DCIS questions

Hi-I have just been told I have pre-cancerous DCIS. All medical staff have told me this is a positive thing. It's still a major blow-I went to the doctor with breast pain and this was picked up through a mammogram-on the other breast! I appreciate that I am lucky and my surgery will be a preventative measure, but it's still tough. I meet with the plastic surgeon in 2 weeks but just wondered if there was anyone out there in the same pre-cancerous situation! Thank you

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  • Hi there

    I’m going tomorrow for a mastectomy as a result of DCIS. My surgeon suggested this as it’s quite a large area and I have quite a small chest. I am not having reconstruction and hopefully will not need further treatment. They will check 1 - 4 lymph nodes too. I’m 52 and this was picked up at my first mammogram in October. I’m a primary music teacher and had 10 nativities to play for before Christmas hence the delay.

    S

  • Good luck tomorrow! Will be thinking of you xxx

  • Hi there

    i got on really well today. Had the sentinel node thing done - wee bit nippy but not much. I was anxious about the anaesthetic but was all fine. I opted to stay in overnight although I could have gone home and I’m so glad I did - it’s like a hotel, so restful. Every member of staff today has been wonderful. 

    Will go home tomorrow and then back next Thursday for the pathology results. 

    Thanks for all your good wishes

    Sheila xx

  •  

    Hi Sheila,

    I am so glad to hear that all went well today and, I am sure that you will be glad to have it all behind you now. You will probably feel a little more tender tomorrow, as your medication is reduced and your chest begins to heal. Do you intend to have any reconstruction?

    I have had a lumpectomy 9 years ago and a double mastectomy 8 years ago. If I can be of any help, I am here most nights.

    Hope that all goes well with your pathology results next Thursday.

    Kind regards,

    Jolamine xx

  • Hi there

    Thanks for your reply. I’m not having reconstruction. I had a small chest to start with so it’s not going to make a huge difference to me and I didn’t fancy the added operation time/recovery time.

    I’ve not got a drain which I’m pleased about, a wee bit sore today but I’ve only had paracetamol since the op and that’s fine. I’m in hospital in Glasgow and the staff are just fantastic! Will go home later today.

    Sheila xx

  • Hi Sheila

    So glad your ops over for you now. Another worrying wait for test results but just you concentrate on getting over your op. Worrying for the next 7 days won't change anything

    Take it easy. We're all with you on this. Take care and let us know how you're doing - Irene xxx

  • Hello. Just wanted to add my good wishes to you and hope the pain subsides asap. Annie

  •  

    Hi Sheila,

    I didn't have reconstruction either. I manage well with an assortment of prostheses and the occasional modesty panel for low cut dresses.

    You are lucky not to have a drain. The pain will gradually subside. You're doing well if you're only taking Paracetemol.

    I'm glad to hear that you find the staff in the hospital so good - that was my experience too.

    I hope that you get home today.

    Kind regards,

    Jolamine xx

  • Scottie,

    Absolutely delighted that everything went well for you. I'm in Glasgow too! Please, if you want to, keep us posted on your recovery. Xx

  • Hi Jolamine

    It was shocking when I was told about my diagnosis of breast cancer. 

    Sadly I had a lumpectomy (mucinoid cancer)a month ago which showed extensive DCIS-not picked up by Mammogram or ultrasoundi-so I am going to have a mastectomy in 2 weeks-was not prepared to go for a reconstruction and the surgeon and the Nurse were not encouraging it either because of the longer recovery period and complications.

    Having told them I didnt want it I am panicking now.

    Just saw your reply to Sheila which made me feel better.

    How do you get on with the prosthesis- what were your initial feelings about it-is it comfortable to use and what type of bras do u have to use with it-is it just the post surgery bras?

    would be grateful if could throw some light on it please and help me with my anxiety.

    thanks

    Ashley

  • Hi there

    I was so impressed with everything at my hospital! I could have gone home on Wed after surgery but opted to stay the night. I could have stayed a second night but was fine so came home.

    Ive only taken paracetamol and in fact haven’t taken any today as I’m not really in any pain. The wee bit under my arm is a bit stiff but I’ve started my exercises. I didn’t sleep too well the first couple of nights but it’s getting more comfortable. The breast nurse at the hospital will phone me on Monday to check I’m okay and will see me on Thursday when I go for the results. I have absolutely no worries about that meeting - I was only concerned about the general anaesthetic and we’ll cope with whatever happens. Where the dressing is just feels a bit numb. I’m wearing a sports bra at all times - you really wouldn’t notice much difference to look at me from last week!

    Feel free to ask any questions.

    Sheila xx

  • Sheila,

    You are Wonder Woman!! You sound like such a positive person-this can only aid your recovery.

    I'm still in limbo at the moment-next appt is with plastic surgeon.

    Keep strong! Xx

     

     

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