Hello - diagnosed with ET (Essential thrombocythaemia)

Hi. I have recently been diagnosed with ET-Jak2 following a blood test taken to check my Thyroid, I have been taking medication for an underactive thyroid for the last 12years, and one of the signs that this medication needs adjusting is my energy levels slump. The blood test indicated that my thyroxine levels were fine but concerns were raised by my platelets levels being 1298. I am currently being monitored regularly and take an aspirin daily other than that I'm not undergoing any other treatment. I have been told that if my levels rise to 1500 then other treatments will be considered. I do struggle with the tiredness but recently the burning pain in my feet are driving me insane. So glad to have found this forum and spend time with people who understand. 

  • Hello KPNUTS88C,

    Welcome to Cancer Chat and you have come to the right place to meet other people who really understand what you are going through at the moment. Hopefully you will hear from others who have been diagnosed with ET and who have experienced similar issues to the ones you describe. I had a little look on our forum for you and found for example this recent thread by [@Jdog]‍ who was trying to reach out to others also affected by ET. I hope you two will get chatting here soon! Another great thread for you to look at is this one by [@Angiemac]‍  where you will find others to connect with who are in a very similar situation like [@UKBeardo]‍ who specifically has ET - JAK2 so another great person for you to talk to.

    Have you talked to your doctor about this burning pain in your feet and whether there is anything they can suggest which could alleviate it? It's great that you are being monitored carefully.

    We also have some information on essential thrombocythaemia on this page ,

    I will now let some of our other members who have been affected by ET come and share their experience with you. And I am hoping there will be a few so you don't feel alone with this!

    Best wishes,

    Lucie, Cancer Chat Moderator