Hi Dave, see my recent post from a few minutes ago. Best of luck and Seasons Greetings.

Hi Eric,

And thats why we are so so lucky with our NHS system.

Not sure arrangements outwith, but in Scotland all our medication needs are totally free.

I am on morphine/mouthwashes/months supply of Ensure drinks -. 6 a day. Other non related medication for back and water tablets.anti sickness meds..soluable paracetamol and other misc..

My GP and Radiotherpapy team have been great and have prescribed every single thing I have needed at no cost at all and without a murmur.
I know paying via national insurance contributions, but its a wonderful system when you need it most and the thought of paying for all the constant medication required and on a long term basis would be quite daunting for many and in fact would be a stuggle to finance in many cases.

I have nothing but the highest praise for our NHS in the main. Does your EU card not cover you for medical costs? Just curious as you may find your meds turning into quite an expense if I have picked you up correctly.

I forgot to mention that one of the tips that I got from Hazel was to get a nebuliser, which I did from Radiotherapy dept on loan as long as I need. This also helps quite considerably and its little mask over nose/mouth which releases saline and helps clear the muscas. I still use post treatment but I would highly recommend trying. They are quite cheap on Amazon and its definataly worth considering as i can vouch it was a great help for me.Use at night just before bed and a couple of times during days worked wonders.

Kind regards

ian

Eric

Just a little side note re cars as I like the look of your Jaguar and would be nice driving in such nice climate.
I love Scotland as climate is pretty much mild all round..Sods law for me re cars as I treated myself to a new Mazda CX5 SUV and I love it as so comfortable to drive. I picked it up on the saturday bu was then diagnosed with my cancer on the Monday which took a bit of the shine off, but hey ho still positive.
Get out when I can but since car picked up 29 June I have 1300 miles on the clock !

Look forward to geting out in my new toy more as soon as poss and am just doing little drives periodically.

Kind regards

ian

Hi Ian, if I can help with anything I am sales manager for the largest Land Rover dealer in the UK, we also have Jaguar.

Best wishes

Gary

Hi Gary 

many thanks....I will have a brand new jaguar please..thats very kind of you lol.. will even let you surprise me with the colour.

always liked jags and I would really love to own a top range rover in white...but Im really happy with my Mazda CX5 SUV and lovely to drive and its brand new. A shame im a little restricted to driving it just now..

 I will assume then that both you and Eric are Jaguar owners.

kind regards

ian

HinEric B

welcome to our small exclusive club that nomone wants to join .

i am 15/weeks post radiotherapy can’t help with a amino acids but sympathetic to everything else been these done and doing it 

I have written a blog it may help younibe had over 1900 views and if ut helps one person all the better .

www,radioactiveraz.wordpress.com

being a blog The most recent post at the top first post at the bottom.

we also visitbspain have a long term rental apartment on the Mar Menor.

if i can help please contact the  forum are a few of us in his forum who are only too pleased  to help 

Do u know are u hpv 16 + orbdontbspain test for that so u have a primary cancer ? 

Sodt toothbrush and nebuliser plus humidifier for bedroom are a god send tooth brush think ian has already Tolstoy you about plus are you on special toothpaste duraphat as the radiation plays havoc with our gums 

Hazel good luck 

Hi Gary

good luck I am 15/weeks post radiotherapy  and have written an blog it’s a honest account of how  I felt please feel free to read it and pass it in to  friends and family as it save u explain8ng how u feel. I am a 61 year old wimp if a woman n I don’t I can do it any one can.

like Ian says there’s ate a few of us in here feel free to pop along anytime will try and answer your questions from a patients point of view.

blog 

www.radioactiveraz.wordpress.com

latest post first so go to bottom for beginning .

ps you can send me a new Range Rover please if u find the blog helps. Lol only joking we’ve s had 2 last one was new 03 plate she served us well until ghe viscous coupling went in way back from Spain a few years ago !!!!!! That’s a whole story in itself. 

Where in the U.K. are your?

Thanks for your reply, glad you are getting there albeit slowly.

I have read your blog and it makes interesting reading.

I know I have a hard road ahead but have a strong wife and family and friends to support  me.

Not sure I can sort you a Range Rover out but you never know. I am in Birmingham by the way.

Have a Merry Christmas , and a better new year. 

Gary

Hi Gary

Thank you for reading blog.

shucks re Land Rover probably couldn’t afford diesel for it anyway ! Lol

there us another blog that’s 4 year old by Gary who is in remission now he does come on here from time to time as Vatch his blog is.

www.gammaraygary.wordpress.com

glsd you’ve a strong family we certainky need them.

anywsy keep in touch and fire any questions you nay have forewarned is fire armed 

emma aka as Newlymarried will probably  drop youa line her hubby Pail are also in remission they are from the Birmingham area.

One question do you have a primary cancer ie mine was tonsil with diagnosis T2N3 M0 cause H P v 16+ virus ?

A merry Christmas and a Happy new year although the start will be daunting you will get there and youve spring and  summer to re over 

Take care let us know how you get on

Hazel 

Hi Hazel, 

I have it the same as you in my tonsil. Not sure if in lymph node, I have a biopsy  being done today , so will keep you posted. 

Gary.