Mum diagnosed with Linitus Plastica - what to expect

My mum was diagnosed with a rare type of stomach cancer this week called linitus plastica. We were told that it’s too advanced for any treatment to be effective in curing her and the only option to give her more time is chemo. However she has COPD as well which we all believe would mean chemo would be worse for her as she’d probably end up with pneumonia.

The hospital gave her some literature that says people with stomach cancer can have their whole stomach removed. We, and she, can’t understand why this hasn’t been offered due to the fact that the cancer hasn’t spread outside the stomach apart from into two lymph nodes. I suspect it’s because of the COPD and the complications that may cause. 

Id also like to know what to expect, she’s only 60 and so far apart from vomiting and some weight loss she’s not what you’d call ill so it’s hard to think that she’s going to go from what she is now to extremely ill in a few months. How do people cope with this? At the moment I’m an emotional rollercoaster, the main emotion I’m feeling is anger. I’m the eldest of 7 kids and we’re all trying to be strong but we’re all fighting our own battles with our emotions. One of my brothers is just broken and angry with the world and we all feel that when we lose mum we’re going to lose him too. If anyone has any experience with this cancer please get in touch. I need to know how to help mum and how to help my siblings get through this.

  • Hello Chele and welcome to the forum.  I am sorry to learn about your mum's cancer.  I have to say I had never heard of Linitus Plastica but I looked in Search Forum which is in the blue banner above your post.  In the box that opens up type in Linitus Plastica and you will find quite a few entries from people who have had experience of this.  Look at the ones who have posted fairly recently and you can respond to their posts.  Hope this helps you.  Annie

  • Welcome the forum Chele although I'm sorry about your mum's diagnosis.

    I know you're hoping to hear from others that have experience with this cancer so I just wanted to put you in touch with [@PollyP8221]‍. She joined the forum a few days ago as her mum has also been diagnoed with Linitis Plastica and now that I've mentioned her in this post she'll hopefully stop by when she can to have a chat.

    I'm sure our nurses will give you more information and advice when they reply to your other post but if you'd like to discuss your mum's situation with them in person then do give them a call on 0808 800 4040. Lines are open Monday - Friday between 9a.m - 5p.m.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Thank you, Polly is my sister so we’re already in touch lol but I’m grateful for you thinking of us both x

  • I'm so very sorry you had this happen, but my Dad has just been diagnosed with stage 4 linitis plastica. I'm so afraid of what is going to happen and how to support him. Would it be too painful for you to share your experience or advice for us. I'm sorry to impose and will understand if you'd prefer not to.  Thank you.