Hello Frozentoes and a big welcome to Cancer Chat,
I hope you will manage to connect with others here who have also been diagnosed with mesothelioma. One lovely lady springs to my mind [@jules54] whose husband was also diagnosed with mesothelioma and she looked after him and therefore may be able to share her own experience of pain control.
We also have some information on our forum on mesothelioma here. If you have any specific questions on mesothelioma, our nurses are also available on this free number if you live in the UK 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm.
Hopefully you will hear from others here who have experience of living with mesothelioma.
Have you been diagnosed with mesothelioma? If you want to meet others who have had this diagnosis, go to the blue banner at the top of this page. If you click on the search box and insert 'mesothelioma', this will bring up previous posts on this topic.
Yes, I’ve been living with this disease for approximately 9 years, I was diagnosed in October 2013, the Oncologist gave me 18 months. I’m finding the pain and side effects very wearing, especially low mood when the pain is unbearable.
Have you spoken to your care team about your low moods. They could possibly prescribe a mild anti-depressant to improve matters for you. Have you attended a pain clinic at all? I'm sure that there'll be one in your area if you ask them or even your GP.
I am the person who Moderator Lucie referred to. My husband was diagnosed with mesothelioma in 2012 and whilst he only had 3 years with the disease, I can see how tiring you must be finding it after many years.
As to his pain control, this was constantly monitored with regular check ups when I reminded him to always tell the truth about his pain level (he liked to hide it from me!!).In the early days over the counter meds worked fine but as time progressed and the mesothelioma took more hold (despite palliative chemo being tried) his medications was changed to keep up and he would describe his levels as a discomfort. However, the cancer caused great fatigue and he began to sleep a good deal. Sometimes the medication had to be 'played around with'/changed to find which suited him best. Do speak to your own medical team to see if they can help further and if there are any other questions I may be able to comment on do let me know as I still pop onto this site to chat with the friends I made here during difficult days. Jules54
