DCIS questions

Hi-I have just been told I have pre-cancerous DCIS. All medical staff have told me this is a positive thing. It's still a major blow-I went to the doctor with breast pain and this was picked up through a mammogram-on the other breast! I appreciate that I am lucky and my surgery will be a preventative measure, but it's still tough. I meet with the plastic surgeon in 2 weeks but just wondered if there was anyone out there in the same pre-cancerous situation! Thank you

Parents
  • Hi there

    I’m going tomorrow for a mastectomy as a result of DCIS. My surgeon suggested this as it’s quite a large area and I have quite a small chest. I am not having reconstruction and hopefully will not need further treatment. They will check 1 - 4 lymph nodes too. I’m 52 and this was picked up at my first mammogram in October. I’m a primary music teacher and had 10 nativities to play for before Christmas hence the delay.

    S

  • Good luck tomorrow! Will be thinking of you xxx

  • Thar's great news Oaktree.

    Keep us posted - irene xx

  • Hi-just waiting to be picked up after my lumpectomy yesterday! Feeling good!

    Thank you all for you kind words and support.

     

    Oaktree xx

  • Great news Oaktree. Glad it's all over for you and you're feeling good.

    Do you need radiotherapy?

    Irene x

  • Hi Irene

    Yes, I will get radiotherapy 

     

    xx

     

  • That’s good that it’s over. Have a good rest and let others do all the hard work.

    Sheila xx

  • Hi Oaktree 

    Start using a good moisturising cream to prepare your skin for the radiotherapy as soon as your wound has healed.. My doctor prescribed Isomol gel and I still use it now.

    I had little reaction to the radiotherapy after using it.

    Moisturise, moisturise and moisturise is the order of the day now!!

  • Thanks Scottie-will do!

    How are you doing?

     

    Oaktree xx

  •  

    Hi Radley,

    Sorry that I didn't get back to wish you well for your mastectomy. My father-in-law died in the early hours of 23rd. He was admitted to hospital for an assessment on the Wednesday, diagnosed with extensive cancer that afternoon, had a visit from the oncologist on the Thursday, who told us that we were looking at weeks at most.

    Sadly, we got him into the hospice after 5 days and he died that night. It all happened so quickly that we are all still reeling with shock. We lost my mother-in-law exactly 4 months to the day previously.

    On top of that I have just been diagnosed on Monday with my third cancer. This time a melanoma on my face. I should see the plastic surgeons soon, as I will need a skin graft after surgery because the lesion is close to my eye and my nasal passage - Lucky white heather!

    How did your surgery go and, how are you feeling now? I hope that it all went well for you.

    Kind regards,

    jolamine xx.

  •  

    Hi Oaktree,

    I am just wondering how your lumpectomy went and, how you are feeling now that you are at home.

    Kind regards,

    Jolamine xx

  • Hi Jolamine,

    Very sorry to know about the sad news of your father-in-law.May his soul rest in peace!! At least he has been relieved of his sufferings.My condolence to you and all your family.

    Felt sad about your new diagnosis-was it confirmed by a biopsy-when are you going to have the surgery? Hope and pray all goes well for you.

    Inspite of these bad news at your end-you still had time to think of me and my surgery-God Unbelievable!Hats off to you dear!

    My surgery last week went off well and I came home the next morning.Wasnt as painful as the lumpectomy I had. Went to the hospital yesterday and had the drain out.was told the wound is healing ok.Just have to wait for the histology result and the follow up appointment.

    I was so scared how I will feel after the surgery emotionally and psychologically that I did post something on those lines on this chat- but don’t know where it was posted.

    Anyways I am feeling much better than I thought I would be- but just worried about the result for now.

    Look after yourself and take care.

    Keep me posted.

    Regards

    Radley

     

Reply
  • Hi Jolamine,

    Very sorry to know about the sad news of your father-in-law.May his soul rest in peace!! At least he has been relieved of his sufferings.My condolence to you and all your family.

    Felt sad about your new diagnosis-was it confirmed by a biopsy-when are you going to have the surgery? Hope and pray all goes well for you.

    Inspite of these bad news at your end-you still had time to think of me and my surgery-God Unbelievable!Hats off to you dear!

    My surgery last week went off well and I came home the next morning.Wasnt as painful as the lumpectomy I had. Went to the hospital yesterday and had the drain out.was told the wound is healing ok.Just have to wait for the histology result and the follow up appointment.

    I was so scared how I will feel after the surgery emotionally and psychologically that I did post something on those lines on this chat- but don’t know where it was posted.

    Anyways I am feeling much better than I thought I would be- but just worried about the result for now.

    Look after yourself and take care.

    Keep me posted.

    Regards

    Radley

     

Children
  •  

    Hi Radley,

    Thank you for your condolences. We lost my mother-in -law 4 months to the day prior to my father-in-law. They had been together for 80 years and he was totally bereft after she passed away.

    I am glad to hear that your surgery went off well. Strangely, like you, I found my double mastectomy less painful than my lumpectomy the previous year. I think that the only feeling that I felt after surgery was relief that I had got it all away. Have you been told when you will get your results yet? You will naturally be worried about them, but I hope that they give you some good news.

