Hi BB

Have been lurking on the forum a bit recently, and was wondering how you were doing. Mum is still very much still with us, although her recurrence is now making its way steadily into her bladder which is causing her some unpleasant issues. Although very frail, she is still so cheery most of the time, it's quite remarkable, and makes it hard for to feel too down too often as we have such a laugh together. I think hard times aren't too far ahead, but I'm grateful that it has not progressed as quickly as we thought and we've had over a year of reasonable good health and have had lots of fun times despite no treatment at all.

All the best

kt

Hello kt

I'm not too bad thanks, but I now have "late effects" of the radiotherapy I had.  As you know, not everyone who has radiotherapy to the pelvic area gets them, but unfortunately, I have.  But, as I've always said, at least I'm still here to complain about it.

I'm sorry to read about your poor Mum and I can imagine the unpleasant problems she's having.  But although she's very frail, it's so nice that she's cheery most of the time and that you have such a laugh together.  I lost my precious Mum in 2012 and even now, remembering how we used to laugh so much about the most ridiculous things - quite often laughing so much that we were crying and our jaws were aching - makes me smile.  I know both you and your Mum will treasure these times together and as spring is just around the corner (or so they say) it'll be nice to get out into the sunshine as well or at least have the sun shining through the window.

Do take care, both of you, and my best wishes to you both.

BB. x

Hi I've been trying to speak to anyone about their experience with chemo - "Carbopalin & Paclitaxel" for a cancer called Carcinosarcoma.

I have to decide by next week to have this chemo or not at all.

I don't want to go all the effects of the chemo which I understand could be pretty rough and I've been through a lot in past 9 weeks.

The success rate of this will be about 1 in 10 if at all.

This cancer started off in the womb when I had a total hysterectomy.

They pulled the whole lot out through the cut on the bikini line as it wouldn't go through the laparoscopies.   I was told it was successful but 5 weeks on it has spread into my abdomen & the outside walls of my bowels.

The cancer is very aggresive & fast growing.

So, that's why I am weighing up the pros & cons if its worth going down the chemo route.

My immediate reaction was to rely on Macmillan Hospice.

If anyone had information or experience in this I'd appreciate a message.

Thankyou. Marcoop

PS I only joined this chat forum yesterday so the procedures are new to me!!!!

Hi there BB, how are you?  I hope you are well.  I came across your post and you mentioned that you were suffering from "late effects" of pelvic radiotherapy.  I wonder if you would be so kind as to elaborate on these as I am undergoing pelvic radiotherapy and have concerns over this. Not many posts on here from people who underwent treatment years ago now talking about thus.  If not on the forum, by private message but I will completely understand if you dont  want to.  So sorry if this is an awkward question for you.  Hope you are doing fine. x

Just updating the thread in case useful to anybody. Mum died on 21st June from her cancer. We managed to keep her at home with fantastic help from the local hospice. She suffered quite a lot over the last couple of months and I'm glad she's no longer in pain. She lasted a long time with no treatment, and had a pretty good quality of life for most of that time, for that I'm very thankful. She was 83. She was wonderful.

ktktkt

Hello ktktkt

Just wanted to post to offer our condolences on the loss of your Mum. I'm pleased to hear that you had support from the hospice to enable her to stay at home and that for the most part, your Mum was able to enjoy the time she had following diagnosis. 

Sending our best wishes, 
Jenn
Cancer Chat moderator