline up to the funeral. It is only now that you have a little more time to yourself that you can gradually come to accept that this has happened. I hope that you have a supportive family and friends who you can turn to. It makes such a difference when you can talk about your feelings and your memories to somebody else.

    We all take our own time to come to terms with grief and, there are different stages of this to go through.

    You will eventually get there, but don't try to rush yourself.

    I am always here if you want to chat.

    Kind regards,

    Jolamine xx

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    Hi Darcey,

    I am so sorry that you are going through this too. It is so hard to be strong and positive for your mum at this time.

    I just want to say that I am thinking of and praying for your mum and your family and, I am always here if you want to talk.

    Kind regards,

    Jolamine xx

  • Hi Sassy. . I'm so truly sorry for your loss and know exactly what you're going through. . I lost my mum in August after 7 weeks from diagnosis to passing. . And so the shock and disbelief is attached to such a sudden loss. . During mums battle I was relentless in seeing to that we did all we could do so was running on adrenaline and fear. When mum passed so suddenly I was shaking my head almost all day thinking how. . How.  She was here and well 2 weeks ago. . And after the disbelief subsided all the stages of grief set in and still is with me in full force.  Here I've found the largest source of support. . Comfort. . Advice and perspective. . It won't bring our mums back but you realise how our precious mums are not alone in their fate and neither are we. . God bless you and your brave mumma x

  • Hi Sassy,

    I lost my mum mid February this year six and a half weeks after diagnosis. Out of nowhere on Jan 2 she wasn’t herself physically and we took her to A and E and the rest went from there. She had very aggressive GBM that spread on both sides. She had a craniotomy and recovered so well. Aside from being unsteady and words sometimes being muddled if you were sat next to her chatting away on the sofa you wouldnt know anything bad was going on inside.

    She was due to start intense radiotherapy but her right side worsened over a couple of days and she collapsed and passed away a few days before treatment started. I was there when she died, it was quite traumatic and felt like a scene from  Casualty tbh. All in all an absolute shock.

    i totally get how you are feeling. It’s like my mum has just disappareaed, been kidnknapped. I still think I’m in shock. Since she has gone we have had mother’s day, what would have been her birthday and a Jewish holiday/Passover and they have all been terrible to go through. I miss her so much. Everyone says the firsts of everything are hard and they truly are.

    Our only comfort is that she didn’t really suffer as we feared she would over the coming weeks and months.... But it just feels so unfair. Stay strong, my thoughts are with you.

     

    Sx

  • I’m so sorry to hear what you’ve gone through. Reading all of what you put sounds so similar to me right now. I’ve just lost my mum. From her showing signs of confusion and being treated for a water infection with antibiotics, to her passing away was 7wks! Mum had a brain tumour and there was nothing they could do for her. I’ve no idea if she knew what was going on.. I don’t think she did. I’m utterly heartbroken. 

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    Hi Hea,

    Welcome to our forum,

    I am so sorry to hear that you have just lost your mum to a brain tumour. I send my sincere sympathy to you and your family.

    I lost my mum to secondary breast cancer which had spread to her brain, bones, liver and lungs and, know just how hard it was to watch her getting so much frailer, but not being able to do anything to help her.

    Do you have family or friends who can support you through this difficult time? Cancer can be so cruel, robbing us of our loved ones.

    I am thinking of you and praying that you get the strength to give her a good send off.

    Kind regards,

    Jolamine xx

  • My mum has been given 8 weeks to live. I’m finding this very hard to comprehend as she looks so well. I keep waiting on pins to when she is going to start deteriorating and what is going to happen . She has got Glioblastoma

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    Hi Bronnie,

    I am so sorry to hear about your mum. The unknown is always so difficult to deal with. We lost my father-in-law in February this year. He only lived for 5 days after his cancer diagnosis and it was heartbreaking to see how quickly he deteriorated.

    Instead of dwelling upon your mum's demise, why not try to make the most of each day that she has? Be there for her, talk to her, if you have any lingering questions that she can answer, ask them now.

    I feel for you having to go through this and, hope that you have someone who can help and support you through this nightmare.

    Do please keep in touch and let us know how you are both coping. We are always here for you.

    Kind regards,

    Jolamine xx