    No, I didn’t have a biopsy. I was offered one, but the dermatologist told me that she was certain that it was cancerous and, advised that a biopsy would cause additional scarring to my face. She advised me that she would send an urgent referral to the plastic surgeons, who would probably operate straight away without doing a biopsy. She said that it didn’t really matter whether it was cancerous or pre-cancerous, the lesion would still have to come out, so there would be no harm in waiting for the pathology results after surgery to confirm. I should get surgery within the next few weeks.

    I shall certainly keep you posted and hope that you will do likewise. Here’s hoping that your results come through soon for you.


    Kind regards,

    Jolamine xx

     

  • Hi Jolamine

    It must have been pretty tough for your father-in-law to loose his wife after 80 years of being together.

    That would have taken its toll on him too. I am sure God would give you and your family enough courage and strength to deal with two tragedies within a short time !!!!

    My follow up appointment is in two weeks. It has been bad news for me on both the occasions when I went for the mammogram and histology report after lumpectomy.Hence I am dreading that-but will not think of it for the next two weeks-will just take it as and when it comes.

    Hope you get the surgery appointment soon and all goes well for you.

    Best wishes and regards

    Radley

  •  

    Hi Radley,

    Yes, my poor father-in-law was befeft after his wife passed. They were a couple who did everything together, so I like to think that they are reunited now and happy to be together once more.

    Waiting for results like this is always a scary time, especially when you have had to have some additional tests.

    Have you got a date for your follow-up appointment yet? - Here's hoping that it all goes well.

    Kind regards,

    Jolamine xx

  • Hi Jolamine,

    As you very rightly said they both will be very happy to be reunited again and will be thinking of you and praying for you as well.

    My appointment is on the 13th of Feb-keeping my fingers crossed till then.

    Any idea when you will be getting yours!

    Regards

    Radley

  • Relieved

    Had my follow up appointment after Mastectomy today.

    Good news no need for chemo or radio therapy but for prevention of recurrence I will have to take letrozole for 5 yrs and annual mammograms.

    Has anyone been on letrozole and had bad side effects?Can you share your experiences with this medication?

    Hope I won’t have any serious side effects with it .

    Thanks and Regards

    Radley

  •  

    Hi Radley,

    I am so glad to hear that all went well yesterday. Like you, I didn't have radio or chemotherapy after my double mastectomy. After my lumpectomy,I was put on Tamoxifen, but when I found the second lump in the same breast a year later, I stopped taking this and moved on to Letrozole for 6 years. I understand that some doctors like you to stay on it for up to 10 years now, instead of 5.

    Have you read the information leaflet that comes with your Letrozole? This outlines most of the side-effects with it. If you want to find out more about these, why not use the search engine on the blue banner at the top of this page. If you insert Letrozole or some associated words in the search box, then click, this will bring you to previous discussions on it, which you may find helpful.

    It is sometimes a bad idea to dwell too much on side-effects, as you will know soon enough if you do develop them. Reading about them all can convince you that you have them, even though you may not.

    That having been said, I sincerely hope that you won't be plagued by any side-effects.

    Kind regards,

    Jolamine xx

     

  • Thanks Jolamine

    I did read the leaflet which gives a very long list

     of side effects.But you are right  reading too much about it doesn’t make it easier and you start imagining things.

    A week on Letrozole so far so good apart from feeling a bit tired let me see how I get on with it .

    I seem to have seromas on either side of the scar which is quite big on one side but the surgeon was not very concerned and didn’t want to aspirate as he said it will recur if he does.

    Anyways keeping my fingers crossed and pray it will get absorbed soon.

    Hope all is well on your side. Have u got the appointment?

    Regards

    Radley

  •  

    Hi Radley,

    I am glad to hear that you are coping with Letrozole so far. The seromas on either side of the scar are not so good, but I expect that your surgeon is waiting for them to absorb naturally.

    I've got my date through for surgery. It's on 4th March, so not that long to wait now, thank goodness.

    Thinking of you and, hoping that everything settles down soon.

    Kind regards,

    Jolamine xx

  • Hi Jolamine,

    Was thinking of you today. How did the surgery go-Hope it went on alright and you are ok and back home.

    Regards

    Radley

     

  •  

    Hi Radley,

    The surgeon was very pleasant and very thorough. He explained that if he removed the lesion with a 2½cm margin (the minimum he needs to remove) and the pathology result comes back as benign, then I couldn't have plastic surgery afterwards, but if the lesion proves to be cancerous, then there is no problem in getting a skin graft.

    He looked at some of the other lesions on my body and found another suspect one on my right leg, just above my ankle.

    I have had 2 excision biopsies, with quite a sizeable chunk removed from both lesions. I have to keep the dressing on my face for a week and go back to the clinic to get the stitches on my face out then. I also have to see my GP to remove the stitches from my leg in 2 weeks time.

    I must confess that I was not looking forward to getting the anaesthetic in my face, but both were virtually painless. We'll see what they're like when the local anaesthetic wears off!

    The pathology results are not likely to be back for 4-6 weeks - what a time to wait! He was saying that if they turn out to be benign, then he wouldn't operate as he has already removed the pigmented area of both lesions today.

    How are your seromas doing, is there any sign of re-absorbtion? You have been on Letrozole for a while now - are you still coping with it?

    Kind regards,

    Jolamine xx