Experience with prostate cancer treatment options

hi to all

im new to forum,I have been going through an absolute nightmare with my prostrate cancer treatment options for almost two years now , starting with the dianosis then having biopsis that developed into sepsis and the horror i expierenced with the refusal of the ambulance switchboard  to accept that my sepsis was serious enough to saction a ambulance for me, then the nightmare of being left in a emergency general ward with constant new arrivals day and night were by no one could possibly get any sleep with the constant noise and full lights on 24 /7,  ended up waiking out of the ward with a very high temperature and very ill only then being offered a bed in the urology dept, where i eventualy recieved the correct anti biotics! i eventualy fought off the sepsis after another week in hospital.

I then asked to be referred to a nhs hospital that could offer me the hifu treatment that i considered would be the best way forward to me for my cancer, only to find out almost a year later, whilst waiting to hear anything at all that the hospital i had been referred to has lost my referal papers!!!! I have now rectified this throught pals and am waiting for a new scan to see if i am still at the appropiate stage of cancer developement to enable the hifu treatment to go ahead.

Needless to say im very upset by the treatment i have received by the national health service and wonder if anyone can offer me any advice on how to deal with this wholely unacceptable situation.  Peter

 

  • Hello Peter,

    I just wanted to welcome you to our forum. I am so sorry to hear you have had such a traumatic experience and I hope you will find some comfort in talking to others in this forum who have also had prostate cancer treatment and understand how you are feeling. I hope that despite the delays and these setbacks that you will be able to start the HIFU treatment and that you don't have to wait too long now. 

    Just a minor thing, I have changed the title of your thread from PeterA to something more specific about your situation to ensure that it can be seen more easily on the forum by others who have also been affected by prostate cancer.

    So I hope those on here who have also had the HIFU treatment will see your message and share their story and treatment experiences with you.

    Very best wishes,

    Lucie, Cancer Chat Moderator