My Journey
Wed 23rd May
in the afternoon had pains in my chest - called ambulance as it might be heart attack- went to MK hospital
done ecg - bloods - xray and after sitting on chair for 4 hours was told everything is ok you can go home
It was very noticeable more tech guys in there than a&e staff
Fri 25th May - 4 in the morning
had massive pains in my chest - vomiting - sweating - called ambulance - they took ecg and advised me to go to a&e - was reluctant due to wednesdays episode but finally I did go with them
done ecg - bloods xray and put me in bed - then transferred me to Ward 2
After a very disturbed night due to noise on ward - I asked nurse could I have mild sedative that night to help me sleep - asked again in evening - received my heart meds no sedative
Throughout the day I had other patients - think they were suffering from dementia - wondering round the beds - spilling water etc - numerous times I got out of bed to take them back to their bay or get a nurse -
same again that evening - no sedative
Sunday 27th
another disturbed night due to noisy ward ( why let the doors bang all the time)
I again asked for sedative - still didnt get one
Monday 28th
Feeling really lousy - and late afternoon when partner came told him I was signing myself out - I was so tired - just needed some peace and quiet
Went to nurse and told her I was signing myself out - Site manager came to see me - I explained I had hardly any sleep - told him had asked for sedative every day I was there
After some time nurse came and told me I was being transferred to Coronary ward being told its quieter up there
WHY WASNT I GIVEN A BED EARLIER - 4 DAYS SPENT ON WARD 2 - BEDLAM
Wed 30th
was sent to John Radcliffe where they did an urgent angiogram and fitted 2 stents
Thursday - porter came to take me for ct scan as something was seen on my lung
Skip to present day 6th November - 5 + MONTHS LATER
STILL NO FORMAL DIAGNOSIS
During this hiatus I have had appointments with Lung and heart consultants
had a PET scan early August which showed a concerning nodule on right lung and smaller ones lower down
had a contrast scan late Sept and follow up appt with lung consultant who said he had conferred with colleague at Harefield Hospital and was suggested I go there for biopsy and subsequent procedure to cut growth out if biopsy proved it was what they suspected is was
Had another appt with lung consult on 9th October where he asked whether I had appt with Surgeon from Harefield - I hadnt had no communication
On Wed 10th October I received an appt letter in post to see Mr XXXX (from Harefield) in MK hospital - it was dated the 4th October - posted on 8th October appt was made for Tuesday 9th October 9.40 am!!!!!!!!!!!!!!!!!
I rung the department and they said another appt had been made for 30th October!!!!!!!!!!
I was so angry - another month waiting
I went to see PALS and they were very helpful and later in day informed me a new appt was made for 16th - where I spoke to Mr XXXX who suggested I have biopsy and tests on heart to see whether it was strong enough to take operation
Had ct guided lung biopsy on 1st November
Received an appt letter to see Lung consult for 5th DECEMBER - Yet another month waiting to see if I have got CANCER - I did ring consultants secretary on 5th November and she informed me I will be getting phone call regards results tomorrow afternoon -
I DIDNT GET PHONE CALL
IF THEY SUSPECTED SOMETHING ON LUNG WHY DIDNT I GET BIOPSY THEN?
IF THEY SUSPECTED I HAD HAD HEART ATTACK(S) WHY WASNT I REFERRED TO CORONARY WARD EARLIER?
IS IT BECAUSE OF MY AGE?
WAS THE DELAY CAUSED BECAUSE 2 DIFFERENT DEPARTMENTS WERE DELIBERATING
I REALISE MY SITUATION IS SLIGHTLY COMPLICATED - FEEL LIKE I JUST WANT IT TO END -
know where I stand
